hi from the hospital!!

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/10/2008 11:00 AM (GMT -6)   
I am bagless! The reversal surgery went well. I just got some clear liquids this morning. I have a lot of pain when standing, so that hasn't been fun. But I'm doing great otherwise. I keep having phantom bag feelings- I keep feeling like my bag is full and needs emptying, then I realize I don't have one anymore. Ack!!
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 8/10/2008 11:05 AM (GMT -6)   

Yep, I had phantom ileostomy sensations too.  It goes away after a few weeks.  Contratulations on your new plumbing!

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


worsenow!!!
Regular Member


Date Joined Jul 2008
Total Posts : 208
   Posted 8/10/2008 1:35 PM (GMT -6)   
so chuffed for you, hope your recovery is quick . xx
extreme constipation from birth
fainting spells aged 15, then diagnosed I.B.S
anal fissures, haemorrhoids internal and external
mucous and bleeding
sigmoidoscopies, endoscpies, scans, x-rays, bloods
h-pylori aged 24-26
more tests, diagnosed severe slow transit, marker tests took 3-4 weeks to come away
large colon removed in 2007, aged 27( surgeon said removed 10ft) no colostomy
still in severe pain, awaiting dietician appt, now lots of food intoleraces
 
meds- ibuprofen, fluoxetine, amitriptyline,and omeprazole


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 8/10/2008 2:49 PM (GMT -6)   
sfgiantsjo,

Glad to hear your reversal went well. Keep me posted on your recovery. I'm hopefully, going to have my reversal in a few months. My loop ileostomy was only to be for 3 months that was July 2007. Had complications after my first reconstructive surgery. By my third, they decided I better get an ileostomy. Let me know how long you were in the hopspital, what kind of meds they give you, etc... That way I'll know what to expect.

Mary

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/10/2008 7:52 PM (GMT -6)   
Wow, Jo, it's great to hear from you so soon after surgery!! I'm so glad it went well!! I'm doing my happy dance!! yeahyeah
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 8/10/2008 9:46 PM (GMT -6)   
Phantom bag feelings? That's something I could get over really fast. I am so happy for you and your new plumbing. Hope you will continue to feel better and better.

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 8/11/2008 12:13 PM (GMT -6)   

Hi Joe!

Congratulations! It was great to hear that you're doing so well! Keep up the good work!

Richard

 

 


Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 8/11/2008 3:19 PM (GMT -6)   
glad to hear things are going well!

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/11/2008 5:30 PM (GMT -6)   
Great news Jo!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/12/2008 1:14 PM (GMT -6)   
Congrats! Glad to hear the recovery is on its way.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/14/2008 6:43 PM (GMT -6)   
Hmmm... I wonder how common PBS (Phantom Bag Syndrome) is with newly bagless patients?  rolleyes
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/15/2008 2:57 PM (GMT -6)   

Jo,

How are you doing?  Just thinking about you....

 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/15/2008 6:11 PM (GMT -6)   
I am doing fabulous! I am happier everyday. I am eating very close to a regular diet. I even had ice cream for desert last night after a big meal of Chicken enchiladas. That was less than a week after my surgery! I can go 4-5 hours between neededing a restroom, and have almost no urgency. Pretty much, it's like how I felt having my ileosotomy, only without an ileosotomy. I am feeling really lucky and blessed, actually. Thanks for thinking of me!
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 8/17/2008 8:55 PM (GMT -6)   
sfgiantsjo

Your progress has really encouraged me. I'm looking forward to having my reversal. I can't believe how quickly you were eating normal food. That's wonderful news. Keep us posted.

By the way, how long did you have your ileostomy before your reversal? I've heard the longer you have one, the longer your recovery. I'm wondering just how true that is.

Mary

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/17/2008 10:36 PM (GMT -6)   
Mary -

I had my ileostomy for almost exactly a year. Which isn't forever, but it's not your typical few months, either!
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


nanas5
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/17/2008 10:53 PM (GMT -6)   
Hi my husband is having himself scoped tomorrow to see if he is a candidate for a reversal.He has a eliostomy.for about 6 months. I hope he gets the surgery cause he is so tired of the bag and it leaking all the time and having to change it so often. wish him your prayers
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