Post Edited (Bennick) : 7/7/2008 4:45:05 PM (GMT-6)
I am in Calgary Alberta and under the care of an amazing GI Specialist for my crohn's disease - I had to wait a year to get in to see him but I understand the wait time is quite a bit shorter now.
My family doctor had to refer me to him - his name is Remo Panaccione.
He is one of the best GI Specialists in North America and has a team of nurse practitioners who actually take the time to talk to you about how digestive illnesses can affect your whole body.
A new Motility clinic has opened up at the Foothills Hospital here in town.
They specialize in digestive Motility disorders - I tried to find a link to their department but I think they are too new.
Here is a link to a news article about it.
I am 28 and had a total colectomy for colonic inertia. I had my surgery here in Grand Rapids, MI. I was under the care of the Ferguson clinic through Spectrum Health. My surgeon was amazing and we have top-notch medical care here in what they call "medical mile." My surgeons name was Nadav Dujovny ( not sure his nationality, but he is 36 and does not sound foreign). I am doing rather well.....few bumps in the road, but nothing else worked so my option was surgery. Take Care
Thanks for your info. When you say nothing else worked, what else did you try? The gammet of drugs and diet changes, I'm guessing? I don't seem to be getting offered any options other than the surgery, which I've been really trying to avoid. Just lots of "come back if you're not feeling better" which I keep doing, having more tests, finding more things wrong/not functioning, but still no one is able to DO anything. My surgeon said a sub-total would be the last resort.... I feel like I was at the last resort a year ago! It makes sense in my head that removal of the redundant portion of my colon would make things better, but what do I know? I see my surgeon here tomorrow, so maybe I'll get some options from him then? Feels odd to hope for a big operation, but it really is so hard for us to live life normally. And I'm SOooooo glad to say "us" because I've been feeling very isolated with this. I'm going to google your doc and hospital to see what I can find. I come from the land of socialized ("free") medical, so it would be a huge expense to come down there, but we're willing to do it if we need to. Thanks again for the reply. Are you feeling well these days? When did you have your total? If you don't mind sharing the details, I'd be interested to hear how it all went for you.