bathroom trips after reversal

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MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/1/2008 7:54 PM (GMT -6)   
I been out of the hosp for 6 days(surgurey was on 10/17) and my trips are 10 times a day and my butt is hurting bad...I am using hemorrhoid cream and baby wipes to lessen the pain.
Can anyone tell me when I will start to see the bathroom less and less? I am to take a trip next week with my wife and her brothers and sisters to Branson MO to do dinner shows but I just see my self running to the rest room or waiting in line on the plain. I bought diapers for the trip and take fiber pills and antacid pills.

What else can I do it is starting to become a issue and argument with the wife as she thinks Im not moving around walking and such but I have gone out 3x in the last 6 days.
Just don't feel like its a great idea to leave too far with out being near a restroom.

My reversal on Oct 17th and I went in the ileostomy June on1997 is my intestinal track just taking longer to transition to a more normal cycle? shakehead

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 11/1/2008 9:20 PM (GMT -6)   
Actually, 10 times a day is pretty good for how far out from surgery you are. Really good, in fact. It can take quite a while for everything to calm down. Your body is adjusting, and your small intestine has to learn to do a new job. It will take time. Most people have said they feel up to doing things about 6 weeks or so after surgery. I did really well, and I was feeling better about 3 weeks after surgery, but it does take time. The good news is it gets better every day.
For butt burn, make sure you "blot", and don't wipe!! Wiping is the death of me. :)
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileosotmy switched to left side - May 27, 2008, and take down August 8, 2008. LIFE IS GOOD.


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/1/2008 11:56 PM (GMT -6)   

You are taking a trip next week and you are 6 days post op!?

What are you crazy? Excuse my bluntness but did anyone explain to you and your wife that you just had major surgery!?  It sounds like she is being a tad insensitive.  I am 2 weeks post op and still cant imagine going anywhere without a public washroom.  I had my ileostomy for 18 months and just assumed it would take at least that long for it to get back to normal.  I think as the weeks go by the length of time between movements may increase but I assume the frequency will stay the same.

I hope you can talk to your wife to ease some of your anxiety.  Good luck!  It sounds like what you are going through is normal. Unfortunately.


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/2/2008 5:38 AM (GMT -6)   
2 weeks 2 days had surgery on the 17th oct.

I just woke up today and i think the fiber pills might be working as i don't have as loose stools.

Im ok with travel my doc said she would like to see no travel till 4th week but like she said its not like the don't have medical treatment where Im going.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 11/2/2008 7:13 AM (GMT -6)   
Hi Dave - with all due respect, 2 weeks, 2 days post-op seems risky to me as well. I had my temporary colostomy reversed June of 1999 and didn't travel anywhere until mid-August. And even then, it was very risky. I didn't eat much while traveling to and from our destinations in the car and after arriving, I grocery shopped for my meals, even though that particular trip was a large family reunion. I ate my plain Stouffer's meals (turkey, mashed potatoes), ate my trusty banana and yogurt and never shared a meal with others. I was literally petrified about eating foods I knew would mess me up! What I'm trying to say here I was traveling with my own immediate family (husband, 2 daughters grades then 4th and 7th) but spending a lot of time with extended family members. I was just glad that family reunion was about 7 weeks post-op and not 2. I wouldn't have attended if it had been.

And even 7 weeks post-op was enough to do me in - I was a nervous wreck!

I was never so glad to get back home. That entire family went on a big houseboat one day and I stayed back. One marine toilet for 30 people - I said no thank you!

But anyway, you do what makes you feel comfortable. What I'm trying to say is I had the most understanding family back then, still do in many ways although 9 years later they still do not grasp why I have 12 to 15 bm's a day (still, yes still......) but at least they know I am forever changed and this is the "new" me, for better or worse.

This is purely personal, but I would politely say no to your trip and stay home. There is something so comforting about being HOME! Oh how I do love that word.......

I wish you well though, whatever you decide.

Mary/marsky (Stage I Rectal Cancer survivor, 90% sigmoid removed, 15 inches of my colon removed, along with my gall bladder, temp ostomy reversed 8 weeks after colon resection in 1999, left with chronic multiple bm's per day, IBS-D like symptoms..)

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 11/2/2008 4:42 PM (GMT -6)   
I agree with everyone else you have to be out of your mind to go on a trip at this point .Think of how much you go right now then think that when you worry about it or change your activetys for the first few months it gets alot worse.for the first two months I had to be no more then 30 sec. from the bathroom.Please take a rain check on the trip and put your health first.
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 11/2/2008 7:35 PM (GMT -6)   
Hi MDdave. I'm sorry your having problems post op. I to had my reversal done on October 23. I am 9 days post op. I too had multiple bm after my reversal. I started to go the second day post op. I went about 5 times. Now I go about twice a day. It's loose but not watery. I still have pain when I go also which is the worst part. Even though i'm not having that many bm's i still would not want to venture out so soon after surgery. Can i ask you a question? Did they leave your skin open and pack it with gauze. My surgeon did this and he said it's to prevent infection. He said it wil take about 4 weeks to close. Pain in the ass. No punn intentended. But I have to say I have no regrets about the reversal. I'm actually seeing my surgeon on Friday. Let's see what he says. The only major problem i'm having is one i get full very easily and i feel completely bloated after I do eat. Also I'm still in a lot of pain at the incision site. I was only in the hospital for 3 days then i went home. I had a foot of my small bowel removed at the terminal ileum and they also took my appendix. Poor thing. Did nothing to me. I also had my gallbladder removed december of 04. Hang in there it has to be better then what you were going through before. I know the pain of going to the bathroom 30 times a day and sitting in that bathroom in excrutiating pain. I've had crohn's disease for 7 years. was diagnosed when i was 20. been in and out of the hospital for major flares and stricture where the food gets stuck as it passes through. all i want out of life is to eat a darn salad. eventually it will happen. right now i've got to roll with the punches. i hope i've helped a little and if you have any more questions i'll be glad to try and help. hang in there. it will be better.

MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/2/2008 9:33 PM (GMT -6)   
Thank you all for you input I am still on for the trip 9am out of BWI, two hour plane trip from MD to St.Louis my b/m has slowed down with the fiber pills and I was out and about twice today for a few hours at a time.

bella my surgeon used glue to zip me up and it just now is starting to ware off, I have no incision pain just sore butt and that is getting better with hemorrhoid cream,antacid and baby wipes. My docs have always used the same incision over the past 20 years and has been cut open four times now.

I should tell you all a bit about myself I am a 42 yr old male have had crohns since age 13, had two small bowel resections in my 20 (1980's) and the lost my battle to peri anal fistulas 5 of them operated on in 3 months my body was beat down after that and my large intestines need to rest and heal the fistulas so I was placed in a bag in 1997 and never looked back ( they didn't use the bag as a treatment back then they just let you know this is it) so in Dec 2007 I was reading here about reversals and I got cleared by my docs as being able to try it (but my same doc the one who put me in the bag said we would never had considered this 10 yrs ago).
The entire time I was in the bag I never took any meds for crohns nor did I have any flare or symptoms it was like a total cure for me and the bag never stoped me from leading a full and active life from camping to teaching sports and retuning to college and joining a 4x4 offroad club to go out wheeling and wrenching on cars all this and holding down a full time job with to boys and a wife, so being down is just not in me.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/2/2008 9:58 PM (GMT -6)   

Dave,

I think that Calmoseptine Ointment would help you. You can read more about it at http://www.calmoseptineointment.com/

Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 11/3/2008 2:26 AM (GMT -6)   
Dave and bella I cant beleave how well you are both doing!I was just about chained to the bathroom for the first 2 months after my reversal(10 to 20 BM`s a day and some days alot worse)Any way I am happy everything is going good for both of you but I still have to say be carefull dave remember you just had major surgery.
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/3/2008 8:59 AM (GMT -6)   
MDdave--I don't think you are the average CD patient!!!  You have been there and done that having lived with the disease so long...which probably works to your advantage!!  It sounds like you have prepared for "anything" and can mentally handle it yeah    I would be terrified about the plane ride, but I hate to fly smilewinkgrin    Take it easy when you can so you don't wear yourself out.  Good Luck!

hendersonjames
Regular Member


Date Joined Sep 2005
Total Posts : 89
   Posted 11/5/2008 3:33 PM (GMT -6)   

Charmin plus TP with  lotion.

I had my family bring a roll when I got going in the hospital.  It's good for colonoscopy preps, too.


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 11/5/2008 6:31 PM (GMT -6)   
Sitz baths are very soothing as well. You can add a tablespoon or two of baking soda or Aveeno oatmeal powder (the type you use for poison ivy). I find a sitz bath makes me feel so much better and I actually sleep more restfully if I'm less itchy, less irritated and well, clean feeling too (after numerous trips to the bathroom).

You can purchase plastic sitz baths at any Pharmacy.

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 11/6/2008 2:52 AM (GMT -6)   
MDdave make sure that you post when you get back from your trip we all want to now if it go`s well.Good luck and we all hope you have lots and lots and lots of FUN!
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/6/2008 11:16 AM (GMT -6)   
Hi all,

I am still on my trip in Branson MO and I'm doing well It's our last night here and we have gone to a dinner show and went to a Bettles show that was fantastic. The first dinner show whe had steak and chicken with veggi and mash taters and all went well, last night we all (12 inlaws) went to Mexican place to eat and I no issues and drank a ritta.

We been eating a full breakfast each morning that comes with the Hotel and it's all good both ways.

The plane ride was fine and I was able to time all my trips to the restroom, I did have a clot in my incision that released when I missed judged the seat to the john and fell a bit but was fine after that as the wife wheelchaired me. I had to by a donut to sit on b/c my butt was sore after Mondays long day of sitting and only using tissue to wipe. I did take a sitz bath on Tuesday and it did feel good and started use of my roid cream and wipes.

Now I did have one thing that worried me, my sister inlaw who is a nurse called it spot on as I had some syrius (sp) build up just under my cut about a inch and a half long and it has been weeping so I went to the ER and they ran CAT and found a surface are build up of the stuff just under the scar and I was give some antibiotics and made the choice to have my doc at home cut and drain it and pack the wound next week. No infection just syrius fluid...ER doc said it had nothing to do with travel and more of a case of bad luck.

I been resting in the room as the other do some things I passed on like shoping but I make the dinner show and I am having fun.



Thanks all,

Dave [img]/community/emoticons/smile.gif[/img]

Post Edited (MDdave) : 11/6/2008 10:14:02 PM (GMT-7)


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/6/2008 11:22 AM (GMT -6)   
Oh ya i did meet two NR's in the Hosp out hear and one brother inlaw had CD and ostomy and the other her husband had the same and she was told he could not be reversed so she and I had some talk about it and let her know about the Humira I was on and how it would control the fistulas my Doc said 3 out 5 respond well to it...her husband also lost the battle to fistulas and like me had to be placed in the bag she said he is 27yrs and I gave her this website for more info as this is where I got mine on reversal and I am glad I found it as I never thought I could or would see the day of being reversed.

I hope the NR from Skaggs Hosp in Branson MO reads this and gets on here.

Post Edited (MDdave) : 11/6/2008 10:15:13 PM (GMT-7)


googs
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/21/2008 5:49 AM (GMT -6)   
hi i'm new here and its great to here all the sides of ur stories but im in a bit of a delimma and i dont know what to do.. i've had CD since i was 9 yrs old, i'm currently 23.. i had the ileostomy on feb 2004.. recently i have discovered that i have diversion colitis due to the illeostomy and one of the options is to do a reversal..
taking out the bag might be the best thing i can do.. i've read abt all ur recovery processes and i'm willing to do it.. the only catch here is that i'm getting married in june 09, that will give me approx 5 months to recover.. do u think i'd be up and running by that time? do you think that reversal is going to ruin my honeymoon by many bathroom trips? or should i wait until after i'm married to do the reversal surgery?
PLZ HELP
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