Straight Ileostomy Reversal

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crohnshusband
Regular Member


Date Joined Sep 2004
Total Posts : 26
   Posted 7/23/2008 2:30 PM (GMT -6)   
Hello everyone. I'm a frequent visitor to this site however never posted. My wife has had a loop ileostomy for 2 1/2 years to rest her bowels due to crohns. Last Thursday, she had the reversal :) ...  I know it's normal to have many bowel movements at the beginning, but when should her bowel movements start decreasing? She goes about 15 times daily. I know its only been 6 days since surgery, but I wanted to see what some of you folks that have had the reversal had to say.
 
Thanks,
crohnshusband

mommyphotographer
Regular Member


Date Joined May 2008
Total Posts : 159
   Posted 7/23/2008 8:44 PM (GMT -6)   
hello glad you posted. we all have been there. and for me it got alot better with in 2 weeks. and then now almost 5 weeks post op i am just perfect. i go way more often then before but i am very happy with the 5 bm at most a day. not runny just soft formed stool. she is will get better by this time next week . post and let me know how much better it is for her only a week from today. just curious.........

candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 7/24/2008 11:03 AM (GMT -6)   
Welcome to the ostomy site! My reversal was 5/9/08 and then I had a stricture that had to be dilated 2 weeks later, but after that it took about 3 weeks for the bm's to thicken up and decrease in frequency enough for me to return to work.  It continues to improve every week.  I'm about 11 weeks post-op now (9 weeks from stricture repair) and just returned from a vacation that was an 8-hr drive. I NEVER could have done that with UC!

Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 7/24/2008 1:40 PM (GMT -6)   

Hi,

I had my reversal on 13th june this year, I am still having loose movements about 5 times a day, then maybe the next day I have none!! eyes

I still take Immodium for the loose motions, but still having the cramps.

Gillian x

 


Ileostomy - Feb 06, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.
Ileostomy Reversal - June 08.
Hernia Repaired - June 08.
On top of the world again.


Isabella
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/24/2008 1:49 PM (GMT -6)   

Hi,

I'm new to this site and was hoping for some help!  I'm 35 years old and was diagnosed with colitis in Feb. 2008. After trying several medications we found that my body was immune to it all and ended up killing my colon in about 3 months.  I'm three weeks out of colon removal surgery. I received an ileostomy and will have the reversal hopefully in another 3-6 weeks.  I'm at my wits end right now because I can't seem to keep from leaking. Yesterday I had to change everything 5 times. Needless to say, surround ing my stoma site it is bloody, oozy and quite painful.  I read about Ashley and Frank and you all seem so nice.  I have to give all of you credit!  It has been five months of pure hell, I can't even imagine 20 years of issues! Any advise or suggestions would be a huge help and may save my sanity!

I'm starting to ny have a watery discharge from my rectum that i can't control at all. It's like a huge water balloon breaking in your pants.  this has become very difficult since I have no warning it's coming.  Since it has started I am afraid to even leave the house now.  I'm also starting to fear that this could be my future following the reversal.  Does this lack of control sound normal? Will it get better over time?


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 7/24/2008 3:44 PM (GMT -6)   

Hi Isabella and welcome to Healingwell.

You have had such a rotton year, I hope in time everything will work out for you. Regarding the leakage what type of bags do you use? and do you use a seal with it? I know some people on here use seals and stick them on first before their bag and it gives them days without having to change!!

I myself didn't use the seals(I think they are called EAKIN seals) I didn't have much problems with leakage.

The watery discharge is normal it's mucus coming from the bowel, the brain still thinks you are using your bowel normally and produces this mucus for easier motions. When you feel you need the loo just go and let it pass.

I so hope I have been of help to you and don't be scared to ask anything, everyone here is sooo helpful.

Gillian x

 


Ileostomy - Feb 06, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.
Ileostomy Reversal - June 08.
Hernia Repaired - June 08.
On top of the world again.


Isabella
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/24/2008 5:10 PM (GMT -6)   

Hi Gillian,

thanks for responding! I'm using Hollister products right now. I've tried adding a barrier ring and also paste around it. So far nothing I've tried seems very effective. I have an in home nurse coming out tomorrow with some tricks up her sleeve.  Hopefully something will work out.  I've lost alot of sleep... I'd try anything at this point!

Thanks,

Isabella


Isabella


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/24/2008 10:36 PM (GMT -6)   
Isabella,
I switched from using Stomahesive Paste alone to using Eakin Seals with the Paste and now just using the Eakin Seals alone. I am having much better luck with the Eakin Seals w/o using the Paste. You know, you can Over seal the area by adding too many layers of protection, or so we think, only causing a worse seal. Let us know what the home nurse recommends ... be sure to check the size of the wafer hole. Stomas can change in size quickly during the healing process and shrink in size. Please double check the size of the hole that goes around the stoma. Also, the weepy skin will cause problems with adhesion of the wafer. There are skin barrier wipes, and powders that you can use to help the wafers stick better to weepy skin. Maybe some others can chime in on this too.

Hope that we can help ya out and welcome to HW.com. Good Luck.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Isabella
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/24/2008 10:49 PM (GMT -6)   

Hi Peggy,

Thanks for your input. I have been using the Adapt Stoma Powder and sometimes some Antifungal powder with no sting barrier film spray over the top. Once it dries I attach the barrier sometimes without paste and sometimes with paste. I can actually feel the liquid burning my skin before I can even see a leak.  I've had to change so often and my skin is so irritated I don't really know if I should change everything as soon as I feel it or wait for the mess...

The nurse is coming tomorrow night to take a look at my mess and offer suggestions.  She mentioned taking Benifiber with very little water daily that may thicken up my stool so it isn't so easy to leak.  I always thought benifber was to loosen not thicken the stool though? I'm cautious to try anything to make it worse.  I'll let you know how it goes tomorrow.

Thanks for your help and support!


Isabella


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/25/2008 10:51 AM (GMT -6)   
Benefiber for a normal digestive tract would be used to "loosen" things up.  However, when you have a shortened digestive tract, ie ileostomy, adding a fiber like this will actually help to absorb the water and thicken stools.  Does that make sense?

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Isabella
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/25/2008 10:57 AM (GMT -6)   
It does! I just started yesterday and I'm already seeing a bit of an improvement. Hurray! Last night was the first night since I got home from the hospital that I didn't wake up to leakage. It has really helped to have everyones advice. This is all new to me and everyones guidance is so nice!
Isabella


crohnshusband
Regular Member


Date Joined Sep 2004
Total Posts : 26
   Posted 7/25/2008 12:12 PM (GMT -6)   
My wife says the surgical site is oozing a little bit of blood and she is having some pain in the area. We are trying to contact
the surgeon and we are not getting a response. Any ideas of what to do? She does not have a fever.
 
 

crohnshusband
Regular Member


Date Joined Sep 2004
Total Posts : 26
   Posted 8/5/2008 6:33 AM (GMT -6)   
It appears the wound site is healing. However she now has what looks like a pimple next to her anus. Last week the surgeon said it didn't look like an abscess. Any ideas of what that could be?

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 8/5/2008 9:56 PM (GMT -6)   
Hi Crohnshusband!

The pimple could be just that, a pimple or a hemorrhoid. Did her doctor give you anything for it?

Isabella,
how did things work out with your home nurse coming out? Did she mention using the Eakin Seals? They really are the best. With oozing skin, you should definitely stay away from products with alcohol. I myself started out with Hollister products because that's what the hospital sent me home with. I went through Hollister and Convatec before ending up with Coloplast, which I find are far superior. Coloplast's Assura and especially Sensura are the best for sensitive skin. I started with a two-piece, but after time (received Loop Ileostomy July 23, 2007), changed to a one piece, pre-cut with wide output pouch. The pouch folds at the end so you feel like you're wearing a closed end pouch.

Also, one of the best prescription products to help your allergic reaction clear up (that is probably what is happening if you having weeping skin (and it's not from a leak) is Kenalog Spray. Your doctor would have to right or call you in a prescription. It can be hard to come by and it is expensive. However, oh my...does it work and fast!

Also, make sure you are using an adhesive remover that does not contain alcohol. I use Allkare Adhesive Removers by Convatec.

Good luck! Let us know how things work out for you. I had a rough few months myself. It can be challenging trying to find what works best for your body. Once you find something, stick with it. I don't think it's worth changing unless you have to.

~ Mary

jrd
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/6/2008 1:30 PM (GMT -6)   
Hello, Just joined today. Had my surgery in Feb '08 and was told I could have a reversal in 6 months and that I still had a rectum. Now my doctor is discouraging me about having this reversal. I was told because I am in my 60's it would be extremely hard on me to do this and he mentioned all of the problems I see many of you are having. Frequent bathroom visits and sore bottom. Is there anyone in my age group that has had a reversal and could you tell me how you did with it and if you think it was worth it.
Thanks,
jrd
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