Life after total colectomy for UC! Experiences needed.

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moonshine01
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 10/11/2008 12:31 PM (GMT -6)   
I was diagnosed with UC since 2002 and the disease has so progressed now (pancolitis) that im not responding to meds. I tried remicade too for a year but never attained remission. Currently, im trying humira...but all the cramps and pain do not seem to go and the restricted diet is so frustrating. I'm preparing myself psychologically for surgery since im very worried about the complications that i heard about (pouchitis, obstruction etc...). Can u tell me about ur experience after surgery. Did u have an open surgery or one done laparoscopically? Are u able to eat whatever u want? I was told that after surgery u have lots of bowel movements a day and then they stabilize to 6 a day and that the stools are always watery like. Is that true? Are the bowel movements urgent or controllable? I heard that after surgery u get at least one BM during the night if not more. I'm worried about life after surgery and the recovery period. Some say it takes a year to feel normal again. is that true? What about incontinence? I would appreciate to hear all your experiences (even if negative), especially young adults around my age 23 and females if possible.
Thanks

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2764
   Posted 10/11/2008 6:59 PM (GMT -6)   

Moonshine,

I'm sorry you're not achieving remission with medication. I had Crohn's in my colon and rectum for 7 years, and the medicines weren't working for me either, so I had surgery two years ago. Since I had disease in the rectum, I was not able to have my small intestine connected to it. My surgery was open, and I have a permanent ileostomy.

Much to my surprise, I was out driving and grocery shopping two weeks after surgery. I did not go back to work for 8 weeks, because I would get tired at different times during the day while I was healing. I can eat whatever I want, work full time, excerise and have no pain. I'm disease-free and don't have to take any medicine, which is a real blessing.
 
The only problem I've had was a blockage in my small intestine back in March of this year, which was caused by scar tissue from the surgery. That got fixed with surgery, and I was back to work 6 weeks later. I didn't get too concerned about it, because that can happen to anyone who's had abdominal surgery.
 
Since I have an ileostomy, I have a lot of freedom and don't ever have to think about where the nearest bathroom is. I love being able to shop for hours and sleep through the night.
 
I'm glad that you're inquiring about the pro's and con's to having surgery. Everyone here is so helpful, and I know you will get good information from people who have been in your situation and have had the same surgery you're considering. Please ask us anything you want, and we'll do our best to answer.
 
:-)  Cecilia



Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1181
   Posted 10/11/2008 10:13 PM (GMT -6)   
Hi Moonshine.
I'm not sure whether you're talking about an ileostomy or j pouch surgery here so I'll give you the info from an ileostomy perspective (since even with a j pouch, you're likely to have a temporary ileostomy for a short time anyway).
Moonshine01 asked...
 I was told that after surgery u have lots of bowel movements a day and then they stabilize to 6 a day and that the stools are always watery like.
Actually, with an ileostomy, it's not like bowel movements as you know it. You can't feel the stoma working and it will output 95% of the time. Because you can't feel it, there is no urgency and it just goes regardless of what you're doing at the time. You're not running to the loo all day, it all goes into your bag. The '6' a day you're talking about is the average amount of times you will need to empty your bag - some people empty more, some less. You will find there are no absolutes regarding ostomies :) 
 
Ileostomy output ranges from watery to paste like (depending on what you have or haven't eaten. Since the large intestine absorbs mainly water (plus salts) and you won't have one anymore, stool will never be solid again because you're losing water with your output as well.
 
moonshine01 also said ...
I heard that after surgery u get at least one BM during the night if not more
Again, you won't feel it and it will all go into the bag while you're sleeping. Some people do find their bag gets very full at night and have to get up at night to empty, others don't. I usually wake up to find the Good Year Blimp on my belly, ie a bag full of gas, but rarely have to get up at night to empty.
 
moonshine01 said...
Some say it takes a year to feel normal again. is that true?
This can be true. It's a major surgery you're undergoing. However, most people start to feel well again right after surgery. It can take up to a year to regain full strength though. Most people are back to work/school approx 6 - 8 weeks after surgery so it's not like you spend that year doing nothing :)  You can still do anything you want after you heal (approx 2 months), you may just tire a bit more easily, but each day you will feel a little better than before.
 
moonshine01 asked ...
Are u able to eat whatever u want?
YES!  And it shows lol. Some people do find that certain foods can cause blockages but just because it causes problems for some people DOES NOT mean it will cause a problem for you - everyone is different. I eat whatever I want and have never had a blockage in my stoma's 32 year history.
 
Hope this helps :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


GISGuy31
Regular Member


Date Joined Feb 2008
Total Posts : 79
   Posted 10/12/2008 1:23 AM (GMT -6)   
I'm in between J-pouch surgeries currently, so I have a unique perspective. My UC was terrible - pancolitis right off the bat and it never went into remission with Asacol and Prednisone after a year of drug treatment. The prednisone gave me osteoporosis after a year, and I still was not getting/feeling better, so that was what convinced me to start considering the surgery route.

My aunt (great reference medicine wise) is a pharmacist and she told me that Remicade is classified as a chemotherapy drug, and I didn't like the risk of cancer that leads to instant death on that drug fact sheet. So I refused to "graduate" to the next level of dangerous drugs. The potential side effects of those drugs seemed to outweigh the risk from the j-pouch surgeries to me. So I wasn't going to take that stuff for 40 - 50 years just to see what happens along the way.

Also, this is what sealed the deal for surgery to me -- my GI doctor told me that even in remission, my colon is still inflamed on the cellular level and that's the reason why anyone diagnosed with UC needs colonoscopies every 1-2 years after 10 years of being diagnosed with UC (regardless whether your in remission or not). Your risk of these inflamed colon cells mutating into colon cancer 20 years after the initial UC diagnosis is 30 times that of a normal person and continues to increase with age.

So I figured, why take drugs "now and forever" that will ruin my otherwise healthy organs, while still having to face the increasing chance of having my colon removed 30 - 40 years down the road anyway because of colon cancer. I decided I would rather go through the surgeries now while I'm young and preserve the rest of my other organs since I haven't damaged them that much yet with the drugs. So this was my rational for the j-pouch surgery.

I think your talking about J-pouch surgery and then living with it. So I'll explain what I know and what I experienced so far with the surgeries I've had.

Having only 2 surgeries (two stage) is the "best case" and most common scenario for the J-pouch surgeries - sometimes they do it all in one surgery, but very rarely.

Mine had to be done in three stages (3 surgeries). The little secret about prednisone is that if your on it long term (more than 3 months), it turns your internal organ walls into the consistency of butter, so they will not hold staples or stitches. I was planning on having my surgery(ies) done lapriscopically at the Cleveland Clinic, but they had to open me up instead. So I have a nice 10" incision that curves around my belly button. I found this out after waking up. They told me doing it lapriscopically in my case would have caused more trauma to my organs and abdomen, I also found this out after waking up. So expect the unexpected.

So for my first surgery (4.5 hours), all they did was remove the colon and created the temporary ileostomy. They couldn't make the J-pouch out of the small intestine since the organs were "soft" from the prednisone. After they removed the colon, they left the rectal stump - basically the anus and a small amount of the end of the colon (stapled shut). I guess it makes it easier to find and attach the j-pouch when they do the next surgery. The interesting thing about the rectal stump is that it still produces mucus and clear fluid that you pass as a BM about every 3 days. Very interesting to have stuff coming out of three openings instead of two.

As for the temporary end ileostomy, I found it more fascinating than weird or dirty, and I didn't have the emotional issues that I've read about some people having. I mastered the bag thing after 2 weeks. I recommend not using the supplies the hospital gives you, but research and get lots of samples. The medical supply people will be hounding you to get your business when your released from the hospital. I finally went with the hollister 2-piece system. The wafer part lasts a week, so I change them on Sunday mornings in the shower, and I change the bags every 2 - 3 days (they just snap onto the wafer), and that's how long it takes the filters to stop working and they begin to balloon up from your gas. Right after surgery, the small intestine and stoma are swolen and you can only eat a "GI soft diet" for 6 weeks, basically anything that you can cut and mash with a fork, except raw fruits and vegies or anything with skins. I would say I empty my bag about 6 times a day and sleep all night. If your food is really thick like eating potatoes or other thick things, you can sometimes feel it coming out. I would say it feels like a worm crawling out of your stomach. Otherwise, you cannot feel the other stuff coming out into the bag 95% of the time. It just fills up, the bag gets a little heavy and bulges, and that's when I know I need to empty it. The only thing limiting on it is jumping into swimming pools, otherwise I haven't found any limitations yet. I also didn't experience any of the dreaded leaks others have talked about. Just be careful with it and find a good system and you'll be fine.

After 6 weeks post-op, you can eat and drink anything, including alcohol. I was also able to taper off Prednisone (one month taper after surgery) and stopped all my other meds the day of the surgery. So I was drug free. I felt normal again 2 months after surgery - other than getting tired quickly, stamina is the last thing to come back. 4-5 months after surgery I was truly normal again (even energy wise)...like someone flipped a switch and I felt like how I was before UC. So, this is the state that is considered the "worst case" scenario if your J-pouch ever fails. Which is living/feeling normal with an ileostomy and a bag stuck to your belly. Not bad at all, and this is the worst case with the j-pouch surgery option.

Anyway, because I'm drug free and off the prednisone, I had to wait 6 months for my organ walls to heal up and not be "soft" anymore before I could schedule the next surgery (Stage 2). I was planning to have my 2nd surgery that the would create the j-pouch out of the small intestine on September 25th. Since I had an open surgery for the first one (and not lapriscopically), the remaining ones would be done that way as well. It would be crazy to cut more holes in my belly at this point in time.

Everything was going along fine until I ran into a little surprise on July 30th when I got a blockage, eventually determined to be from scar tissue from the first surgery. When I woke up, my output in the bag was very minimal that morning, and I had abdominal cramps and I was vomiting every 2 hours during the day. I then spent the next 18 days in the hospital. The first week they waited to see if the blockage would pass on its own, then they operated on me. All that they did was remove the scar tissue from my first surgery that had built up around my small intestine and began choking it off. Then after the surgery (2.5 hours), they almost killed me with the morphine pump - it basically malfunctioned and gave me a dose every time I hit the button, instead of a dose every 10 minutes regardless of how many times I hit the button. I got an "elephant sized" dose as it was explained to me, so that was why I was in 11 more days, because it slows down your body's healing process and slowed down the time for the bowels to "wake up" after surgery. That surgery recovery time was 5 weeks, so I was off of work for a total of 6 weeks. I tried to get them to do the j-pouch surgery then, but they said the small intestine was swollen and it would lead to complications if they did the j-pouch at that time.

So then I had to reschedule my next surgery (to make the j-pouch) for November 20th, 3 months later. They will not go through the same incision less than 3 months apart, otherwise it would be too soft and can split open. So baring any unforeseen circumstances, I'll have my j-pouch created on November 25th and will be off work for 2 months for that surgery. Then the last surgery to reverse the ileostomy in February (3 months later), and I'll be off work a month for that one. I'm currently feeling normal and can eat and drink anything and am drug free, except 2 pills a month for the osteoporosis. So I'm doing great during these in between surgery periods.

Hopefully all goes well and I'll give you another update.

Living with a J-pouch. From what I've been told from the people I know that have them. You don't have any urgency, you can hold it as long as you want, it is just uncomfortable, mainly like before UC. Going 6 times a day and once at night or early morning is normal. You go a lot after the pouch begins receiving waste, then 3-6 months afterwards, it stretches out and you get more capacity and begin going less and less during the day and night. I was wondering about that as well because my job involves working in construction and traveling to remote locations without restrooms. If you get pouchitis up to 30% chance, it's like you have UC again, but it can be treated with antibiotics over the course of a few weeks and it usually goes away. If you experience total pouch failure or chronic pouchitis, only 5-10% chance at the Cleveland Clinic, you'll be living like I do now. So if you can live with the idea of having a permanent ileostomy but feel 100% normal, then I would say you cannot lose with the j-pouch surgery option.

I would never go back to my UC days, or regret having the surgeries.
Age 0 to 30 - 100% healthy, no meds, no doctor visits, no hospital stays
Oct. 2006 - Symptoms of UC began
3/5/2007 - Diagnosed with UC - Pancolitis (entire colon involved)
20mg-40mg/day Prednisone, 4.8 g/day Asacol - didn't work at all
10/12/2007 - Steroid Induced Osteoporosis from Prednisone and Anemic
add Actonel (75mgx2 pills/month) and daily iron pills
2/12/2008 - open Subtotal Colectomy with Temporary Ileostomy Surgery
8/05/2008 - Unexpected surgery to remove blockage caused by scar tissue
Jan. 2009 - J-Pouch Surgery and possible Ileo Reversal Surgery Scheduled
"When life gives you lemons...make lemonade"


caramelsweet
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/5/2009 12:35 PM (GMT -6)   
I was diagnosed with UC in 2003. I tried the medicial and even Remicade route. After the Remicade wasn't stopping my flares, and after two blood transfusions, i decided that my best route would be the "J-Pouch" surgery. I had the first surgery on May 13th, 2004 (to take the colon out and create the stoma), It was weird at first, but to feel so much better and not be restricted to what i could eat was awesome. The second surgery was on August 9th, 2004. That was to create the J-pouch and clean up from the previous surgery...mostly reconstructive. This one took me about 3 weeks to heal from. The last surgery was on October 8th, 2004. They connected my intestines back inside of my body. To totally be able to go to the bathroom on my own, that took at least a month and a week. After that, i feel absolutely marvelous...were talking about 4 years ago since the surgeries....i love the fact that I'm on no medication at all, my eye sight is so much better (After being off of prenidsone), I'm having intercourse regularly, and i graduate from college in may! The only thing that i can say is that i get tired quickly on certain days...espeically if i haven't gotten a good 6 1/2 hours of sleep. I also have 2 bowel movements a night. One at like 2:30am and the other at like 5:45 - 6:00am. I have about 4 bowel movements in the day time. if i'm sick it's way more. But i defiantely can say that my quality of life is so much better than when i was sick with Ulcerative Colitis.

female, 23, maryland
cured of UC since 2005!

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/6/2009 1:46 PM (GMT -6)   
Hey moonshine! Im 17 and a senior in high school now but my junior year is when I got REALLY sick and none of the doctors where I live could find out what was wrong with me. So each day I just kept getting worse and worse losing more wieght and feeling sick every single morning! So my parents decided to take me to a hospital an hour and a half away from here and by then it had been about 8 months since I started having symptoms of UC..The day after I got to the hospital there, my amazing!! doctor diagnosed me with UC. (Pancolitis) Your story sounds like the identical twin of me. I tried Remicade and it didnt work at all. I was on prednisone and everytime I tried weening off of it, I would flare like crazy and have to go back up. I was on Methotrexate shots which are horrible! they made me sick for like 2 days after I got it. I tried everything out there it seemed like. And nothing was working the way it should so my doctor started pushing me towards surgery. But then for a few months he didnt talk about it and I got on here and read about how ileostomy and j-pouch surgery changed their lives for the better and of course theres risks for any surgery! But you cant let that scare you too much. Having someone to talk to who had this surgery REALLY helps so ask your doctor if he/she can hook you up with someones phone number =)

I had my ileostomy surgery Nov.19 so its still kinda new to me but i cant even begin to tell you how much better i feel now that my colon..that nasty infected thing..is out of me and i feel like my old self again! It sounded too good to be true at first but its most deff true! You wont regret having this surgery if you go for it =) I promise! Come join us ostomates =)
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.


amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/7/2009 10:20 AM (GMT -6)   
I agree with Bella. My daughter had a total colectomy in November, no ileostomy at the time, but last Friday had to have the ileostomy placed. She has other issues right now, but she is happy she has the bag and her bottom feels and looks SOOOO much better. She is younger than you 13 and in the 8th grade. Hopefully get it reversed in time before she starts her freshman year.
I am praying things will go well, and keep us posted.
Amy
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 1/7/2009 11:55 PM (GMT -6)   
My daughter was diagnosed with UC in October 2006 at 15-1/2 years old. She went through the usual meds. She had 3 flares in 1-1/2 years, all very intense (30-40+ bowel movements a day, out of school for 9 weeks at a time). She had her 1st surgery July 3. She was in remission at the time. In the hospital for 6 days. Walking was really hard for her. Took the summer to recuperate and adjust. For the most part, everything was good. Her ostomy "burned" when it output for the first 2 weeks. It took about the same amount of time to figure out how to change her wafer (I helped each time). If you search for my posts from around early/mid July you may read about how in the beginning it took over an hour to change her wafer! By the end we generally had a good routine. She had a full incision. She didn't take much pain meds when she came home (percoset and usually only at night to relax her enough to sleep). She did tire easily in the beginning. She would sometimes use the motorized carts at the stores if they were available. Standing too long too her breath away. But she began senior year with her ostomy (and was healthy). She got winded walking up several flights of stairs. She learned what foods bulked up her stool and what didn't. She didn't get any blockages.
Her reversal was November 10. Very quick surgery (less than an hour). Much less pain. Walking with no problems. She was in the hospital for 4 days. In the first few days, she had some near accidents (but not since then). She had some butt burn for a few weeks. We think it was mostly until she had more food in her system (she really didn't eat much the first few weeks). She went back to school the beginning of December (could have gone back after 2 weeks but it was Thanksgiving week and only 2 days of school). She has learned what food cause her to go to the bathroom more frequently or cause some burn. She doesn't really count how often she goes. If she has to pee, she generally poops. No urgency. No cramps. We have been out for hours at a time and not worried.
She lost the 45 lbs she gained from prednisone. She looks better than she did even before she was on the prednisone (and is smaller in clothing size). She has tremendous energy. This is her senior year and she didn't want to worry about when she would flare and how much she would miss. One thing I have noticed is a peacefulness on her face. I can't really explain it. Even when she was in remission and going about her everyday life, it was different.
We went into this whole thing knowing that her "new" life would be different (better but different). We planned it so her first recovery would be over the summer to give her more time to adjust. We figure she will continue to see minor changes over the next year. But she is happy, healthy, and very glad to say "I had UC!".
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


PTI1
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 2/4/2010 2:45 PM (GMT -6)   
Hey there. Just a quick question to put out there in hope of a reply! I am due my last operation soon, to take down my temp ileostomy and have full use of my j-pouch. My question is related to weight training and supplements. Prior to my operation to remove my colon, due to ulcerative colitis, i was weighing in at 12 stone due to a keen interest in weight training and sport. Unfortunately due to the illness and operations i lost 2 stone and have never managed to gain my muscle mass quite the same. when i eventually get used to the j-pouch and start back weight training, i am hoping to use a supplement called 'Cyclone'. It contains high amounts of protein and creatine in order to help muscle growth and recovery. My question is to anyone that may have tried this supplement whilst having a j-pouch, and how did the pouch react? Look forward to any response. Many thanks. John

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/4/2010 9:35 PM (GMT -6)   
Miss Moonshine...
Everyone is giving you such valuable and amazing guidance and support.  yeah   Some of us here are between J-pouch surgeries and some of us are with permanent ileostomies...and those of us who are UC-free wink  would agree that life after surgery is AMAZING! 
 
Not everyone has chosen to have the reconnect surgery...my personal opinion is that I want nothing to do with going poo every again!  I have yet to regret my Penelope (stoma) smilewinkgrin
 
All of this can be very confusing and intimidating...please remember that there is no question we are not comfortable answering!  You should see some of the conversations on here! blush
 
smurf 
: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Comber
Regular Member


Date Joined Jan 2009
Total Posts : 40
   Posted 2/5/2010 12:55 AM (GMT -6)   
Hey! So i am 24 and female so i think that you can relate to me pretty well. I wont go into a ton of detail of the 10 years that led up to where i am but i will tell you what my life has been like post-surgery. First off, its the best thing thats ever happened to me!! I was 14 when i got diagnosed with UC and so i was quite young. I dont really remember what life was like before it but its really great now. I eat whatever i want(sometimes corn is a pain but i can still eat it) I dont take any medications!! 26 pills a day for 10 years to nothing! Sometimes i take immodium before bed just so it lessens my bm's. I do go to the bathroom about 8 times a day. I get up between 0-4 times a night. Your stool is NOT liquid all the time. sometimes if you eat lettuce it is watery but for the most part its like a puddingy consistency and sometimes even more solid. I dont know if you have any other questions but i never thought i would be normal again and now that i am its great. You can write me back or email me at grimmA13@yahoo.com if you want to talk more! Hope everything goes great for you!

Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 107
   Posted 2/7/2010 10:40 PM (GMT -6)   
Moonshine,
I had my colon removed in July 2007. My new life began in August 2007. I sail,surf teach in the pool, and ran my first
half marathon in Napa,Ca. to raise money for the CCFA. Since that time I have run two more half marathons and will do
another in march. So yes there is a whole wide world for you to enjoy after surgery. I have a permanent ileostomy and
sometimes it has a mind of its own but it is so much easier to deal with than being sick all the time. Your life will improve
beyond your expectations and the only limits you will have are the ones you put on yourself. Good luck and remember
you have lots of people here to help and support you every step of the way.
Fruitcake

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5293
   Posted 2/8/2010 1:46 PM (GMT -6)   
Did any of the recent posters notice that Moonshine's post was from 2008? I imagine she had surgery a couple of years ago or she has gained remission!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ga peach
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/19/2011 6:04 PM (GMT -6)   
caramelsweet

I am 50+ I had my colectomy 6-2010 and reconstruction 9-2010 after being diagnosed in the fall of 2009. You mentioned you were sexually active with no problems there. I have been sexually in active for more than 10 years. With the prospect of a new relationship on the horizon, are you troubled by gas when you are intimate, as this something that comes up rather quickly with me? Any contributions would be appreciated.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1181
   Posted 2/19/2011 8:59 PM (GMT -6)   
ga peach, caramelsweet's post is from 2009 so it's very possible they're no longer on this board. It probably best if you start a brand new thread with your question :)
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Ejay20
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/23/2011 5:30 PM (GMT -6)   
Hello everyone, i recently had a full colectomy I currently wear a bag and all that but it's only temporary, has anyone had the j-pouch surgery and what can i expect? and also to any girls who have had this surgery has your periods been weird afterwards?
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