What and when should I order bag supplies:)

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LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 7/19/2008 4:19 PM (GMT -6)   
So I'm on Tuesday I am having my pre-op meeting with a nurse, my ileostomy surgery is scheduled for Aug 1st.  My question is about supplies.  I'm sure the hospital will send me home with some stuff, but where do I buy it after that.  Do pharmacys sell it or do I have to order it through the mail?  Should I do that now so I have ednoguh supplies in time, or should I wait until after the surgery so I know exactly what to order?
Thanks y'all
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 7/19/2008 5:32 PM (GMT -6)   
It's not necessary to pre-order supplies.  Your ostomy size will change over the first few weeks and during that time an ET nurse will visit you at home and help guide you to the best wafer to fit your stoma.  All stomas are different therefore the reason to have the specialist help you with this.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 7/19/2008 5:54 PM (GMT -6)   
I got my loop ileostomy last July. The hospital sent me home with Hollister products, but I ended up having to change brands because I was allergic to them. The most common brands are Hollister, Convatec and Coloplast. So, if one doesn't work for you then the ET nurse will have you try one of these other brands. The hospital will probably give you a catalog. It gives you an idea of what's available. Not that you have to order from that company.

Check with your insurance company. Last year I had Aetna Insurance. The insurance companies sometimes have preferred providers they'll want you to use. Such as Sterling Medical, Edgepark, etc. With Aetna, they covered 100% of my supplies. This year my husband and I went with my insurance company which is Blue Cross/Blue Shield. Once I met my $250 deductible, my supplies were covered 100%. They have no preferred providers, so I can order from whoever I want. I stuck with Sterling Medical since I was already established with them and I can call them and ask if they'll pull up my history because I don't always have the order codes on me. It's very convenient. I also order a couple of supplies from Edgepark Medical that Sterling can't get.

The first six months or so I was ordering like crazy because I was allergic to so many of the products or something didn't work right for me. But, that has slowed down quite a bit. It's just that it was all so new. you'll get into the hang of it in a few months.

The best piece of advice I can share is to always have your supplies in order and ready for your change. I always do mine over the bathroom sink. Everything is laid out including plenty of paper towels. I rip them into about 8 pieces so I can just dab the stoma if it runs.

Good Luck!

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 7/19/2008 8:06 PM (GMT -6)   
Not every one has a nurse check on them at home. You may want to check into that (as well as how your insurance wants you to handle supply ordering) to make it easier after the fact. Also, some suppliers will ask you for a prescription; most docs will write 'ostomy supplies as needed' so it's pretty open ended. Good luck.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/19/2008 8:24 PM (GMT -6)   
what my husband did was, friday before i got home he ordered me a small amount of what the nurse suggested, so it would be there when i got there monday, they ship them super fast!
they will send you some home from the hospital but not many.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 7/19/2008 9:24 PM (GMT -6)   
be careful tho...if the hospital doesnt know what theyr doing....as mine most definitely did not...they may make the mistake of ordering too many bags (as was done for me !) and i ended up with a 300 dollar bill for a bunch of clear bags that have never used....im just holding on to them incase its for an emargency i guess. U may want to call your insurance to see what they cover and what they dont
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/20/2008 6:35 AM (GMT -6)   
P4H-you might want to check with your ET nurses, at my dr's office, they will take partial boxes of wafers/pouches and any equipment that I don't/can't use anymore. There is a volunteer that has a list of people who don't have insurance or cannot afford supplies for what ever reason and matches them up with the supplies. If you have full unopened boxes, you could try to return them. My supplier (Edgepark) has done that for me, too.

LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 7/20/2008 9:58 AM (GMT -6)   
Thank you everyone for your advice.  I'm going to call my insurance co on Monday to see what they do and do not cover.  My doc has never mentioned having a nurse visit at home so I'll be sure to ask at Tuesday appt.  Thank you all!
32 yrs old, Mama to my darling daughter (6yrs) and my little boy (2 1/2yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Double dose of Remicade every 4 wks HAS STOPPED BEING EFFECTIVE
Prednisone 40mg, Zoloft 100mg, Phenergen
Having a total colectomy Aug 1st 2008
 
 

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