?Does your life revolve around the loo now?

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2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 8/22/2008 4:25 AM (GMT -6)   
Hi all
 
questions for all you helpful folk who have have total colectomy with ileorectal anastomosis:
 
1. Does your life revolve around the loo? e.g. Do you have to be vigilent about when your next bowel movement will be because you could be taken short?
 
2.  Now you have no large bowel, what are the sensations you feel when you know a bm is coming on? e.g. is it like 'i have to go NOW' or can you hold on for a while?
 
3.  Are you glad you had the operation compared with how you were before? Was it a success for you?
 
At the moment my life does revolve around loos as i am on 25-28 senna per day, and this helps me to go twice daily somewhat though not properly.  I have to make sure i am around a loo late afternoon if i take them (16 senna) in the morning, but there is no set pattern, and i could sooner or much much later, though i rarely experience like i have gone properly. it also takes 1/2 hour on the loo too.
 
i have to get to the loo pretty fast even if there isnt much there!  anyone else experienced this even with colonic inertia???? cry I wonder if my life will always revolve around toilets.  i want to be normal again confused .  In the last few months i have started getting rectal pain/spasms/mucus and the feeling i need to strain. though stools are not hard? confused
 
thanks so much if you can answer my questions, as it will help me greatly.  i am seeing my consultant mid sept to discuss having this op.  I am getting worse. x
1997: Diagnosed IBS
2003: Pelvic floor repair surgery
2006: STARR surgery for mucosal prolapse/Obstructive Defaecation Syndrome.  Also diagnosed with slow transit
2007: No difference. Had MRI scan showing a partial volvulus 
2007: Therefore surgeon recommended a sigmoid resection which resulted in immediate colonic inertia
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once).  In discomfort/pain most days.
 
Scared to have TC as told I could become incontinent - but looking to have surgery before end of year hopefully


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/22/2008 2:50 PM (GMT -6)   
My experience is different from yours, because I had my jpouch done because of UC. I was on the toilet constantly before surgery anyways, so my satisfaction with this surgery may be because of that. But I'll answer your questions anyways - maybe I can still be helpful.
 
1) NO! I have been very fortunate in that I have had very good control with no urgency. I do have a BM several times a day (about 4 in a 24 hour period). But usually, I just go when I would normally need to pee, so it doesn't feel like I'm attached to the loo or anything. I sleep through the night! No leakage and no accidents so far. But, I WAS chained to the toilet with UC, so this has been a vast improvement.  My surgery was only two weeks ago today, so I hope to improve even more! But I have been to the movies, out with friends, to parties and shopping in the last weeks, and have never felt like I need a toilet urgently.
 
2) The sensations when I feel a bM coming on a similar to when I was "normal". Perhaps a tad more like it's really low, I am aware that I am "holding it" sometimes, if that makes sense. It is NOT painful at all, and even if it sort of feels like I need to go soon, I actually don't need to go. I have had the feeling of a BM coming on, and then waited more than three HOURS before going. No problems.
 
3) I am THRILLED with the operation. I had to have three suregeries and it took a year to finally have my takedown, and I am still the happiest person on earth.
 
Again, keep in mind I had my jpouch due to UC, and from what I hear my results have been on the better side of things, but there you go. I'm ecstatic. :)
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/22/2008 5:29 PM (GMT -6)   
Jo,
That's amazing that you're doing so well just two weeks after surgery. I'm so happy for you!! yeah

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/25/2008 3:33 PM (GMT -6)   
Jo, I'm glad to hear you're so happy, that's very encouraging!! I love hearing success stories, it makes me feel a lot less worried. Congrats!!!

Female, 23, Ulcerative colitis (pancolitis) for 8 years so far; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use....

Current Meds:
Lexapro 10mg, Lialda 2 pills a day, Rowasa enemas nightly

 
 


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 8/26/2008 9:42 AM (GMT -6)   
hey thanks jo for the informative response - glad the surgery was successful for you. enjoy!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery
2006: STARR surgery for mucosal prolapse/Obstructive Defaecation Syndrome.  Also diagnosed with slow transit
2007: No difference. Had MRI scan showing a partial volvulus 
2007: Therefore surgeon recommended a sigmoid resection which resulted in immediate colonic inertia
2008: Now contemplating colectomy as I need to take up to 30 senna tablets daily for some kind of bowel movement (albeit not 'normal' or all at once).  In discomfort/pain most days.
 
Scared to have TC as told I could become incontinent - but looking to have surgery before end of year hopefully

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