stoma getting bigger??

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praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 10/31/2008 6:23 PM (GMT -6)   
ok so u guys know iv had mine since january and for the past couple of months its been a perfect 19mm....so i went to change last time with my pre cut wafer and it didnt fit! it was like 22mm. has n e body experienced their stoma getting bigger after this much time? is this a bad sign? y might this happpen? im not really diggin it too much
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/31/2008 6:43 PM (GMT -6)   
Wow, yours is tiny compared to mine, which is 35mm! I've heard it's normal for it to change sizes a little here and there, so I wouldn't worry too much about it. :-)
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/31/2008 7:08 PM (GMT -6)   

p4h--mine's the same size as yours and the precuts work great...but, about a month ago I had a similar problem and even bought a supply of the next size up (which should have fit perfectly).  You can imagine my surprise when I took out the first one, set it up and it was too BIG for me!!! (and I cannot send that box back...)  I remeasured and I had gone back down.  Now, mind you, I measured it for three changes before I ordered the new larger ones!!!

I put it off to maybe I gained a pound or two while I wasn't looking rolleyes   but I don't think it was enough to make that difference...now I am back to the smaller ones and don't have any problems! 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 11/1/2008 7:39 AM (GMT -6)   
thanks guys, i just thought it was so weird...19mm was perfect for me, andnow these few extra mm make me feel like its huuuge lol...i know its all in my head, especialy since cece said hers is 35mm lol. i guess im just a mental case. thanks for the reassurance. i still hope that it goes back down tho lol :o/
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 11/1/2008 10:01 AM (GMT -6)   
19 mm! I wish mine were that small! Since I am a "smaller person" according to my surgeon, they told me ny stoma would be about the diameter of my index finger....Not so! mine is about 28-30 mm (it varies, just like you have seen!) in diameter. Now that I am used to it, it seems small....but 19 mm, that is Small!!! :) I wish! :) :)

-E

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/2/2008 9:10 PM (GMT -6)   
idea  I wonder if shoe size has anything to do with stoma size, because I wear a size 10!! tongue
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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