Colostomy due to anal stricture? Laproscopic Procedure?

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angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 8/6/2008 9:38 AM (GMT -6)   
Hello!

I was referred to this site from the Crohn's board.  (thank you!)
 
In a nutshell, I have had Crohn's since I was 13 (I am now 38).  In the last five years I've developed an anal stricture,  in the last few months it's been causing some continence issues and occasional difficulty passing stool.  My gastro did a balloon dilation of the site during my yearly colonscopy in March, then did another dilation in early July via a Sigmoidoscopy.
 
At that time he referred me to a surgeon to discuss "options", well the surgeon told me that I had a fixed stricture and that dilation would have no long term benefits as the stricture would just reassert itself, and essentially the only real option was a colostomy.  I did have a bowel resection at 17 and lost about 1/3 of my colon, but my upper colon is fine, it's just this darn stricture.  Surgeon said that I could keep my rectum and it would be possible that the colostomy would be temporary if the stricture healed, but my limited research indicates that the odds of reversal, while not miniscule, aren't really in my favor.
 
The other thing he mentioned was a laproscopic procedure.....so my questions are:
 
1.  Has anyone had a colostomy due to anal stricture?
2.  Has anyone had their procedure done laproscopically and could you tell me about it?
 
I just got this news last week and I'm still trying to get my mind around it..
 
Thank you!


Diagnosed at 13, am now 36. Bowel resection at 17 and two additional surgeries following bowel obstructions.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 8/6/2008 10:30 AM (GMT -6)   
While your surgeon might be correct, I would pursue a second CR surgical consultation. Find the best CR surgeon you can and see what he/she thinks. I would be very concerned with the possibility of losing my colon over a stricture.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 8/6/2008 12:47 PM (GMT -6)   
1) yes

2) I had a temp. colostomy done this way and it was a breeze (as far a surgeries go). I was in the hospital for about 2-3 days where the ET nurse would visit me and teach me about my stoma and general ostomy care. I'm not sure what kind of details you are wanting...let me know and maybe I can be more specific.

I now have a perm. ileostomy b/c my colon wouldn't/couldn't heal b/c of severe crohn's disease. My doc. wanted me to do it for years and I resisted. Now if I think about it I'm upset with myself for wasting so many years being sick. My quality life is a million times better with the bag than before. I feel like I'm in my thirties and Just Now is my life able to start. Good luck with whatever you decide.

angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 8/6/2008 2:36 PM (GMT -6)   
Thank you for your reponses!

My mind is still a numb from the news. I've had Crohn's most of my life, and so I always knew that an ostomy may happen. The surgeon seemed to think that an ostomy was inevitable within 5 years and of course I got the message to not wait until it was an emergency.

I still have a fairly longish, healthyish section of colon....my understanding from the surgeon is that he would take this healthy section to create a colostomy (maybe I'm using the wrong verbiage?) There wouldn't be any removal of anything, just a rerouting of the colon.....but again, I was in a bit of a fog. I absolutely will need to get with him again and ask some clarifying questons.

As for the laproscopy, I was hoping that the recovery time would be much less and it sounds like it is. What would you say was the biggest issue with the actual surgery?

A
Diagnosed at 13, am now 38. Bowel resection at 17 and two additional surgeries following bowel obstructions.  Weekly shot of Humira.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 8/6/2008 4:23 PM (GMT -6)   
hi angela,

i have crohns too. im 26 and have it since 14 i started developing my stricture about 2 years ago, but i actually had it done to to fistulas and perianal disease. i have an ileo tho...i still have my rectum but the last suggestion my doc made was to get a colostomy and take my rectum b/c my fistulas arent healing and my stricture hasnt gotten any better either. I however am not really jumping on that suggestion for a few reasons. One being that I'm finally feeling good and am in no rush to go back to the hospital, and Secondly, if i make this decision it will be permanant, where as my ileo can be reversed. I still have faith that something will happen, either i'll just be healed or a few years from now there will be some sort of treatment to better resolve my issues, and i say if my ileo isnt broke y fix it lol.

Also, I had my ileo done laproscopically, it was pretty easy. I have to small tiny circular scars on one side of my belly and of course the ileo, no other scarring. It tends to have a quicker recovery time, i was only in the hospital for 4 days for my surgery. There arent any stitches (sp) or staples or anything like that.

I hope I was of some help
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you

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