Official: bad stoma

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 10/30/2008 2:56 PM (GMT -6)   
Well, it is official.  I have a bad placed stoma. My stoma nurse just left and she even said that if it was intended to be permenent that they would re-do it.  I actually looked at it with a mirror today and it is awful.  Literally, the discharge opening is even with my skin and the "mucous" opening appears to be gone. She said that she can see that a couple of the stitches fell out or whatever and that is why is fell in. Then, my skin is horrible.  It has one specific area that has a hole-like that is filled with pus/stool????  Guys....it looks bad. So, she fit me in a super small cut of only 7/8's so the wafer would be tight to the stoma and ideally, it would be best if it would stick to my skin around the stoma....but it doesn't because the stoma is just too damp so I feel like all the stool now is just going to go under the wafer. He approach is opposite of the cleveland clinic stoma nurse who told me to cut it wider to allow for discharge.  Any thoughts? This is the 2nd step of the pouch with a loop ileostomy.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/30/2008 9:01 PM (GMT -6)   
Would a convex insert or convex wafer help to push the stoma "out" a little bit to help with the discharge? Have you looked into that?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/30/2008 9:15 PM (GMT -6)   
I am so sorry that you are having a bad time with your stoma.When are you having your reversal?When I had my stoma I got one spot about the size of a nickel that was bad and no mater what we did it would not get better.As soon as I had my reversal you could see it getting better every day.So I hope that your reversal is soon.My sister is a nurse and she told me just a few days before my reversal that the one thing you can try is a old remedey of using baking soda on the area that is bad every time you clean it.The ostomy nurse said that it dos work alot of times but since it is a old treatment that most ostomy nurses forget that it can work or thay are young enuff that thay dont know that it is a treatment.Hope that you find something that will work for you. rolleyes
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 10/31/2008 7:31 PM (GMT -6)   
I will try the baking soda. I spoke to the surgeon nurse today and explained that the discharge hole is at skin level and that 2nd mucous hole is actually gone.....so she scheduled an appt for me to see the surgeon and an e.t. nurse next friday. Hopefully someone can help. Plus, I am thinking that the surgeon may do the surgery sooner. It is suppose to be in 3 months but maybe he will do in 2 months. I certainly do not want an earlier surgery if a higher risk of complications but if he thinks okay...that would be great. Plus, I told her that I am confused because the nurse at cleveland clinic told me to cut the wafer big (like 1 1/8) and the home nurse that came yesterday said to fit to stoma which is 7/8......so that is really confusing. I do miss my last stoma because it was perfect. I will keep you all posted.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

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