Mom said the doctor only said that because she said I would be pooping my brains out for a while lol But the way I took it she meant my life would be horrible for the first couple of months after surgery! But reading from everyone on here, no one regrets it and its the best thing they ever did. So Im not really worried about the surgery afterwards..Im just a baby because I dont want to get a catheder or a drain tube..Do they hurt when taken out? I know that'll be the least of my worries but Im reallly scared about that! And has anyone gotten a port? I think thats what its called..Its REALLLY hard for the nurses to get an IV in me..last time I got my scope done it took them 8 TIMES haha That wasnt pleasant. So she said after Im asleep shell put a port in under my colar bone and im going with my grandma today to see what it looks like. My cousin has one soo i wanna see what it looks like.
Thank you all for your replies..The green goo is kinda funny haha What bags do you recommend? Do they make a non-see through one because I dont really want one that you can see my poop in when Im at school lol Thanks bunches =)
Thanks mom9mom =)
Im going to ask them if I can just keep it in until I go back to get my reverse surgery that way they can just use that instead of poking me again. I got my scope last Tuesday i think it was and my hand is still blue and hurts lol So should I just ask them to leave it in? Ive never even heard of a port so when she said that it was under my colar bone I was like OH NO your not sticking me there lol and then she said she would wait til I was asleep. Does it feel like getting an IV pulled out or does it hurt worse? I think when you get an IV out its more like relief haha!
Mom9mom..did they put your port in when you were awake? Did it hurt? I would imagine since that part of your body is really sensitive. And can you see it through a shirt? Sorry about all the questions lol
Hi Katrina, this is bratcat's mom. I am sure she will answer at some point but for now I can tell you what I remember of what her surgery was like.
Bratcat didn't have trouble with her IVs. She had trouble getting bloodwork everyday. Her veins either hid or collapsed. One day she had 3 sets of nurses/doctors trying to find a vein. She was poked and prodded. They sent a doctor in to take blood from her artery. Not fun at all. After that we demanded that they send someone from phlebotomy. It's amazing how easy it was for them. No pain for bratcat either.
I will warn you that what she did hate was the heperin shots. They hurt and left black and blue marks. It was one of the few things she begged them not to do. One nurse finally suggested putting an icepack on immediately after receiving the shot. Not great but definitely bearable. This may help you.
It didn't hurt to have her drain tube taken out. The catheter bothered her a bit because of the awkward place it is. She said she felt it coming out but it didn't hurt. Oh and she got her period almost immediately after surgery (and it wasn't the time of the month). The nurses (and many on here) said that it is a fairly normal occurrence after surgery. The nurses were great and very helpful. Bratcat hated having that and the catheter at the same time. Once the catheter was out and she was able to wear a pad, she was fine. She also had an epidural and was worried that it would hurt coming out but she didn't even feel that when they removed it.
Bratcat chose not to even look at her bag or stoma until the day she was released and we had to learn how to change it. Up until then, the nurses drained her bag and didn't push her to do it by herself. She had the clear bags in the hospital (this way the nurses and doctors can see what is happening). At home they are opaque. Now it is pretty interesting to watch her stoma.
It took awhile to get the ostomy/wafer thing down well. She had a few leaks, it was a bit red under her wafer, we had to change it fairly often. We went back to the ostomy nurse one early morning and she explained what some of bratcat's issues are (not a flat stomach, somewhat flush ostomy, pointing down). And the stoma changes size (and shape) for the first few weeks. We now have a pretty good routine. I still help her change her wafer but it takes a very short time and usually is done twice a week.
Bratcat was in the hospital for 6 days. She had the whole summer to recuperate before school started. Her energy level was shot. She even rode the motorized wheelchairs at the stores. She still doesn't have all her energy back. Walking up stairs, standing for long periods of time are hard. But she is marching in homecoming on Saturday.
She didn't have laproscopic surgery. She has a full incision. That may have affected her energy level. Either way, she is glad she had the surgery (and she was in remission when she had it). She is looking forward to her step 2 on November 10.
I know she plans on trying to get in touch with you. Stay well, be happy.
Also, bratcat was on the pediatric surgical floor. She had never been in a hospital before. In her case, it was a great decision. First of all, the floor was almost empty (7 children on a floor for 15). I stayed the entire time and the pediatric floor is geared towards that. We were allowed to have many visitors at a time and the nurses were pretty flexible with the hours. Her brothers (20 and 13) were able to entertain themselves with the fun things on the floor (she was not very entertaining at the time. The pediatric floor also has a "playroom". While it was much too young for her (and she really wasn't in the mood to play) the volunteer for the playroom would come around and offer things to do (small crafts, coloring, etc). They had a list of about 100 dvds and wouldn't leave us alone until we picked several. We watched a few while there. The pediatric floor also had "entertainment" each day. One day was a magician (bratcat was just out of surgery and in no mood for that). Another day they were supposed to have pet therapy but the owner was sick. They had "tea time" for the adults on the floor one afternoon. And this was all brought around on a cart for those who weren't mobile. There was also a small pantry available 24/7 with coffee, tea, broth, cereals, muffins, etc. for the parents (and kids able to partake). There were computers available. I went on but bratcat never made it that far down the hall.
Her surgeon said the decision where to recuperate was up to us and we could work it out with the hospital. The surgeon's office put the request in and we followed up at the hospital. She is planning on returning to the ped. floor in November.
We did stop in on the adult floor when we had to go back to visit the ostomy nurse. After seeing that floor (very busy, full rooms, "sick" and recovering people), she was very glad she requested the ped. floor.
Just something else for you to consider.
I was diagnosed with ulcerative colitis when I was 13 and my disease was active for 11 years straight until I had my irreversible surgery in 1999 due to bowel cancer. I have been disease free and cancer free since then but have had a few complications along the way. I have had 3 blockages. The first 2 worked themselves out, but I had to have surgery for the 3rd one which the Dr.s ended up doing a resection for. Also I was put on methotrexate to help with being weaned off the prednisone (it was keeping my rheumatoid arthritis under control and wasn’t able to walk when the dose got too low).
I too was scared about the tubes id have to have which was part and parcel with the surgery, but as mentioned above they didn’t really hurt too much when they were removed. In fact it was a major relief when the drainage tube was finally gone!
The one thing I do remember very clearly was the first morning I woke up after my surgery. The very first thing I said was “for the first time in 11 years I slept through the night....I didn’t go to the washroom once!” I literally had tears in my eyes I was so happy!
Now that it’s been 9 years with my ostomy I lovingly refer to as Betsy, I can say I am used to “her”. It took some time I will admit - but if I’m good to her...she’s good to me.
I chose to tell my friends about my disease and ostomy and for the most part the news was received very well. Although I don’t have a choice as to whether or not the ostomy can be reversed...I don’t know if I would even if I could. It’s nice being disease free for a change.
Long story short...I’m happy I had it done.