SO...I GOT MY RESULTS FROM THE COLONOSCOPY...COLOSTOMY?!

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praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 6/24/2008 8:08 PM (GMT -6)   
hey all,
 
so i had my colonoscopy on yesterday.  turns out im not getting n e better, theyr thinking about removing my anus...I guess that means sewing it shut? n e way, i dont think im going to do that.  I dont see the point if its not giving me n e problems. But this is his suggestion: a sub protolectomy ?(sp) i can't really read his writing. and a colostomy.
 
So here are my questions:
 
are colostomy's reversable?
 
has n e one had both?
 so that I could get some type of comparison? my doc said colostomy is easier to handle, but i dont understand how.  I always assumed the colostomy waste is thicker, and therefore harder to be discreet with b/c it would show.  Also, the smell....isnt it horrible? do people smell it?
 
do u have to have open surgery with a colostomy? or are they still able to be done laproscopically?
 
 
which do u prefer? ur ileostomy or colostomy?
 
im so disappointed in everything, i dont know what to do...this was supposed to be a 6month process, now theyr talking life...its pretty hard to digest
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 6/24/2008 10:03 PM (GMT -6)   

Praying,

I am so sorry you did not get better news from your test... :(  I know we all here can relate to getting test results that were hard to deal with.

So you doc wants you yo change your ileostomy into a colostomy?  I am wondering why--that another big surgery to face...does the doc want to preserve as much colon as possible?

I had my colon, rectum and anus removed...you mentioned that they talked about removing the anus...if it is diseased (mine was with crohn's too), they might want to take it our b/c it can be a cancer risk in the future...and if you have an ostomy, you wont be using it anyway.  They do just sew you shut.  Also, sometimes people who have the rectum/anus intact have to deal with mucus drainage, but if it is sewn shut you won't have any, obviously.

One good thing with a colostomy is that you can "irrigate" it--basically, you can train it to empty once every day or so, so you don't have to wear a bag all the time like you do with an ileostomy--you wear a stoma cap most of the time.

You seem like a strong person and I am sure that even though this is probably the most difficult thing you have ever gone through, you will get through it and be great.

:-)   :-) :-) Erin


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/25/2008 4:54 AM (GMT -6)   
Praying,
I'm so sorry you got bad results from your colonoscopy. sad I can completely relate, because I also had a temporary ileostomy and was told that it could be reversed after 6 months IF my colon healed up.

My colon didn't heal either, so I ended up having a proctocolectomy, which is where they remove the entire colon and rectum. They kept the ileostomy in place, making it permanent.

If, after doing your research, you find out that you would prefer to keep your ileostomy, you could have the same surgery done. If you choose to have a colostomy, it would be permanent, too, since there wouldn't have a rectum to connect to.

I only know about ileostomies, so I can't answer any of your other questions, but I'm sure someone who has one will be able to.

Hang in there. It's going to be okay.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 6/25/2008 4:54 PM (GMT -6)   
I used to have a temp. colostomy and now I have a permanent ileostomy. Yes, the stool is thicker with a colostomy but it does not make it any more noticeable. I actually noticed it less with the colostomy. The odor is treated the same way you treat the odor with an ileostomy. With a colostomy you can be a candidate for irrigation but if you have a lot of D with your crohn's then you will most likely not be able to do that. With my colostomy surgery it was laproscopic but that was b/c nothing was removed. With having zero colon now my stoma is so much more active than before--I hate that. However, it is so much quieter now. So much is the same--what really matters is how you feel and what surgery will produce the best results for your health. Good luck! I hope this helped.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 6/26/2008 7:40 PM (GMT -6)   
so with the colostomy its alot noisier? is it on the same side that ur ileo is?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 6/27/2008 10:01 AM (GMT -6)   
My colostomy was on my left and my ileo. is now on my right. As for the noise, it may just vary person to person; I really only know that is how it is/was for me. I was urged since I was in my early to mid twenties to get everything removed and I just was not mentally ready (I was just shy of 30 when I did). However, I now have a life--something that I could only dream about before. It truly amazes me and at times feels so surreal.
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