Various questions...again

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 9/1/2008 9:21 PM (GMT -6)   
Here are a few more questions that I am sure someone has an answer for
 
1. Does anyone use the absorb-type packets in their ostomy bag? I don't remember who makes them but supposedly you put it in the pouch and it helps keep the ileostomy liquid less liquidy.
 
2. Bratcat uses Hollister New Image. She has a cut (scratch) on her skin (not an irritation) just where the wafer meets the tape part. She uses powder when she changes her wafer. She breaks out from the spray so she doesn't use that. The powder alone helps keep any irritation down to a minimum. But the cut (scratch) is annoying her. Anyone have an idea what to put on it or is it something that will just take a bit longer to heal?
 
3. For the most part, Bratcat is doing well with her ileostomy. Her energy level is going up a little bit more each week. We notice that sometimes if she is on her feet too long or walking more than normal, she gets an ache in her upper back (between the shoulder blades) that goes up to her neck. For her it helps if she stops and bends over a bit. She says it almost feels as if it takes her breath away. Any idea why she gets this and how to deal with it? She starts school on Wednesday and I am a little concerned how she will be walking from class to class and carrying her books.
 
 
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/2/2008 8:42 AM (GMT -6)   

Bennie--Glad to hear Bratcat is doing so well...lets see if I can help with some of your questions!!

1.  I have used the packets before and they do work to an extent.  I cannot remember which one I used, but you put it in the pouch after emptying and the liquid pops the packet open and the little beads absorb and thicken.  I found that if I didn't get the packet far enough into the pouch it didn't open and do its thing.  I would try them again though...maybe you could call your supplier and get a few samples of the different kinds?

2.  Is it a "wet" scratch (does it weep)?  Does she use adhesive remover?  The powder usually does the trick for me, but a while back I needed to use the "no sting" skin protector(there is a difference between the regular one and no sting)...and be careful, if she does try it, to only put it on the cut (not all over), let it dry, and apply the wafer.  If she is using a cut to fit wafer, you can cut the hole a little off center so that the wafer/tape area doesn't hit the sensitive area until it is healed.  I have had to do that a few times with little skin things and it has worked.  Sometimes, if I am not careful enough, I have ripped the tape off too fast and caused my skin to bleed...when I've done that, I usually cut the tape off of that area and it allows it to heal quicker, but I don't think that's her problem here.

3.  As far as the pain in her back, it could be that she just hasn't built her muscle tone back yet.  Alot of things "rearranged" themselves after the colon is removed...For me, it took almost three months to not feel weak, and my lower back was the worst.  Maybe she could get a little extra time to go to her locker between classes so that she doesn't have to carry alot of books at one time?  I am sure her teachers are glad she is healthy and back in school and could be a little understanding for a few weeks...

I hope this helps!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/2/2008 3:44 PM (GMT -6)   
I too have tried the packets but I chose to go with diet and imodium.

Scratches or skin irritations that can be left to "air out" usually heal quicker. Just depends on how close to the edge of the tape they are. I've cut the edges or even v's in my tape when needed. It didn't seem to cause a problem with the wafer adhering at all for me.

Back issues -- we tend to over compensate when our bellies hurt causing our backs to hurt too. My back also took some time to strengthen and heal. Gas will also cause some back pain and moving or bending over like she does, can relieve it. It's hard to tell.

Best of luck to her in starting school.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/2/2008 6:42 PM (GMT -6)   
I use these tabs, they are called gel-x and i really like them, they aer the same thing,just in a pill form that you put in the bag. It really does help alot.

I don't know what to tell you about the scratch.

As for her back, i think it's exactly what they were saying, she may not have noticed it, but she was probably walking hunched over, and that messes with your back. Also, she was probably doing alot of laying around in odd postions and stuff too.

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 9/2/2008 6:51 PM (GMT -6)   

Thanks for the replies.

Bratcat may try the gel packets. It doesn't seem to have a negative effect on anyone.

Her irritation on her skin is definitely not weeping. She thinks she may have gotten some dirt under the wafer and it got irritated. It isn't getting any worse. It is just taking a longer time to go away. Unfortunately it is where the wafer meets the tape (on the Hollister New Image). It's not is a great place to cut part of it away.

I also think her backache is from weak stomach muscles. I think her body is compensating by using more of her back muscles. She says it is a dull ache from between her shoulder blades up to her neck. It could also be magnified because she lives in flipflops during the summer. And she has been increasing her daily activity. We will keep an eye on it but I am guessing it will get better as she builds up stamina.


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 9/3/2008 11:31 AM (GMT -6)   
I called and asked Edgepark for some free samples. And, in usual Edgepark fashion, I never got them!
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