I had fistulas and setons, too, and understand how painful they are, so I'm happy to report that they disappeared when I had my proctocolectomy two years ago.
Yeah, having a permanent ileostomy isn't a dream come true for me either, but it's a heck of a lot better than living with the wrath of Crohn's. This surgery has been the closest thing to a cure for me, because I'm currently disease-free and medicine-free.
Since you're young, your body will recover quickly, and you're going to feel so healthy and energized after getting that diseased colon out of you. I knew the Crohn's was gone the day after my surgery, and it was the best feeling in the world.
I wish only good days ahead for you. Watch out, Vegas, here you come!!
Hi i am a 42 year old male i had a total proctectomy september last year. i suffered with crohns and fistulas. did the remicade thing with no help from it ended up getting a perminant ileostomy with the removal of the anus. they removed all the fistulas and it took a while but everything healed up great. it is funny how al those years suffering with the pain and discomfortant and how my life is now it is great no pain no more drugs.Yes it takes a while for the rear end to heal. lots of sitz baths every day helps with the healing. the one problem i am learning to deal with is the sexual function. does not work the way it did but the little blue pills work great.