Had Total Colectomy now I need Biofeedback

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lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 10/6/2008 3:31 PM (GMT -6)   
I had a TC on Aug 11th.  I am just now able to go anywhere where I have to sit for awhile or walk.  I went to watch my son play football and they won.  Yea!  Anyway, now I'm suppose to have biofeedback and have to take three stool softeners a day to keep having bms.  Is that kinda normal?  I thought I would be having 10 a day w/o needing help.  Just wondering
Sugarbug

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/7/2008 10:32 AM (GMT -6)   
Sugarbug--glad to hear you are back to doing the important things...watching you son play football!!! I know NOT being able to watch my daughter was always difficult.

Sorry, I cannot help you with your question (I have a permanent ileo), but I am sure someone will be along soon with a good answer. Have you been able to go through some of the older posts? I think there is one continual thread all about TC's...which might answer your question.

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 10/7/2008 5:58 PM (GMT -6)   

Sugarbug-

I too had a TC. Back in Feb 08. I have been doing biofeedback for 8 weeks. I too have to take M of M daily once to go, but I have been diagnosed with more issues since starting biofeedback. I wish you the best.

LIzzie


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 10/8/2008 8:50 AM (GMT -6)   
Lizzie
What other issues? Does the biofeedback help? I have weird pressure when the poop is starting to build. Does the bio help that?
Sugarbug

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 10/8/2008 12:42 PM (GMT -6)   

Hey Sugarbug...

When she first started therapy they discovered some muscle dysynergia....basically when I get the urge to 'go" my rectum and abdominals both contract and my internal and external sphincter will not relax. My surgeon is concerned I my have the inability to relax my rectim, but we are trying therapy for six months. I think the therapy is beneficial. I take milk of mag once to twice dily just a small dose and I do ok. I had therapy today and after therapy for a day or two I feel a difference, but then my rectum tightens back up (according to therapist). I feel a pressure, but all I can get out (without laxative) is stringy thin nothings. I am trying this and just holding my breath that everything works out. My surgeon said the next step would be botox injections, but insurance does not cover thiese treatments.

I think it is good to try. Results for most are about 50/50. My surgery did wonders, dont get me wrong, but this whole process has just been frustrating. I am so happy to have rid of my unfunctioning colon, but now I just want to get through this next hurdle. I have had so many complications I am just sick of all the drs and appointments and sick of getting my butt played with :( Sorry to rant just having a day.

Question for all though.....do any of you have undigested food coming out. I feel like my body is not breaking down food properly?

Hope all is well

lizzie


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 10/8/2008 12:53 PM (GMT -6)   
Lizzie
That's what my doctor told me too..that my muscles don't relax. I've been dragging my feet to do the therapy b/c I'm sick of all this too. And sick of worrying about my butt. It just doesn't seem to end. The surgery did do wonders but I can tell something isn't completely right with the muscles. I might as well try it. I do have undigested food come out as well.

Thanks for you insight
Sugarbug/Jennifer

I'm always up for a good rant though.

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 10/8/2008 3:55 PM (GMT -6)   

Jennifer....

Just try it and keep me posted on how you do. How are you feeling almost 2 months post-op? Time goes by fast. I feel like I have only been recovering for 5 months instead of nine...my first 4 were spent with serious complications. I was back inpatient after two months....so you are dong well. Remember that. It is going to take time to get your strength back, but its good to get out. Before you know it you will be back to your old self....just now if we can both get through this therapy and hope it does the trick. I will pray for you. take care

lizzie


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 10/9/2008 3:52 PM (GMT -6)   
Lizzie
I will..I made an appt for Monday. I did have a setback about a week after surgery. Fever, spasms that were worse than birth contractions and other pains. I'm still sore and tired but, this week has been the best so far. I still feel so unsteady sometimes but I'm getting there. We are supposed to go to Mexico the last week of October. My husband has been super helpful so I'll be able to go. We need a vacation so bad. I figure if I can just get on the plane, I'll take each day one at a time.
What kind of complications did you have?
Jennifer

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 10/11/2008 8:33 AM (GMT -6)   

I had a post-op Ileus for nine days (vomiting, fever, three NG tubes) and my first admission lasted about 10 days. I was finally discharged and started having fevers 2 days after getting home. I went to my pcp and her gave me cough syrup becuase he thought I had a virus. I went back a week later after having every 4 hour 103 fevers. He put me on 10 days of abx and dx me with asthmatic bronchitis. Another 10 days later I could not take the fevers. I had not eaten, I was yellow and I started having abd pain. I called my surgeon and he had me have stat CT. I could not even keep the contrast down, but they found four abscesses. I was admitted with sepsis and very sick. I had two drains placed and then developed a fistula. I had the drains for about 45 days and finally everything healed. I was out of work for four months. .....

but I am getting over it all. I think Mexico would be great for you. You need to just soak up that sun and relax. Your strength will get better with time. You are freshly post-op. I can run and work out now, but I never could have at two months. I am almost 9 months and still feel tired daily, but can work through it. I hope you have a wonderful vacation and let me know how monday goes.

lizzie


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 10/12/2008 12:54 PM (GMT -6)   

Lizzie

Wow...I had to go back for fevers and pain.  They couldn't pinpoint where exactly the infection.  So I just got ivs and antibiotics for a few days.  You definitely had a time of it.  I glad to hear you're doing better.   Let me ask you this...do you have or did you have alot of mucous with your poop after the surgery.  I seem to have alot.  I just wondered if that was something that comes with not having a colon.  I need to have a checkup with the doctor but, he's in Chicago and it's alot of work.

Wish me luck at pt tomorrow

Jennifer

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