Reconnecting? Advice?

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Blossom28
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 10/8/2008 2:21 AM (GMT -6)   
I have had an ileostomy for ten months now and I must say that after the first few months of getting used to the bag, and how to manage it well, it is really OK!! No one can even tell that I have an ostomy, and there is total control (compared to crohns episodes). I have to make the decision whether to get the ostomy reversed and be "hooked up" again, and I am having a very hard time deciding. Here is my story . . .

I went in for a "routine" bowel resection (my first) that fell apart after four days. I was rushed to emergency surgery with peritonitis and I almost died. I recovered, but with "open wound" healing that has left me with a huge abdominal hernia (and a temporary ileostomy). I know that I have to have surgery to repair the hernia and my surgeon wants to reverse the ileostomy at the same time. The problem is that since I have had the ostomy, I have no symptoms at all from Crohns and I have not been taking any medications at all! If I get hooked up again, I will have to resume Humira and asacol, and perhaps endure Crohns flares again. It seems that my colon is the only place that I have Crohns. . .

Does anyone out there have experience with having a temporary ostomy and then getting hooked back up?

Thanks!!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/8/2008 4:48 AM (GMT -6)   

Blossom28--I did...but, for me it wasn't my solution.  I ended up having mine done again within a year.  My Crohn's just went into overdrive (rectal/colon and meds weren't controlling it) and I knew what an ileostomy was all about at that point, an would rather live my life with a stoma, so I could actually live it!! 

I think you could get more information by reading the "reversal" threads...sort the threads by topic and I think they are somewhere around page 64.  Let us know what decision you make:)

 


Blossom28
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 10/8/2008 9:31 AM (GMT -6)   
Thanks so much Ohio . . . I really am struggling with the decision . . . both my gastroenterologist and my colo-rectal surgeon are urging me to do it and think it will be successful . . . but I appreciate hearing your story. It's good to know that you survived OK with a reversal of a reversal!! That may be my option, to try the reversal and I can always go back to the stoma if I need to.

I have been so impressed with the ostomy support group that we have here in the DC area, they are terrific and we have a great time with "stoma jokes"!!
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