Is there a video anywhere that deals with a colostomy?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 7/17/2008 10:26 AM (GMT -6)   
Does anybody know of a good website that shows someone actually cleaning and caring for a stoma?  I found a couple people who have posted stuff youtube, but they are a little strange.  I was wondering if there was anything else out there I could have my husband watch so he is a little more prepared for what is to come.
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008
 
 


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 7/17/2008 5:14 PM (GMT -6)   

Hi Ladyhawk,

I too wanted my fiancee to SEE what a real ostomy looked like before the surgery so that he would know what to expect.  I found a video that shows up close and in detail a lady and her stoma as she is changing her bag.  For me, this video was comforting, and I got more used to seeing what a stoma looks like.  Now, this woman has an ileostomy, not a colostomy, but the stomas are pretty similar (colostomy is on the other side of the tummy and usualy just slightly larger stoma).  Also, if you choose to wear a colostomy bag, it will look similar to what the woman is using the the video.

The part I am talking about is in the middle of the video.  I think the whole thing is about 8-10 minutes long.  Hope this helps! :)

http://www.us.coloplast.com/ECompany/USMed/Homepage.nsf/(VIEWDOCSBYID)/035885B83E11D4B005256AC4005846B5?opendocument&unid=035885B83E11D4B005256AC4005846B5

and click on "Patient Education Video."  Then just choose the program you want (quicktime or windows media).

:-)  E


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 7/17/2008 5:16 PM (GMT -6)   

I just clicked on my link and it did not work... :(

Instead, go to  http://www.coloplast.com/

Click on "Ostomy Care"

Scroll to bottom and choose "USA" from the drop down menu

Click on "Consumers"

Click on "Educational Resources"

Click on "Patient Education Video"


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 7/17/2008 5:50 PM (GMT -6)   
Little E,
Thank you for the info.  We are planning to watch it tonight.
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008
 
 


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 7/19/2008 4:27 PM (GMT -6)   
Little E, I wanted to thank you again for sending this link.  It is by far the best video I have seen information wise.  I'm sending in onto the family and friends that have questions about my surgery and afterward.  Thank you!
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008
 
 


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 7/20/2008 3:55 PM (GMT -6)   

Youre very welcome!  This video really helped me and my fiancee a lot get a picture of what I was going to look like. :)  It also really helped me realize that I would not look that bad (I think that lady looks great in the video...!)

2 Things I also wish I was told before the surgery (if you are having ileostomy surgery):

1. Right after surgery, your output from the stoma will be dark green, completely liquid and smell awful.  This is normal.  As you begin to eat, output will thicken up, not be green all the time and smell waaaay less!

2. After surgery, you will have Lots of gas many times each day.  This is embarrassing--it basically sounds like you are passing gas the "normal" way, but since it is out of your stoma you have no control about when it comes out, and it can be much louder than you would think...!  I was so scared that this would continue forever (and I am a teacher, for crying out loud, can you imagine "sounding off" in front of a bunch of kids...? :(  ) BUT after about 2 months, I do not have any more gas (yayyyyy!)--so don't worry, it will go away!

E

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 18, 2017 7:07 AM (GMT -6)
There are a total of 2,883,638 posts in 316,440 threads.
View Active Threads


Who's Online
This forum has 157538 registered members. Please welcome our newest member, salfelci.
370 Guest(s), 11 Registered Member(s) are currently online.  Details
Erichardson234, bleepitybleep, jmarshall32390, Inspiredby3, luckylibra, NiceCupOfTea, dar2017, lovefishing, sgagsa345454546, J24O90, MacroMan


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer