? about post surgery stuff

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/16/2008 3:35 PM (GMT -6)   
Hello all,
I usually post on the uc board, but since this ? pertains to post surgery, I thought I'd ask you all. I have uc and have had lots of the extra-intestinal symptoms (arthritis, erythema nodosa, episcleritis, geographic tongue, kidney stones) SUPERFUN! I was wondering if any of you former uc sufferers had them and did having a sub-total or total colectomy cure them too?
I also have lots of stomach pain that I'm hoping goes away after the cut.
(FYI-I really need to have surgery and am going to muster up the courage to call the surgeon tomorrow-Of course I'm scared because I feel like I've been sick so long, I won't feel better even after the surgery. I just hope it fixes EVERYTHING)
Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/16/2008 6:30 PM (GMT -6)   
i don't have any of those things, except maybe the tounge thing, i have always had weird spots like that on my tounge.
Anyway i did have this stuff wrong with my hands, they were all cracked and nasty in the winter, and after surgery, it was not nearly as bad that winter.
It won't undo any damage that has been done, but i would think that it would make the problems go away.
I know surgery is scary, but just remember, you are getting your life back!
good luck

spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 9/17/2008 5:37 PM (GMT -6)   
i had swollen/red eyes all the time when i had UC and now that my colon is gone my eyes are nice and white like they should be. i still have some joint pain because i'm still on steroids, but i'm assuming that'll go away as well. i have a temp ileostomy for now until i can go in and get my jpouch connected after it heals :) so far i'm extremely pleased with the results even though i have had some minor complications that have postponed my reversal surgery. after being in an active flare for the past 6 years i'm glad i finally had the surgery. if you've made up your mind that you need it i say totally go for it, no one i've spoken to has any regrets except maybe not having it done sooner.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/17/2008 6:17 PM (GMT -6)   
Thank you for your replies.
I scheduled my consult today. I just hope is cures everything b/c I really am having a hard time with this stomach pain.
Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/20/2008 6:31 PM (GMT -6)   

Chassity,

I had Crohn's for 7 years before having surgery two years ago, and I have been disease-free and medicine-free ever since. :-) Having this surgery completely took care of the pain associated with Crohn's for me, and now I'm completely healthy. So, it would definitely make your UC pain go away.

I would ask your doctor if having surgery would help you have fewer UC-related side effects, like kidney stones and arthritis. I would think if you're UC-free, those problems would definitely get better and not worse.

Congratulations for taking the next step to being UC-free!

Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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