Surgery Question

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UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 10/8/2008 3:15 PM (GMT -6)   
I just posted this on the UC forum but only got one reply =[ So maybe you can help =]
 
Has anyone that had their colon removed also had their gallbladder taken out? I had a CCK HIDA scan done Monday and then Tuesday a scope. The CCK test said my gallbladder only worked 9% and the normal is 30% so my doctor is going to talk to my surgeon and see if she wants it removed and if she can do it the same time she takes my colon out. Im a little sad. The scope showed absoulutely no improvement in my colon but the good thing is that it hasnt gotten worse either =)!! Ive tried Remi and Methtrexate and since those havent worked Ive decided to get surgery. I have an appt with my surgeon on Tuesday! Im really excited about that because Ill find out when I get my two step surgery.
So..has anyone had their gallbladder removed? Doc says it kinda runs hand in hand with IBD which i also have.
 
Thank you =)
 
So..i was just reading about getting a catheder when you get the surgery.. OUCH im realllly scared about that. Im not really comfortable with a nurse seeing ME down there =( Maybe im just being a baby about it but how bad does getting one hurt? and how bad does it hurt when they take it out? Ahh im REALLY scared now.


Katrina, Senior in high school! =]
Dx with UC March 18,2008
 
Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
                                                                    
Getting surgery since nothings working right..dont know when yet.
 
 

Post Edited (UC_at16) : 10/8/2008 3:35:44 PM (GMT-6)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 10/8/2008 3:52 PM (GMT -6)   
Catheters are put in when you are fully anesthitized. You will not feel it going in and it feels like a tampon being pulled out. Believe, it will be the least of your worries!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 10/8/2008 5:51 PM (GMT -6)   
I've heard of a lot of people getting their gallbladders taken out after having the j-pouch surgery. A friend of my parents' had the j-pouch surgery i think last year, and just recently had her gallbladder removed.

as for the catheter, don't worry about it. it gets put in while you're knocked out and taking it out doesn't hurt either. watch out for urinary tract infections or yeast infections though. the thing that does hurt a little to be removed is the drain from the j-pouch. no one mentioned to me that i'd even have one, so i was surprised when i woke up and had a tube i didnt know about until someone came to empty it. mine was just above where my underwear would go. i suggest you get pretty comfortable with nurses seeing all parts of you because there's no avoiding it. a little awkwardness is worth the relief you'll get.

i hope all goes well!
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


moonshine01
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 10/11/2008 5:13 AM (GMT -6)   
I was diagnosed with UC since 2002 and the disease has so progressed now (pancolitis) that im not responding to meds. I tried remicade too for a year but never attained remission. Currently, im trying humira...but all the cramps and pain do not seem to go and the restricted diet is so frustrating. I'm preparing myself psychologically for surgery since im very worried about the complications that i heard about (pouchitis, obstruction etc...). Can u tell me about ur experience after surgery. Did u have an open surgery or one done laparoscopically? Are u able to eat whatever u want? I was told that after surgery u have lots of bowel movements a day and then they stabilize to 6 a day and that the stools are always watery like. Is that true? Are the bowel movements urgent or controllable? I'm worried about life after surgery and the recovery period. Some say it takes a year to feel normal again. is that true? I would appreciate to hear all your experiences (even if negative), especially young adults around my age 23 and females if possible.
Thanks

moonshine01
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 10/11/2008 5:16 AM (GMT -6)   
I was also told that u have at least one bowel movement (if not more) during the night- after surgery all ur life. Is that true.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/11/2008 7:05 AM (GMT -6)   
Moonshine,

You may want to post your question under a new thread so it will get more viewing (and responses). Maybe just copy everything you wrote and paste it to a new thread.

I have an ileostomy so I won't be able to respond to your questions, but I'm sure that someone will come along soon and help ya out.

Good Luck,
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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