Swollen stoma???

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/26/2008 5:13 PM (GMT -6)   
Hello!
So, I have had my stoma for like 6 months now and it is temporary because I have step 2 of 3 steps in Oct for the j-pouch.  So, I feel like I have noticed that the tip of my stoma is kinda swollen.  I changed my bag last night so I took the old bag off and the tip really kinda looked swollen.  So, I took a shower etc (I take showers without the bag when I change it) and it went back to shape like "normal" (whatever normal is....).  Anyhow, I am periodically peaking at it (because I have a 2 piece system) and it just looks still kinda swollen.  I did not remeasure last night but the wafer seemed fine.  It is like it is just the top of it more-so.  Now, I have changed my foods some because I have feeling so incredibly fat so could it be the salads, fruit etc that is doing it?  It is not bleeding or anything and then I kinda think that maybe it is just my imagination.  The color is certainly not bright red....it is like pink.  It still puts out poo so I know that I am not blocked and I have no pain....no rash..... I did notice a couple of white dots (just a couple) when I changed it.  Is it maybe like a yeast infection?  I certainly hope that white dots does not means chrons.  Any thoughts would be so very appreciated.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 8/26/2008 5:18 PM (GMT -6)   
well my stoma changes shape slightly when i change my bag
it shrinks in the shower like it doesnt like the water or something...lol
i dont know about the white dots
sometimes it looks bigger than others, but not much, i just figured if it doesnt bother me i wont bother it....lol let me know if u get any definitive answers
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/26/2008 6:22 PM (GMT -6)   
It's not unusual for the stoma to change in shape and size, especially during it's functioning. If you eat something pretty fibery, like salads or fresh fruit, you will notice it working more. It almost looks like it is contracting and expanding. Expanding looks like it is almost turning inside out. Is that kind of what you are experiencing?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 8/26/2008 7:59 PM (GMT -6)   
I just remember when I initially had my surgery that it looked like there was water in it......it was puffy. The nurse told me that it was swollen. I do not wear a transparent pouch so it is not like I look at it all the time but it just seems different....like puffy. My gut instinct says that I think it is fine but I starting fearing that I would take a look and it would be popped open and bleeding to death....:). I'm sure I will live. I am SO looking forward to getting through these next 2 surgery's and getting back to a more normal life.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

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