Frequent BMs 15 months after re-section

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/8/2008 4:13 PM (GMT -6)   
Hi, hope someone can give me some advice please, I had my resection 15 months ago after having Colon Cancer and the stoma for 3 months.  Most of the time it is great and I feel wonderful, but every few weeks I seem to have a change of BM where I have very loose motions but only pass a small amount, then I no sooner go back to bed or into the lounge and I have to "run" again!  This can happen between 4 -6 times within the hour which leaves me with a really sore butt!  I have tried to work out if it is something I have eaten but the only thing I had different yesterday was some sticky date pudding with cream??  hopefully it wasn't that. tongue
I do have medication that will stop the frequency but problem is that it binds me up for a few days then I need to take Coloxyl or Senna to get things moving again.
 
Any advise would be really welcome.
Thanks
Life scar

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/9/2008 2:55 PM (GMT -6)   
I bet it was the date pudding!
Lost half of my small intestine, Nerve damage to right leg,part of my right hip bone removed,hernia,infection in my back called discites,and depression


life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/9/2008 3:17 PM (GMT -6)   
hehehehe, that's what I thought to so I had a serve the following day just to make sure but absolutely nothing happened! Maybe it's just one of those things when your bowel decides what to do and when to do it hey?
It may be a real pain in the Butt, but I am so grateful that I still have my life :)

Thanks for your reply and hope you are on the mend.

Annie

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/10/2008 9:32 AM (GMT -6)   
try to keep a diary...maybe then you can pinpoint what might cause the loose stools. Good Luck:)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/11/2008 7:08 AM (GMT -6)   
And, sometimes, it is a combination of different foods eaten during the day/meal that makes the difference. Food diaries, tho a pain, do work!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/11/2008 7:37 AM (GMT -6)   
Hi there - question, does this occur right before your period (if you're female, if male, my apologies!!!)? If so, many women have very loose bm's before their cycles begin. There is a connection.

I had rectal cancer, a resection, a temp ostomy, in 1999. 8 weeks later reversed and nothing but trouble ever since. I went on a low residue diet (which allowed me to leave home again), faithfully kept a food diary for 2 years, etc. It's 9+ years later now and I still follow my LRD about 75% of the time, keep my stress level as low as possible, take a mild dose of Colace each evening, and do fairly well. I still have multiple bm's everyday though, that's a given and to be expected. I will never go back to my old - one bm a day - mode. It's more like 12 to 15 a day, but each time it's a small amount. My entire goal since being reconnected has been to keep my stool formed, easily passed anywhere (mall, grocery, private home bathrooms), not messy, and certainly not D. But sometimes I get out of whack and my bm's come one after another, for hours. The only good thing is if I let this happen (by not taking meds), I feel great the next day - virtually cleaned out again. It does seem like no matter what I do - diet, exercise, reducing stress - my body does its own thing on the repeated clean out phase. And since I've entered Menopause now and have started skipping cycles, it's not my time of the month. But could be hormone related. If this happens while home, I actually encourage it - by sipping hot tea. The hot tea seems to help keep things moving, I get the bm's over with sooner and then I feel better the next day. I had one of these wild nights last night. It's not fun to go thru but again, it does seem as though my body needs to do this (even now, 9 years later).

One thing I did years ago was never eat anything solid after dinner. If hungry, I would trick my stomach into thinking I had eaten by drinking a large glass of water. I did this so I could get 6 to 8 hours of solid sleep, when the need to have a bm wouldn't wake me up. I also would sleep on my back, because if I rolled to my side, the stool would slide down (I can feel it come down!). If I were lying on my back, it seems to stop the stool higher up in my colon. I still sleep this way if I have had a rough day/night because at that point, I want sleep! And to not hole up in the bathroom, for more time! Basically back then, I ate for 12 hours on, 12 hours off. It did seem to give me rest filled nights.

Keep the food/beverage/med diary, record everything you eat, drink, take and do. I would rate each day - good or bad. Then later if I needed to have a good day (social outing coming up for example) I would duplicate what did and ate/drank on one of my "good" days. This approach did seem to help me.

Finally, I have also skipped meals for special events - holiday dinners, wedding, parties. I make sure I haven't eaten anything about 4 hours before the event. I also end my solid intake with a vanilla flavored yogurt cup, high in acidopholis. During the event, I skip eating if I can pull it off (cocktail party, etc.) and if a sit down dinner, I just literally pick at my food. Eating very, very little of it. Asking for a doggie bag if I can. Telling out right lies that I'm not hungry. But I have learned the hard way, if I cave to this peer pressure (even at 53, I have it, if I allow it) and eat a full, regular sized meal, then I pay for it. I will be in that facility's bathroom for several hours, or a person's home's bathroom. No thanks. These are all tactics/approaches I've somewhat perfected over the years! Do they work? Sometimes, yes. Other times no, but so be it. This is the way it is for me now.

And like you, I did beat cancer. I keep telling myself, do I want the alternative? NO!

I wish you better days ahead.....
Mary/Marsky

life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/12/2008 2:13 AM (GMT -6)   
Thank you all for your reply's, and thank you Mary/Marsky for your very interesting and detailed response! It is so much of a relief to know that I am not having anything to be concerned (heathwise) about and that others can relate to what I am experiencing. It certainly makes it easier to handle and I will start keeping my food diary from tomorrow!
I am 63 so passed my menopause and cycle days, although I do believe that it has a lot to do with different things even now. Totally agree that you feel much better after a really good "clean out" even though you end up stuck in someone or some loo for hours at a time and the embarressment of feeling that everyone is taking note of just how long and how many trips you make to the loo. Not to mention the burning butt after you are almost empy :( Although I can't understand how I don't seem to lose any weight with the constant emptying. Mind you, it could have something to do with the fact that I just LOVE my food!! :) I still seem to just hover around the 82k (5'9) so at least it's not TOO bad although I would really like to lose 5kg.

Keep on smiling and keep positive!!
Annie

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/12/2008 8:32 AM (GMT -6)   
Annie - you're quite welcome. I tend to get wordy with my replies, so I am glad I didn't wear out my welcome. The reason I feel compelled to respond is mainly because my surgeon and his partner (who discharged me from the hospital after my take down), said to "eat anything I wanted, enjoy life, take Immodium!". Also to eat 4 to 6 small meals a day and not 3 (this was the best advice I had been given). They muttered something about maybe going easy on spicy foods. But that was IT for how to return to "normal" again. Well, 9 years later I am anything but normal! I used to worry about what others thought too, trying to explain why I was still having trouble. People think I'm just fine now, because on the outside I do look normal to them (meaning, one bm a day). For a few years I also felt compelled to explain it all but I would lose people. Even my own immediate family doesn't get it. My husband has said - just stay in there (bathroom) and finish, all at once. I just sigh when he says this! I have nowhere internally for the stool to back up, collect and then only have the urge to release it once a day. My bm's come all day long, as long as I eat solids. So what I'm saying is this - you are rather new at this so give yourself time to figure it all out. If I hadn't found a colon cancer forum and read about the LRD, I have no idea where I'd be today. Probably still eating all the wrong foods for me, trying to fit in with that normal colon world.

I rarely try to explain any of this to anyone who's not had a resection, cancer, colon surgery, IBS, unless they ask me questions. I'm far from an expert but I do share what has worked for me, what hasn't, etc. I mainly encourage the food diary, eating foods that agree with you, avoiding the ones that mess you up, and gently say never apologize for what you have to do to manage your situation. If people say - oh your stomach is bothering you again today? I just smile and yes it is. It's not my stomach but I can tell they don't want to hear about bm's, IBS, etc. So I let them think what they want to think! Because I will never get to them to truly understand what I go thru, 24/7. I'm not so sure anyone gets it until they've lost part of their colon, have IBS, Colitis, Chron's, etc......

You keep positive too - I like that attitude. The alternative is not what we're striving for here!
Mary

life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/12/2008 5:22 PM (GMT -6)   
Thanks once again Mary,

I have just had breakfast of Nice n Tasty, which has cereal and mixed berry and oats (98% fat free) so that is the first thing to go into my new food diary!

It must be a "husband" thingy as mine said the same "why don't you just stay in the bathroom and get it all out" I just wish it were that easy hey?

We are heading "bush" for a couple of weeks camping in the morning (I live in Australia) but we have our portable loo with us so I feel more relaxed than just taking the shovel into the scrub, digging a hole etc., ;) (there would be far too many holes for my liking, not to mention when you have to "go" there's usually no time to dig a flamin hole is there. :( Anyhow thanks to this wonderful column I sure feel a lot more comfortable with myself and don't have the nagging feeling that maybe all is just not right.
To everyone who maybe reading this.......please try not to despair, our lives may have changed somewhat after what we have been through........BUT, we still have a life and can learn to adjust accordingly!

Cheers for now
Annie

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/14/2008 3:19 AM (GMT -6)   
I must be lucky in the huband department because mine never says that.The problem I have is I have 4 kids still at home (15,11,9,almost6) and 4 grandkids(10,8,almost6 &11/2) that just had to move in along with there dad (my son)And it never fails a soon as I need to go one or more are knooking at the door.There are two bathrooms in this house but I only use one.Even if the other is empty thay have to try this one first.Thay dont get it that even though I always have diearrea that some times it takes awhill to all come out.You are brave going camping dont know if I will ever be able to do that again. rolleyes rolleyes rolleyes rolleyes
Lost half of my small intestine, Nerve damage to right leg,part of my right hip bone removed,hernia,infection in my back called discites,and depression


life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/23/2008 2:13 AM (GMT -6)   
shocked   WOW!!  You are a marvel,  all those children and just two bathrooms smhair    I had a comfortable camping trip and with it being "bush" camping the porta loo was right on hand and withing easy reach.   I just made sure I didn't over eat (I really love my food) but with only eating small light meals it made things so much easier and I only had two unpleasant days where I couldn't move move than a few feet from the loo  idea  but   I am determined to live as normal a life as possible and cram whatever I can into it.
 
The depression is really hard isn't it?  I had to take anti depression tablets for the first 6 months but gradually weaned myself off them with lots of positive thoughts and affirmations.  After reading a lot of these links I certainly consider myself very lucky to have only had what I did.
 
Best wishes and good health to you all!
Annie

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/23/2008 1:54 PM (GMT -6)   
I'm used to enjoy primitive camping before my cancer/colon resection. I have to draw the line at having bm's in the dirt, in the open or behind a tree. LOL! My family knows this. I have told them, find a campground with flushable toilets but also private (in other words not having another campsite smack next to ours) but so far they haven't tried. They have gone camping without me, only to call every hour or so if it looks like rain. One time I was checking radar and the Weather Channel so frequently, I thought to myself - well this isn't the break I thought I would have. But to get back to relieving yourself while primitive camping - if you can pull this off Annie, more power to you. You are much braver than I am!!! I have put up with an awful lot but that is where I draw the line.

My husband bought a new ski boat this past April. So in a way I know what this feels like - making do while not near bathrooms. I have to somehow hold it or fast from solids to go on the boat. Which later makes me so tired but it's a late Spring/Summer phase. Now it's over (oh thank God!)......at first hubby enticed me with - "I'll take you to any marina Mary, so you can use the bathroom". I laughed and asked - "will you wait for me to go and then go again" (and again, again).....he said yes but deep down I know he just wanted me on the boat. To go with him. As in that picture in his mind of a the happily married (which we are) boating couple. LOL Each marina bathroom I've been to has left a lot to be desired. They are either marine toilets or not in great condition (picture a really bad gas station bathroom while traveling).

Husbands and their hobbies, which wives do share.......it's just difficult when you don't have a normal colon!

about the depression aspect of this situation. It is difficult to manage also. I think I adopted a positive attitude once I decided I would never go back to my pre-cancer one bm a day phase. Those days are over and never to return. It may sound negative at first to realize this (yes, oh yes I have cried, cried in front my colon doc, who was so kind, she just sighed and teared up too) but once you put this wish (to be normal) behind you (sorry, bad pun....he he) you do begin to think in positive terms and make the best of your situation.

That is what I've tried to do for 9 years now. Make the best of my situation. Coexist with normal colon folks (whom most think I have a normal colon, I'm quite good at faking it!).....

Mary/Marsky

life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/23/2008 5:22 PM (GMT -6)   

Hi again Mary, I know what you are saying, I too used to just dig a hole or go behind a treet etc but have you tried a portable potty??  They really are a life saver!  AND clean and no smells either, they are no trouble to cart around with you and at least we can have a "almost" normal toilet with us, it's nearly like being at home as you still have the privacy and can "go" whenever the need takes you.   It really is worth the try Mary, life is just too short to not join in as many activities as you can.  Although mine in just over a year now apart from the number of BMs a day I sure as heck aren't going to let anything stop me from living my life as I want to, it's just too short as it is.   As soon as I start feeling sorry for myself I think of so many people out there that have Cancer which is in-operable and they are just waiting to die.......that sure pulls me into gear and I feel grateful that mine was removed and I am well again.

What part of the world are you in Mary?  It sounds like you have a wonderful husband, it is surprising how many husbands can't cope with this sort of thing.  (I too have a real gem)

I would really love for you to just try a porta loo and see the difference,  (you can even have it on the boat with you . yeah

Cheers for now

Annie

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 23, 2017 8:06 AM (GMT -6)
There are a total of 2,858,829 posts in 313,691 threads.
View Active Threads


Who's Online
This forum has 155285 registered members. Please welcome our newest member, Liz_j_28.
434 Guest(s), 14 Registered Member(s) are currently online.  Details
19tarpon47, Liz_j_28, TMC, Gear, Doire, browntrout, MarjieKay, Lynnwood, Alice22, sanmay, raspberryswirlgirl, Traveler, Htownman, hopelessinmo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer