Shaz you are the best - I do remember this now that i have seen it written again. I hope this information will help too.
Surgeons never seem to inform temp ostomy patients of this phenomena. This is very common, affects all jpouchers who opt for a 2-step surgery. But the maintenance of your stoma will not be your surgeon's job, in fact he or she probably knows much about living with one. You should seek help from an ET nurse if you have problems related to your stoma or appliance function. Your doctor should get you these services as home visits. I encourage you to call either your surgeon, GI's office, or insurance company and ask for a referral. Do not stop pestering folks until that nurse has shown up on your doorstep.
Post Edited (pamysue) : 7/6/2008 6:39:43 PM (GMT-6)
pamysue--I have been there and done the freaking out...just ask my husband!!! My surgeon would put 3-4 stiches on the lower half of my stoma to keep "overflow" from entering the intestines below the stoma. It worked great but every once in a while I would have to go back and have new ones put in. They can fall out and then the whole process starts over again...but you always get notification they've fallen out YUK!
Just know that it doesn't hurt to have them put in. My CR Surgeon does it in the office and it only takes five minutes.
What do you mean by "innie"? Does that mean that the stomach around the stoma dips inward and the stoma comes out from there? If it is, that's how mine is. I use a wafer with convexity which pulls the stoma out so that the output falls into the pouch and doesn't gather around the opening (which could be why you get some going out the other hole). My doc also checks with me on the length of my stoma and I am supposed to let him know when/if it gets too short/long because he can make adjustments to it so it functions better.
pamysue-it is how the wafer is formed. If a wafer is totally flat, it has no convexity. Light Convexity has it slightly "dished" and then there is Deep Convexity which is the most "dished" and can really pull the stoma up...
My stoma is not and "innie" like yours, but the skin around it dips in and could cause leaks amongst other issues. I use the Deep Convexity with an Eakin Seal to pull the stoma up and kind of make it even with my skin...I don't have leaks and the output doesn't "pancake" around stoma.
Hope things heal properly for you...Good Luck!