Bennie-first off, do you have any waterproof tape (the pink stuff)? I don't use it on a regular basis, but I have some from a LONG time ago, keep it in my bag, and use it for emergencies! this would be one of those times...It would allow you to keep using the pouch until you can call Hollister, or call your supplier and have them overnight a couple bags (expain that the first two leaked and they should be very accomodating).
Next question, where are you located? I have some extras if you are close to Akron Ohio
I also use the New Image and have been really pleased. The wafer fits my stomach well and the filters are AMAZING! I get 3-4 days wear time with the pouch and don't have to cover the filter to shower (i always forgot that with the other brand I used to use..). It will fill up with air at night, but after I empty in the am, it goes right back to working.
Good Luck in getting the new pouches
Thank you so much for your replies. I called the ostomy nurse from the hospital at 7:30 this morning. And she answered her phone! We had only met the day of my daughter's surgery and then she went on vacation until yesterday. Another ostomy nurse showed us how to change the whole thing the day she was released. And then a home care nurse has come by 2 times to see how she is doing. She is very nice but I don't think she specializes in ostomies.
We were able to get in to see the hospital ostomy nurse this morning. She said that my daughter's ostomy does not protrude very much and that it points down (towards 6 o'clock). To add to that my daughter's stomach is not flat so there are several hills and valleys to contend with. She put on another Hollister Convex New Image wafer (at least she had on the right thing) and showed us how to stretch the top part of my daughter's stomach more taut while pushing down near the opening of the stoma to help push its "head" up a bit more. She sent us home with another whole set just in case and will have Hollister overnight us another sample box set. My daughter had some irritation around the bottom edge by the stoma so that was contributing to her pain. So far so good. Of course she goes back to the surgeon on Friday to get the stitches out so they will probably upset the whole barrier (it lays a little over the incision).
I have come to the conclusion that it would be easier to pay someone every few days to change this whole thing! Less stress, less tears, less aggravation. The only thing that is keeping me going right now is that most of you have gone through this in some capacity and you are all happy and well adjusted. So my guess is that while it is rough right now, it is something that is very minor in the grand picture.
Bennie, you are doing just fine...glad to hear you were able to get in to see your ET nurse today! My stomach has about five levels to it now and the convex new image works well (i use an eakin seal, too) on the uneven surface. It is more flexible than the other wafers I have tried.
I know it is really hard to deal with something so new, but having staples/stitches removed WILL make a difference. As far as paying someone to change it, you'll get used to it...after my 2/08 surgery, I could hardly change my appliance. I got sweats, shook and could barely look at my stomach/staples...and this was my THIRD stoma!! So, you and Bratcat are going through emotions that we have all had.
I am so happy for you that you have been able to get answers to your concerns! When Bratcat feels better, I hope she can say "HI"!
ok...so i dont have to use convexity ( yet lol hopefully never) but i do know the feeling of changintg the bag and how hard it can b right after surgery. I thought id previously posted on this topic about how vital a moms help is, but i dont see it here. But long story short, when i had my surgery, my mom had to help me change my bag and i cried alot too, it took us up to an hour sometimes... The frustration w/an active stoma, leaks, the weird feelings ur body goes thru, being grossed out...it was really hard.
But, if u guys can stick it out, i really dont think u'll need to pay someone to keep changing it. She needs to gain the experience, for however long she'll have it. They'll be those moments (hopefully very few) like u mentioned where its the middle of the night when a nurse won't b able to make it. and the more u do it the easier it gets. Trust me, i thought the day would never come, im now down to about 10-15mins...the smell goes away...it will get better, but eventually she'll get like me. I had a leak and didnt want to have to wait for my mother to change it, so i got pissed and did it myself....sometimes sheer frustration and anger will push u into doing it for urself lol
just let her know it'll get better...