How is your energy level without colon?

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spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 8/9/2008 9:31 PM (GMT -6)   
I'm curious if people get dehydrated or weak.I mean when i do an enema,i feel a little bit drained :-)
 
Because i'm tempted to go surgery shopping to solve my chronic trapped gas.
Apparently,i could benefit from a ileo-anal surgery(colon by-pass).Or i'm trying to imagine myself with a special bag to collect cecum gas.At least it wouldn't be trapped inside my colon!
 
I can't beleive there is no "gas decompression" belly adaptor or something. eyes


-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 

Post Edited (spasman) : 8/9/2008 10:47:35 PM (GMT-6)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/9/2008 10:31 PM (GMT -6)   
well we have to drink more than before, but i am not weak, i have tons more energy! i stayed up from 9am friday morning till 6am saturday morning!

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 8/10/2008 7:00 AM (GMT -6)   
I have tons more energy, too! Before I had my diseased colon removed, I would get dehydrated and felt weak all the time. Now, I'm healthy and disease-free.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/10/2008 10:07 AM (GMT -6)   
it's hard to explain this, but if you have surgery you will understand, when you come to, you feel clean, you know, even drugged up, immediately that it is OVER your life is back, your sickness is gone, your energy is coming back, and you can be normal again.

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 8/10/2008 7:41 PM (GMT -6)   
I agree and knew the day after my colon was removed that the disease was gone, because the pain I had felt in my left side was gone and it wasn't sapping my energy anymore. It was the best feeling in the world!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 8/10/2008 9:40 PM (GMT -6)   
flchurchlady,does this left side was affected by Chron's confirm by your doctor?

I find it pretty amazing that your pain is gone.Congratulation.
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


ediekristen
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Date Joined Apr 2007
Total Posts : 1366
   Posted 8/11/2008 2:15 PM (GMT -6)   
summerstorm said...
well we have to drink more than before, but i am not weak, i have tons more energy! i stayed up from 9am friday morning till 6am saturday morning!
Summer, that is awesome... I'm only 23 and I can't even do that!! I wake up at 9am and am tired by 4pm and can't stay awake past 10pm. Add one more thing to my "reasons to have surgery" list :P

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


awesomeame
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Date Joined Feb 2006
Total Posts : 625
   Posted 8/11/2008 3:07 PM (GMT -6)   

i have tons more energy now that i've had surgery too.  wish i had it done 20yrs ago, what a different world i might be living in :)

--matt


Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/12/2008 1:35 PM (GMT -6)   
It is just amazing how much better one feels! I do drink more, but at least for me, it isn't too hard staying hydrated...it was much harder when sick. You find yourself doing things you couldn't before...and amazed that you can.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 8/12/2008 2:09 PM (GMT -6)   
seeing this topic and the posts makes me want to schedule the surgery now! I am tired of these darn fistulas! please go away fistulas!
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/13/2008 8:20 PM (GMT -6)   
Glad - "man up" as your other post says!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/13/2008 8:57 PM (GMT -6)   
ediekristen-i couldnt' do that at 23 either, i was sick already then. before i got sick, i was one serious party girl, lol. Always out everynight, not like doing bad stuff, just dancing or hanging out with friends. Then when i got sick, after the first year, when i was 22 i was so sick that i missed all of that stuff that i should have been doing as a young person . so now, i gotta make up for it, lol. I mean i wasn't doing anything really bad friday night, just hanging out with friends, if you didnt' read my post on swimming, i was in the pool for 6 and half hours and no problem with my bag! although i do not reccomend that if you want to keep your skin, lol.
when i was sick, i never even went swimming it was too hard to worry about having to run to the bathroom. I only had to get out once and empty the bag. and then i only did it cause i had gotten out to go to the bathroom and thought i may as well, didnt' really need to.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 8/14/2008 9:42 AM (GMT -6)   
I completely understand, ediekristen! I sleep like 10 hours/night and still need to take naps most days. In high school, I could last on a couple hours of sleep if I needed to. Sometimes the fatigue is worse than my (other) UC symptoms...increased energy level will definitely be a pro for surgery!


Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*surgery tentatively scheduled for September


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/14/2008 6:26 PM (GMT -6)   

Spasman, I had numerous colonoscopies over a 7 year period and a biopsy that was sent off to a lab that determined I had left-sided Crohn's in my large intestine. It was also in my rectum, but never in my small intestine.

When I had my large intestine and rectum removed, the pain I had felt in those areas from the disease were completely gone. I also could tell that the disease was not sapping my energy anymore.

I have not been anemic, dehydrated, or fatigued since my surgery two years ago. I get up early, work all day, go to my exercise class for an hour after work, come home, make a nice dinner for my hubby, and stay up until 11:00 p.m. It's such a blessing to have my health and energy back after being sick for so many years. I wish that for everybody!


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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