17 days post ileostomy surgery

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bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 8/29/2008 11:21 AM (GMT -6)   
Hi i'm wondering if anyone had any idea why after have a temporary ileostomy done on august 12th i still have bowel movements from my rectum.  they took out only 11 inches of my ileum but everything else is still intact.  i called the surgeon and he said that sometimes there is left over stool in the colon and that it can come out but i have been having a bowel movement like every 2 to 3 days.  not a lot just like little balls.  it's so weird.  i went from going from one end to now going from two.  anyway can't wait to have my reversal.  surgeon says maybe october definitly sometime in november.  still tapering from steroids.  5 days of 10 mg then 5 days of 5 mg.  10 more days and NO MORE STEROIDS.   THANK YOU LORD.  Also was wondering if anyone had their reversal after their ileostomy and what was the outcome.  some people say they wish they kept the bag.  anybody had their reversal and still in remission from crohn's disease. love to hear from you.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/29/2008 1:31 PM (GMT -6)   
Hello Bella3250,

I have a perm ileostomy, but I did have a temp. one years ago. Once I was reconnected, my CD came back full force. I'm sure there will be other responses so keep checking this forum. Best of luck to you!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/29/2008 5:34 PM (GMT -6)   

Well, I wish I could say everything was great after I was reconnected, but I cannot...at least for me, I chose to go back to my ileostomy and that was more than 7 years ago.  Just this year I elected to have a proctocolectomy(removed colon and rectum) with permanent ileo.  My crohn's had progressed to those areas and with a cancer threat and fistulas, I had had enough!

As far as having bm's with an ileo, it is possible.  With your loop ileo, there is a second hole, that you probably cannot even see, under the one where waste comes out.  Some times there is "overflow" that can go down the second hole, which is why you could be having bm's, too.  I freaked out the first time it happend to me!  You can also pass mucous which is still produced in the colon even when it isn't used.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 8/30/2008 8:13 PM (GMT -6)   
thats normal bella, as long as u still have ur colon and rectum u will get the urge to pass and u will pass mucos, b/c ur colon still produces the secretions that it used to produce to help stool pass.

it will lessen as time goes on, but u will have that urge often, i guess i do it mayb twice a week? i dont even count. it kind of freaked me out too. i hope i was of some help
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 8/31/2008 12:58 PM (GMT -6)   
HI! I had my reversal about 3 weeks ago. I'm doing great so far! I haven't had issues at all, I have been very lucky. My ileosotomy wasn't so bad, once I got used to it. I am grateful my reversal has been successful, but if I HAD to go back to a perm ileo, I would be okay.
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


Megz
Regular Member


Date Joined Dec 2006
Total Posts : 33
   Posted 9/28/2008 4:09 PM (GMT -6)   
I had a loop ileostomy done back on July 25th of this year, and the disease at that point was fairly significant. The surgeon told me not to get my hopes up too high about a reconnection. Since the surgery, I have had so many problems. Bleeding around the stoma, skin breakdown, let alone the fact that I just can not seem to get the flange to stay attached for more than like two days at a time. I'm having to do laudry practically every other day, cause everything is just such a mess. I wake up in the morning often and the bag has come detached. I want so desperately to have this thing reversed. Does anyone know if you can just approach the surgeon and have him reconnect it even if he doesn't think that it's the best thing for the Crohn's? At this point, my quality of life is zero. I would rather be living in pain than living like this...
26 year old female. Diagnosed with CD in 1995. Resection in 2000 due to perforation during a colonoscopy. Currently taking Humira once a week, Lyrica for pain mangement with Percocet for breakthrough pain, and Wellbutrin.


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 9/28/2008 7:40 PM (GMT -6)   
Megz, i suggest talking to a stoma care nurse and trying different products. I had my ileo surgery on the 30th of july, so we've had it about the same amount of time. i had UC so i have a j pouch and will be getting reconnected within a month or two. but right now, i'm having issues with my bag leaking. there were a few times when it stayed on for 4 days, but recently i've been lucky to go a whole 24 hrs without having to change my bag. not to mention i have some holes in my skin under the bag and peeling tape off them every day is not pleasant. my stoma care nurse gave me a whole bunch of different products to try when i told her that and you can always order free samples from the different ostomy companies. i think the adapt (i guess this is the same as eakin) rings seem to be working. also, she suggested using a skin barrier wipe AFTER you put the bag on to seal the edges, but i think this only works on the bags without tape, just wafer. and the bags without tape seem to stay on better for me for some reason. good luck!
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/28/2008 7:58 PM (GMT -6)   
Megz--don't get discouraged!  When your stoma is so new, it can change shape/size several times before it settles...I've had mine for a VERY long time and have just noticed it has changed a little on me...are you still using the same product they sent you home from the hospital with?  Have you seen a stoma nurse recently?  If you haven't, I'd suggest making an appointment ASAP...a stoma nurse can check whether your product is right for your stoma right now.  It's not hopeless and there are MANY people here to help you get through this!!
 
Maybe post what items you are using and someone will be along with more suggestions:)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/29/2008 8:04 AM (GMT -6)   
megz-at night, sleep on a waterproof pad, that way if you do have a leak, all you have to change is that and your clothes. I have been doing that all along, it's mainly like a security blanket to me.
Like Ohio said, let us know what you are using and we will see if we can help

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/29/2008 10:35 PM (GMT -6)   
Bella3250,

I received my temporary loop ileostomy on July 23, 2007 and still have it today. The bowel movements are normal like others said. My Colorectal Surgeon at Cleveland Clinic told me in their industry they call the small bowel movements - mucous balls - pretty gross! To this day, I still have bowel movements. Sometimes the urges are just mucous though. Nevertheless, yes I get the other as well. It is very strange. You sometimes wonder if it was really worth it. Nevertheless, because mine was supposed to only be temporary, the loop ileostomies are supposed to make you recovery shorter and easier then other types of ostomies. For one thing, your large intestines is still getting a significant break, but it's also being used so it won't "freak out" as much when it goes back to full-time use. Hope that makes sense.
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