I supplemented my meals the first few weeks with Ensure type nutritional drinks. They are not the best tasting things in the world but they might help with keeping her nourished.
Total Colectomy with End Ileostomy May 27th, 2008
You can gently remind bratcat that her surgeon will want her strong and healthy for her next surgery so she will need to get some nourishment. I know it can be surprising to see the ostomy output (and it will be very similar with a jpouch) but it doesn't mean that food is not digesting. She is abosrbing calories in her terminal ileum it's just that now without a colon there isn't anything to pull the water from the waste and form a solid movement. Believe it or not many foods that coloned people eat come out the same way they are just hidden within the solid mass. Get her to do some walking as to jump start her appetite and feed her foods that she really craves.
You all have great suggestions. I think mostly it is just time that she needs to adjust to the new feelings of the stoma. And the aches of her body healing.
Charlotte--the soup sounds delicious. I think I may try it for all of us!
Lew--I am glad your son is doing better now. I can't believe he is eligible for step 2 already. It seems like just yesterday that he had his surgery (it was my birthday). I'm not sure if the 3 months went as fast for him (I remember all his setbacks he had for awhile). My daughter will be able to have step 2 in October. Originally she figured she would wait until Christmas to have it. Right now she would like to count the days until October!
Lew, what are the duvet covers? Where can we find them? She hasn't even gotten to the point of trying to figure out where to lay her bag. Right now she just wears a longer baby doll shirt (luckily they are in style now) and lets the bag hang over her shorts.
She will be a senior in high school this year. Hopefully she won't miss as much school as she has for the past 2 years.
My son also doesn't like to tuck in his bag. He says it pulls, so he wears it out. Unfortunately with guys, there shirts aren't as long so sometimes it hangs out a little. We found these bags at www.colorbydnf.com. It's two women and they are really nice. He likes them when the bag is empty, but when it fills up, he says the bag gets a little bulky, but he still likes it better than tucking the bag in.
I'm glad she has another year at home as she goes through all this. I'm pretty nervous about the whole college thing, but I have to realize that this is something he is going through and he's really tired of how it's effected his life and he just wants to try and live as normal a life as possible. All we can do is support them and be there for them.
Has she started eating a little more?