Here are a few more questions that I am sure someone has an answer for
1. Does anyone use the absorb-type packets in their ostomy bag? I don't remember who makes them but supposedly you put it in the pouch and it helps keep the ileostomy liquid less liquidy.
2. Bratcat uses Hollister New Image. She has a cut (scratch) on her skin (not an irritation) just where the wafer meets the tape part. She uses powder when she changes her wafer. She breaks out from the spray so she doesn't use that. The powder alone helps keep any irritation down to a minimum. But the cut (scratch) is annoying her. Anyone have an idea what to put on it or is it something that will just take a bit longer to heal?
3. For the most part, Bratcat is doing well with her ileostomy. Her energy level is going up a little bit more each week. We notice that sometimes if she is on her feet too long or walking more than normal, she gets an ache in her upper back (between the shoulder blades) that goes up to her neck. For her it helps if she stops and bends over a bit. She says it almost feels as if it takes her breath away. Any idea why she gets this and how to deal with it? She starts school on Wednesday and I am a little concerned how she will be walking from class to class and carrying her books.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp