blood in stool from rectum with temp ileostomy?

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Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 9/25/2008 6:34 PM (GMT -6)   
Does anyone else have problems with blood in their stool from their rectum and having to go 3-4 times a day when you are not even connected? Should I panic?
44 y/o Alaska Crab Fisherman Diagnosed May 2008
Prednisone 5 mg
Oemneprazole 80 mg
Zofran
Reglan
Remicade
Switched to sulfasalazine 2 pills 4 x daily
Surgery remove gallbladder and part of colon, temp ileostomy


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 9/26/2008 12:17 AM (GMT -6)   
If I was you I would call your DR.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/26/2008 2:02 AM (GMT -6)   

You don't need to panic, but it would be smart to tell your doctor what's going on.

Good luck, and please keep us posted.


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 9/26/2008 4:55 AM (GMT -6)   
If you have a temp ileostomy, it can be perfectly normal to pass stool via your rectum and anus. This is because with a loop ileostomy, there are two stoma openings, one (the mucous fistula) that connects to your anus and the other (the 'working' stoma) that connects to your upper digestive tract.
Both stomas are housed in the same bag and sometimes stool can go from the bag into the mucous fistula and out via anus and rectum. It's something the surgeon often forgets to warn people can happen and consequently, the patient can panic when they feel that nothing should be coming out their back end. Often, it can just be mucous that's coming out (it can sometimes be pasty like stool though) which, again, is perfectly normal.

If your op was recent, I would expect old blood to be present as a remnant from your op and should stop soon (old blood is usually a darker brown, fresh blood is a brighter red. If it's fresh blood, it is probably an idea to see your doc to find out what's going on there, I wouldn't panic about it though).

As with anything, if you are worried, seek medical advise, if only to put your mind at ease.
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 9/26/2008 7:02 AM (GMT -6)   
This is totally normal and I am constantly amazed that surgeons don't tell their patients this!! Relax and tell your husband to continue to concentrate on his renewed health.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/26/2008 7:05 AM (GMT -6)   
Shaz said it perfectly!!  It scared me, too, the first time it happend.  Some people pass mucous more often than others, but I think it happens to everyone, who has a temp ileo, at some point.  Since I was passing alot of stool, my surgeon put a couple stiches in the lower hole to prevent it from happening and it worked!

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 9/26/2008 7:47 PM (GMT -6)   
I currently have a temporary ilestomy and I have mucous and blood out of my rectum several times aday.  Keep in  mind that I currently have an end ilestomy so my rectum is not even connected to my digestive tract.  I have been told that I still have 3 inches/cm or something of diseased rectum or whatever still and that is what is causing the mucous and blood.  I even have some urgency sometimes.  Having this stuff come out of my butt has totally convinced me that my colon was in horrible shape.  I also notified my surgeon and talked to the nurse.....who said no big deal.

Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 9/26/2008 8:43 PM (GMT -6)   
i would still let the doc know, but dont worry too much. i had discharge and even tiny staples come out of my rectum. i freaked out a little when i saw the staples, but the surgeon said it was fine as long as i wasnt in any pain and feeling ok. we can all tell you not to worry, but if it were me i'd still worry until my doc gave me his opinion as well. every situation is different and you and your doc are the ones who know your case the best and can make the best judgement.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


kradin09
New Member


Date Joined Sep 2012
Total Posts : 18
   Posted 9/24/2012 8:08 PM (GMT -6)   
For an end ileostomy, bleeding with mucous is entirely normal. Had the exact same issue, asked my doctor (who is a genius). Told me it was called diversion colitis, meaning that I still had ulcerative colitis in my rectum from the first of three surgeries; the rectum will be removed during the second surgery, and you will be cured from ulcerative colitis once and for all. Hope this helps!

ActiveUCer
Veteran Member


Date Joined Jul 2012
Total Posts : 1685
   Posted 9/25/2012 11:46 AM (GMT -6)   
I have an end ileo and was told that I would still pass blood and mucous (I asked specifically right after surgery as I heard others talk about it). This thread just prompted me to call my surgeon's office because it's picked up in amount.

So I think it's pretty normal, but it doesn't hurt to call the office.
http://activeguts.wordpress.com/

Colectomy with end ileostomy August 30th, 2012 - jpouch sometime
Sitting at 10 mgs pred and dropping!

UC (refractory) sufferer diagnosed July 2011
One never ending flare
enemas, suppositories, Asacol, Lialda, and Colazal = worthless for me; Imuran/Azathioprine = bad liver and pancreas values; Remicade = Not very helpful; Paleo not helpful

SuzBee
New Member


Date Joined Feb 2015
Total Posts : 1
   Posted 2/6/2015 2:37 AM (GMT -6)   
I had a colostomy in 2012. Long story short...I ended up with a reversal on the colostomy, but now have an ileostomy. I wish there was a book like 'Ileostomies for Dummies'. Nothing was explained to me either. Tonight I googled 'bleeding from a non-working rectum' and found this forum. I was worried tonight about why, now a few years later, do I have bleeding rectally. I am on no medications what-so-ever due to not having any medical insurance. Crohn's is very painful for me. I am at somewhat peace reading some posts that the bleeding can be a normal part of my medical condition. Thanks for easing my mind.

SuzBee
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