I need imput!!!!!!

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hopestar
Regular Member


Date Joined Jun 2008
Total Posts : 67
   Posted 7/27/2008 1:51 PM (GMT -6)   
 why is it that some colectomies require a bag and stoma and some don't... does it depend on the reason for removal?
The surgery im gnna hv doesnot require stoma or bag, becuz my sm. intestine will be connected to my rectum. How succesful is this surgery? what complications might happen? how long is recovery time? any more input would b appreciated.

simmadown
Regular Member


Date Joined Jul 2008
Total Posts : 26
   Posted 7/27/2008 5:01 PM (GMT -6)   
Hope, you need input and some people need OUTPUT! hah..sorry, can't answer your question but your title made me smile.

rocky road
Regular Member


Date Joined May 2008
Total Posts : 32
   Posted 7/27/2008 5:50 PM (GMT -6)   

HOPESTAR: I had my total colectomy 23May08. And the procedure they did to me is exactly what you're about to go through, connecting the small intestine to the rectum. As I was informed by my doctor not all could have this opportunity. Doctors can do this one to individuals they know could cope up with the procedure after surgery. Mostly individuals that doesn't have much complication.

Even if the patient doesn't want the bag, if he or she is not capable they won't do it. So, convinced yourself you are lucky. I ,myself, prefers the procedure,I don't want a bag. I ask for it and the doctor told me I am at my best to be a candidate for this procedure, young,healthy (not of course those poyps on my colon)and no other health compication.

This is what they call a 1 step colectomy procedure(the ileorectal anastomosis). The one that you are thinking with stoma and a bag could either be permanent or there is a reversal procedure. If there is a reversal procedure after few months after your surgery that is what they call a 2 step procedure.Meaning they would put a stoma and you'll use a bag for few months(letting your intestines healed up) before your reconnection. Reconnection coud be still your large intestine(if its still long enough) to be connected to your rectum.If it's already short, then the stoma and bag could be permanent unless the doctors will do the ileo-rectal anastomosis,then there will be no stoma, no bag.

You are lucky you still have for sure a healthy rectum, that's why your doctor will do such procedure. Rectum plays a big role in controlling yourself going to the washroom (continence). Because others even if they wanted this procedure,they can't if their rectum is not anymore healthy or damage resulting to permanent stoma and bag.

Don't worry about the procedure,I've been there. Don't you like that you will only  have one surgery,no more reversal procedure. I am a two months post op now. I am doing fine and getting there to be in my normal routines. But I am not saying that it won't be a rough days and weeks that you're going to go through after surgery. It does.Lots of trips going to the washroom on the first few days to weeks.There will be even an instance of incontinence.But it will be lesser as days or month goes by. The incision is where my most pain is. Just ff doctor's advise not to lift heavy things, don't overdo an exercise,be gentle to yourself,try to get enough sleep and rest and you'll be alright. Also I advise you to ask help from your family or friends to do some household chores for you especially after surgery,your mobility is limited. Don't force yoursef if you can't. I had these all ,and no regrets I am in no meds, my mobility is increasing each day, no major complication and pain and I believe I am nearly there ... to be normal again.

Don't forget to ask blessings and prayers and it will be granted. No matter if you're catholic or whatever sector or no religion, just believe ........God bless.

 


rocky road
Regular Member


Date Joined May 2008
Total Posts : 32
   Posted 7/27/2008 5:54 PM (GMT 0)   
Hopestar, recovery time varies . Others recover fast, other requires more time to heal up. Your body will tell you, if you're already capable of doing things.

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 7/27/2008 6:51 PM (GMT -6)   
Hopestar
 
These two terms (colostomy/colectomy) are always confusing. A colectomy is removal of all (total) or some (subtotal) of the colon which is then reconnected to the rectum. A colostomy is when a stoma and bag come into play.
 
If they're telling you that your small intestine will be connected to your rectum, then you're having a total colectomy. In my case they removed everything but about a foot of colon and reconnected that to my rectum, so that's considered a subtotal colectomy since I still have some colon left.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband with ankylosing spondylitis and psoriatic arthritis.


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 7/27/2008 7:36 PM (GMT -6)   
my total colectomy is scheduled for august 11th...i can't wait...i had my gall bladder removed, hernia fixed and dnc in may...i was wondering if anyone had their gall bladder removed and could tell me how that recovery compares......also, my kids start school two and half weeks after my surgery...what are the odds i'll be able to walk them to class?
jennifer (sugarbug)

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 7/27/2008 7:57 PM (GMT -6)   

There is no comparison between a gall bladder removal and a colectomy.  Colectomy is far more invasive.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/27/2008 8:00 PM (GMT -6)   
i doubt you will be walking them to school, you probably will be in the hosptial for a week. If their school is really close you might be able to do in about a month. Although everyone recovers differently. I was pokey about recovering, Amey, who doesn't post much anymore, was running laps a few days after she got home, lol. And suebear up there recovered really quickly also.

simmadown
Regular Member


Date Joined Jul 2008
Total Posts : 26
   Posted 7/28/2008 6:32 AM (GMT -6)   
After my gallbladder surgery, I drove myself home the next morning. (not that the drs. knew it, but I'm just sayin).

After my colostomy, I was in the hosp. 3 weeks due to peritonitis and all sorts of lovely stuff. After I got home, it was another 2 weeks before I felt I could walk around the block with the dogs. Having stuff done to your guts is no walk in the park. Of course, I'm old.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/28/2008 7:46 AM (GMT -6)   

rocky road, if you don't mind answering, where did you get your surgery done? I'm young and healthy (other than my UC) but I don't know if the place I'm going will do a one-step. How many BM's/day are you having now?

Hopestar, ileoanal anastomosis (the surgery you described) is also called jpouch.


Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*exploring the option of surgery
 


rocky road
Regular Member


Date Joined May 2008
Total Posts : 32
   Posted 7/28/2008 10:27 AM (GMT -6)   

Comedydork:  I had my surgery done at Peter Lougheed Hospital here in Calgary, Alberta. My surgeon is Dr. Wayne Rosen. He was a very good doctor and surgeon. He answers your questions and listens to his patient. I could say that the surgery was realy a success so far. My bowel movements after 2 months post is around 5-6x in 24 hours, mostly after meals, before going to bed, very occ during the night then after waking up. I eat most carbs and liquids plus fruit to have a soft but not watery stool. I find it more comfortable on me having that kind. If it's more liquidy, I honestly say I feel what others have butt burn.

Hopestar: You'll find more info about ileo-rectal anastomosis (Jpouch) at Jpouch.org Good luck.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 7/28/2008 10:39 AM (GMT -6)   
I believe hopestar is having surgery for CI which means she will not have an ileoanal anastomosis (j-pouch) but an ileorectal anastomosis. She will be able to keep her rectum unlike UC patients.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


rocky road
Regular Member


Date Joined May 2008
Total Posts : 32
   Posted 7/28/2008 9:48 PM (GMT -6)   

ooppss...sorry, yes you are right ileo-anal anastomosis is same as what they call Jpouch surgery.

 

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