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milkman
New Member


Date Joined Jul 2008
Total Posts : 19
   Posted 7/25/2008 6:23 PM (GMT -6)   
After 2years of reading the UC board,My 23 daughter ahs just returned home after a 7/8/08  surgery to remove colon  and make the J-pouch ,she has the ileo and was told the output should be roughly 500cc to 1200cc daily,she nervous if she doesnot hit the range because she fears blockage.We had a rough 2 weeks the initial surgery went great ,but ran into roller coaster ride on recovery. Any particular signs we shud be looking for.I undertand the symptons for dehydration,but she hasnot totally regained her appetite, so would that affect the output?Will be reading this website  now any help to avoid problems, thanks all

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/25/2008 7:57 PM (GMT -6)   
[quote]she hasnot totally regained her appetite, so would that affect the output?[/quote]
 
you bet.  don't eat and your output is going to be minimal...just liquidy goo lol.  i wouldn't be too concerned about the cc's-everyone is different, and what you eat will effect you differently.  for example if i just eat turkey or deer on one day i'll only put out mayyybe 750cc and it's all thick.  if i eat chicken or fish it's all liquid and i'm definitely over 1000cc.  if i throw in vegetables or bread then i'm into the 1500cc area.  different foods will effect everyone very differently.
 
as for symtoms of a blockage...cramps that just wouldn't go away, and only liquid or no output.  i was paranoid about blockages too at the beginning, but honestly it isn't something to worry about if you're eating properly...i cook all my veggies, the few i have, and limit nuts (1/2 cup at a time) and no popcorn or leafy greens.  if she's worried about chunky foods throw it in a blender before eating it :)  i make sure to take a couple multivitamins every day too.  if your daughter ever wants to ask/chat with another 20something feel free to add me to facebook matthias AT execulink DOT com  Being young with this stinks, but really once you figure the ileo out it's no big deal.
 
--matt


Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

Post Edited (awesomeame) : 7/25/2008 8:15:40 PM (GMT-6)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/25/2008 9:48 PM (GMT -6)   
i dont know how you guys are measuring the amount that is coming out, but what i do is, if i can go more than about 6 hours without emptying, i start chugging some water, lol. Of course, if you eat less, then you are gonna have less come out. And if you eat veggies or fruits, it's gonna come out faster and more watery. If you eat things like fries and breads, it will come out thicker.
It is not unusual that she hasn't regained her appetite yet, and she is still on the low residue diet, so she is at low risk for a food blockage now anyway.
If she is worried that she has not had enough output, the best thing to do is move around lots, and drink liquids, to get things moving. And of course, if you go more than, my nurse told me 8 hours, without any output at all, then you should call the nurse.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/26/2008 6:45 AM (GMT -6)   
should also mention some meds will slow you down.  what i noticed--anything with codeine, (tylenol) morphine (dilaudid).  i was on dilaudid for 2.5 months after my surgery-dramatic difference with output once i was completely off it.
 
--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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