No ideas other then to say that it is not uncommon for CI to affect the small intestine, not just the colon. People continuing to have problems should be persistant in seeking additional treatment at reknown hospitals for this condition.
I am from Germany and have had general dysmotility in all of my gut for over 10 years ( I am 24 now). I haven´t had a colectomy, but you NEED to have ALL of your digestive system checked out before surgery!!! There are tests to find out about the motility of your stomach and your small intestine (even though they aren´t always accurate!). I know from other people from the US that a lot of clinics do them, like Mayo or other University hospitals. If you have upper digestive dysmotility as well as colonic inertia, surgery might not be successful! A test for the stomach is a so called GES and for the small intestine they do a small bowel manometry.