Pregnancy with ileostomy

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/16/2008 3:51 PM (GMT -6)   
I was just curious if any of you ladies have been pregnant with an ileostomy. Did you have problems getting pregnant? How did your pregnancy go? What did the dr.'s worry about?
I have a 9 month old and want to have more babies, but I know I was lucky to get pregnant with my disease severity and know I should have surgery b4 I have any more. I'm worried about it.
Thanx
Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/17/2008 9:37 AM (GMT -6)   
I personally haven't had more children (my daughter was born before ileo)...disease was too consuming when I would have had more...but my dr's said I could have if I wanted with the ileo. Someone should be along soon who's been there!

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 9/17/2008 10:59 AM (GMT -6)   
Getting pregnant was very easy!! --and fun! The only issue was the ever changing stoma size and shape. It was like starting over in some ways. My docs did not have any worries directly related to the ostomy. I was told to go forth and produce (if I so chose). Any and all concerns had to do with the severity of my disease/medications (at this time there was NO data on pregnancy and remicade!). Oh--and toward the end I couldn't see my stoma and had to use a mirror to change my bag--not a problem--just a little extra step. :)

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/17/2008 12:32 PM (GMT -6)   

Thank you for your reply-

You didn't have to worry about blockages? It seems they would be more likely with everything getting squished in there!


Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 9/17/2008 9:48 PM (GMT -6)   
Nope. Your body would have to adjust to your ever increasing belly whether you have a stoma or not. :)

headphones
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 9/21/2008 5:47 PM (GMT -6)   
i got my ileo during an emergency surgery due to a perferated colon during my 2nd trimester. it was touch and go but we did fine and i have a beautiful baby boy now. my doc said that we should be done having babies when i go to have the j-pouch surgery because there can be issues with infertility afterwards, so we're going to start trying again soon. it was all new to me with the big belly and pouch but i'm not worried about it this time around...
headphones
30 yr. old female
diagnosed with pancolitis uc 7/05
emergency ileostomy 11/07 while 5 months pregnant
gave birth 3/08 to a healthy baby boy!


weenicki
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/7/2010 5:15 AM (GMT -6)   
hi, i had the same operation when i was 27 weeks pregnant but unforunally my wee boy didnt make it. ive had my ileostomy for 4 months now. am copin ok with it as i didnt have much of a life before it with running to loo all the time cry . my docs said its ok to be pregnant again and all should go well 2nd  time around but am sh**ing my self. if anyone can help with info, that be great thanks xxxxxx 

diet help
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/9/2010 2:40 PM (GMT -6)   
I thought I something about Questran here the other day but can't find it now. wonder how much others take, etc

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/9/2010 5:21 PM (GMT -6)   
I don't take the Questran anymore because it didn't do anything for me, but when I was on it, it was one packet 3 times per day, I believe
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa

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