Grr It Never Ends.. =( Please HELP!!

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Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 8/6/2008 12:29 PM (GMT -6)   
Hi Im Liam

Im a fit, active, healthy, 18 year old and have suffered with colitis since i was 15..
I only got properly diagnosed with colitis in 2006 and only had it properly for 6-7 months till it got so bad. March 2007 I needed an ileostomy made and my colon removed =(.. Took me 12-14 weeks to recover.. I have adapted to the bag and it has given me a quality of life for a while.

Until.. in April this year i had a small bowel obstruction, where abit of scar tissue had grown over my small intestine and strangled it.. Was extremely painful =( it didn't resolve itself, so i got rushed to hospital and had a laparotomy to sort the problem out.. then took me 6-8 weeks to recover then i was back down the gym doing light exercise and light football training..

Now.. During my 1st operation, the surgeon left a small part of my large intestine so he could use my rectal stump if i wanted to have a ileo-anal pouch formed so i wouldn't need a stoma bag anymore.. But that part of my large intestine is still affected with the colitis and has become pretty severe where im loosing quite alot of blood =( i dont know how this can still happen when only a small part is left, ive tried using asacol suppositories but they only seemed to make it worse =( ive got a sigmoidoscopy camera exam next friday to see if i need another operation to have that removed...

Ive tried talking to people about what ive been through but nobody understands because theyve never been through it =(

I just need some help, not sure who to talk to =(

Is there anything i can use or do to help my colitis and to calm it down?
Or to get myself back together and get me back to my normal self?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 8/6/2008 1:05 PM (GMT -6)   
Yes, you should be able to get rectal suppositories (5ASA) prescribed to control this. Ask your surgeon or GI for a prescription. Also at some point you will probably either want to have another surgery to have the remaining cuff removed (to end this problem) or try the j-pouch.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 8/6/2008 1:09 PM (GMT -6)   
Thanks for your reply Sue =) i dont really want another surgery at the moment.. Ive had 2 in just over a year. But im guessing it would be well worth worth it..

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 8/6/2008 1:16 PM (GMT -6)   
Well see if the UC meds work. At some point you will need to make your ostomy permanent so another surgery is in your future!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 8/6/2008 1:25 PM (GMT -6)   
Yeah i know, ive been told i will need an op to remove that bit... But ive just started my dream job, only been there since monday and ive worked solid at college and out of college for the last 2years to get the qualifications to get the job.. I dont wanna miss something or even lose my job because of this annoying disease..

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/6/2008 10:45 PM (GMT -6)   
i am very suprised actually that they left part of your intestines in, cause UC almost always comes back.
I hope you can get it under control, at least until you have been at your job a little longer, but i am with Suebear you will have to have surgery sometime to get that part out.
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