for all the people with questions about ileostomy reversals.

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angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 6/29/2008 1:55 PM (GMT -6)   
hello everyone. i was reading some of your posts and thought i would post my own experience on here for you.
 
well i had a reversal in april of this year and i feel great. i had the feeling of not being able to empty properly at first but in time it does dissappear. i think its just the body trying to adjust after surgery.
 
i also had a similar situation like you karen. i also woke up with an ileostomy i wasnt expecting and i had an infection in my scar all the way through too. it took mine about twelve weeks to heal. but this surgery was a complete success. :-) i to get funny sensations in my scars. i think its normal.i am also quite bloated after this surgery but i dont know what that is. sorry i cant help you there.
 
at first i was getting alot of d and i never thought it would end but it will.i asure you its just a natural thing for the body to do.
 
what im trying to say is that it all takes time. please be patient with your bodies. im only nearly three months out of surgery and im feeling great. it really is a slow process at first but it will all get better. just remember to take care of your selves.
 
chari: i am 20 years old and i had my ostomy for 8 months.now i know that doesnt sound like a long time and its not compared to some but believe me when i say that your mum will adjust.its not the end of the world. i lived quite happily with the bag and it just became part of me. it doesnt change who you are. your mum will get a routine going and im sure she will cope.im glad i had a chance to have a reversal but if i had to have an ostomy again it wouldnt scare me.
everything takes time to adjust weather you have a new ostomy or a reversal but it all gets better in time. :-)
i hope you all feel better really soon. i hope i was i bit of help to you. im no expert but just telling you my experiences. remember time is a great healer. in more ways than one! :-)

Post Edited (angel88) : 6/29/2008 1:59:57 PM (GMT-6)


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 7/2/2008 2:59 PM (GMT -6)   
Thanks for your stroy, but may I ask, what was the reason you had the emergency surgery, crohn's disease, colitis, or cancer, or what?
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/3/2008 1:28 PM (GMT -6)   
Hi Angel88!
Thanks for posting your story, I thought I would add a few things for others who may be new to the whole Ostomy experience.

I had my ileostomy done in February 07 and although that is not as long as others I have found a few ways to make it work.

Swimsuits:
A lot of people have asked about this - I found a couple at www.landsend.com that work great!
They have skirtini's, tankini's and others that hide my stoma and allow me to wear my normal size pouch.

Relationships:
I was single when my ileostomy surgery was done but have since met someone who things I am crazy for being insecure.
Everybody is different and being insecure is normal, but try to keep in mind that your disease/ostomy is not who you are.
Tube tops work great for conealing your pouch - as well most appliances also have mini disposable pouches available which will last for an hour or two. I prefer these because the pendulum effect of the pouch is not very sexy.

Clothing:
Tube tops and tight fitted tank tops help to conceal the bulge of a pouch. I generally wear something underneath my shirts so I do not have to be insecure about it showing.
Often Jeans that fit well in the hips are tight around the waist so I stole a trick from a pregnant friend of mine.
Loop an elastic through the button hole and then hook onto the button - instead of doing them up. This keeps the zipper up and provides for an extra inch in case of bloating.
Empire waist band dresses are awesome and tucking the pouch into my underwear helps keep it tight to the body so its not as noticeable.

Odors:
I keep a travel size ostomy deodorizer in the my purse along with a mini 'Glade' air freshner. This way if I am at a wedding or event I don’t have to be embarassed about any odors.

I would love to hear any other tips that people may have!

Post Edited By Moderator (Admin) : 8/7/2010 10:54:51 PM (GMT-6)


angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 7/4/2008 4:56 AM (GMT -6)   
glad bag: i have crohns disease thats why i had the surgery. ive had crohns now for just over a year so things happened pretty quickly for me. also i had a regular reversal not a j pouch.
 
Angela:im sure your tips will be very useful to alot of new ostomates. its amazing how we come up with solutions for ourselves! thankyou. :-) it just shows that it isnt impossible to adapt to new things even if some people have doubts in the beginning!
 
everybody on this forum are so helpful with anything you ask. it was a life saver for me when i first joined. its great to know that evryone joins forces to help people and to asure them they are not alone. its just a great place to be apart of. :-)

melpa
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 7/7/2008 1:24 PM (GMT -6)   
angel88,
My boyfriend was just diagnosed with Crohn's in Nov 07. He is currently in the hospital recovering from an ileostomy and two resections. They gave him a temporary bag. He was told that he should only have it for about 8 wks. Was there any special reason why you had yours for longer?

angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 7/8/2008 8:25 AM (GMT -6)   

hi melpa.

i dont know where you live but here in uk they wont reverse an ileostomy for at least 3 months. most people wait 6 months depending on the severity of why you had the ileostomy in the first place.they like to give the bowel a really good rest. my crohns was really bad so i was told it would be more six months than three. i also have crohns in my rectum which decided to become active just before my surgery was due so they had to put it back another two months.

hope that answers your question. hope your boyfriend is doing well. :-)


Post Edited (angel88) : 7/8/2008 8:29:16 AM (GMT-6)

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