fat with a stoma

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/19/2008 7:09 PM (GMT -6)   
I remember buying Ensure drinks to gain weight with UC....what has happened?????  I love the fact that I can "be normal" now with this temp stoma because I can eat anything I want.  I don't even feel like I eat alot.....it just sticks to me.  I am getting SO FAT.  I wore a pair of pants today that was kinda tight (especially in the waist) yet these pants use to be SO BIG that I gave them to my sister because they would stay on me.  I hate this but I don't know how to loose it.  In my head, I think that I will "start a diet" tomorrow but then "tomorrow" comes and I don't do it.  I use to follow the SCD diet very strictly but I cannot seem to get that same drive that I use to have when I was sick.  I am scheduled to have my 2nd surgery of 3 steps for the j pouch on Oct 20th.  Do alot of peopple loose weight between 2 and 3?  Should I be glad to be gaining now bc I will loose it later?  I seriously hate my fat body right now.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/19/2008 7:17 PM (GMT -6)   
It is HEALTHY body fat! Just remember how you felt when you tried to eat before your surgery, struggling to gain the weight. Once you go thru all of your "steps" and recover, then you can concentrate on getting on the diet that works for you. Just my two cents worth - but I have a permanent ileo, so maybe I am not the one that should be replying.

Best of luck to you Chili, whatever your decision. Don't be so hard on yourself. What is your opinion of walking for exercise, like really sticking to it daily?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/19/2008 7:52 PM (GMT -6)   
I have never been great at exercising but I know I should be....it certainly would help. My chriropator has a "healing well" program that I think I will sign up for this friday where they help you with exercise, food choices to loose weight and even physicological support. I am just getting home from work today and I feel like my body is going to pooh!! I am grateful to feel good (I would take a fat body over being so sick all the time) but I really wish I didn't have this nasty extra weight. I like woke up this morning and started so good with a banana and yogurt for breakfast but then it went haywire. I dont even feel like I eat terrbile necessarially but now that food must be staying in my body longer or somelthing....it just sticks to me like glue. I just cannot tell you how much I hate it.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 8/19/2008 8:03 PM (GMT -6)   

This seems to happen to many of us who have had surgery for UC.  I, too, was lighter when I was sick and then after surgery I put on about 30lbs over a course of 2 years.  I let it slide until this year and I have now taken off about 24lbs.  Once the body is healthy it's harder to lose the weight!  No magic, just reduce calories and increase exercise.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/19/2008 8:16 PM (GMT -6)   
i am getting fat too! my problem is milk shakes, lol. I gained way too much weight, when i got out of the hospital i was way underweight, i looked like a skeleton, now i could stand to lose probably 15 lbs, but it's right at my stomach so i can hide it pretty well.

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/19/2008 8:23 PM (GMT -6)   
My weight feels like it is everywhere. I have literally gained 25 lbs from my lowest weight with UC....that is ridulous in only 5 months since surgery. I did not even loose weight after surgery. My appetite was really good even the day after my surgery. I feel fat in my face, hips, boobs, waist.....everywhere. I just need to do it......control my eating and exercise. I just really find myself saying "you deserve to eat it because you can eat it.....you use to not be able to eat it so appreciate being healthy". That has gotten me to where I am now.........fat!! I always said that the biggest benefit to have UC was loosing weight and here I am......gaining it all back. Thanks for listening.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/19/2008 8:25 PM (GMT -6)   
that is what i was doing too in fact i told my family one time that i had 8 years of nachos to make up for!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/19/2008 8:27 PM (GMT -6)   
Hey Chili - can we transport your 25 lbs over here to me? I could still use the weight. I was up about 15-20 lbs in January compared to where I am right now thanks to stress. When I get too stressed, I tend not to be able to eat - just no appetite. (Stress=DH diagnosed with ALS). Just drop those lbs in a Priority Mail box and ship it to me, k?!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/19/2008 8:27 PM (GMT -6)   
oh,,,,,we are the same. I just wish I had the will power (which I cannot seem to find) to go back on the SCD diet because I really believe that it was healthy. I just can't do it for some reason. I am hoping that this healing well program that I think I am going to join will help. I just hate to pay money to loose weight.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/19/2008 8:32 PM (GMT -6)   
ok....peggy. It is a deal. I will give all 25 lbs to you....free of charge. No problem. I really do not need them anyway. In fact, you would be doing me a BIG favor by taking them :) You should get them in the mail tomorrow...I send them overnight.

Really, though, I kinda miss having to run up to the store just to buy Ensure's (in the weight gain formula). Don't get me wrong. I was never stick skinny but I knew that I would be if I did not try to maintain weight. I was loosing so quick that all I could do was drink those Ensure's and eat peanuts, honey etc....stuff on the SCD diet. Now, I steer far from peanuts etc just because I know that they are so fattening.

I guess I am never satisfied. I wished for health and now I have health and now I am wishing for somelhting else.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 8/19/2008 10:38 PM (GMT -6)   
chili123,
Just think about it. You are healthier now, and you have the take-down to look forward to in 6 months. What is a little weight? You can lose that later.

I have a weight problem too. I bet I was the only tubby, chubby with UC. I always told everyone that it was the prednisone that caused me to be so chubby, but now I am still overweight. I took the Real Age test on the internet, and I am +10 years because of my weight. There was no place to say that I had an ileostomy.Good thing because I would probably be + 15 years!!
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