PLease help re colostomy!!

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Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 10/9/2008 12:48 PM (GMT -6)   
Ok, i am getting so frustrated! I feel abandoned and that no one knows what's going on.

I have had a colostomy for 2.5 weeks. The wafer keeps letting go on one of the sides. It didnt start doing this until a day or 2 ago. At first I thought it was me but I met with the ostomy nurse today and she put this one on me and again it looks like the stool is forcing its way from my stoma to the right and halfway through my wafer. IT already let go in one area on the right... we tried the powder, she tried a convex appliance as my stoma is partially retracted on the top part. Thats why they were confused it wasnt letting go on the op but on the side.

Of course now the ostomy nurse is unavaiable .I left her a msg but she is not calling back. Extramural is clueless..no one knows!

I am tired of feeling no confidence in the wafer.. MY new theory is that possibly my stoma lets the stool go to the right, and that since I'm on percocet and my stool is firm it's forcing the wafer from my skin. IS this possible????? So just a stool softener would do it>

Please advise me, I need help! sad sad sad
30 years old, dx with Crohn's in 1998. Currently on Imuran 100mg/day, Flagyl 1000mg/day
and Cipralex 10mg/day for anxiety. Just got off Cipro which was my drug for last 4 years.
Perianal fistula, and 2 more suspected. Crohn's only at end of colon, cecum. Remi and asacol did NADA.


ColonLess
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/9/2008 1:16 PM (GMT -6)   
Hi new here so i hope i can help. Try using a glue or paste. that happened to me in the hospital. The one i like is called Skin Bond by Smith Nelson. It seems to help me. The med supply place sent another brand but it didnt work as well. I hope this can help somehow.

Oh also you can try a paste, it suppose to help keep the stoma upright in one place i have tried Stomahesive by ConvaTec. Good Luck :)

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 10/9/2008 2:05 PM (GMT -6)   
I had the same problem in '89 when I first had my ostomy. It leaked all the time and was driving me nuts. To fix my problem I used a regular wafer but used a convex insert. Also the paste will help a lot. After you cut the hole in the wafer, put a bead of paste directly on the wafer(sticky side, of course) around the hole. Then after you've applied the wafer, "picture frame" the wafer with a good waterproof tape(not paper tape). I'll be really surprised if that doesn't do the trick!

Post Edited (vette guy) : 10/10/2008 7:30:30 PM (GMT-6)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/9/2008 2:05 PM (GMT -6)   
I use Eakin Seals the same as you would use a paste, just a small strip around the stoma opening on the wafer and the bond is pretty darn good. Also, try drinking more fluids instead of a stool softener.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/9/2008 10:12 PM (GMT -6)   
another thing that helps is using a hair dryer on the wafer right after you put it on. Also if you are still using the skin prep stuff, it can decrease your wear time, when i was still using that, if i got it even the slightest bit wet, if cameright off. Or you may have the hole cut too big.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/10/2008 9:20 AM (GMT -6)   
You've got a lot of good responses...do you change it yourself, or only let the nurse do it? Your skin might feel better if you can get a new one on quicker after it blows...I had problems early on, my stoma is VERY small and the skin around it dips in, and when it is active it really retracts!!! My nurse and i watched it once to see what it was doing so that we could find something that would hold!

I went to a full convex wafer. I use a two piece so i can position it correctly, then put the pouch on. I also use an Eakin Seal, like Peggy, but I have tried other brands and even paste without any luck. I also don't use any remover/skin prep and have increased wear time without those items.

I hope you can find your solution soon!

Oh, one more thought...can you get another nurse to help you? I found that sometimes a new nurse can look at the situation differently and voila, it is fixed!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/11/2008 7:10 AM (GMT -6)   
You have received lots of good suggestions. Let us know what you try and what works or doesn't work for you, okay? It will also help US to help you and others.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 10/13/2008 10:57 AM (GMT -6)   
hi guys! Finally I tried a new thing and it worked so I am in a better place right noew. IT is definitely still going to take some trial and error to find the perfect match for me, but at least my pouch is not falling right off.

The nurse advised me to stop using the paste (I had been using it when I was leaking) she said for some people it doesn't set up right and can become a problem. I also used stool softeners and prunes to make my poop softer and used a 2pc with convexity. With the combination of stool softening and no paste, my pouch now stays put. I am also using a hair dryer now to help the adhesive meld to my skin....

The thing now is I did change the bag once since that one, and am back to my 1 pc with no convexity...and no paste, to see if they will work. If not than I am going to have to stay with the convex pouches ..but I def prefer 1pc over 2pc.

If it turns out I need a caulking I will try the seals over the paste next. I find it very freeing because the paste was the element that took so long for a bag change. IT wouldnt come off and all the scrubbing was irritating my skin.

Thanks for all your help!!
30 years old, dx with Crohn's in 1998. Currently on Imuran 100mg/day, Flagyl 1000mg/day
and Cipralex 10mg/day for anxiety. Just got off Cipro which was my drug for last 4 years.
Perianal fistula, and 2 more suspected. Crohn's only at end of colon, cecum. Remi and asacol did NADA.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/13/2008 6:58 PM (GMT -6)   
That's great news! smilewinkgrin
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/13/2008 9:41 PM (GMT -6)   
You are on your way now.... it really is a process of finding what combination works best for you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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