Colostomy with crohn's desease

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San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 11/2/2008 10:51 AM (GMT -6)   
confused  I am still having a lot of drainage from my rectum,and have an appointment with a colon/rectal specialist on the 6th of this month (November),and was wondering if anything can still be done about it,to help make the drainage stop as far as surgery goes,even though I all ready have a colostomy?This drainage has been going on now for about two years or so,and it is getting to be a  pain,as well as embarrassing when out in public and here at home.I have no warning,it just drains when it feels like it.I had a colonoscopy done through my stoma and my rectum done the first of the last month,and the doctor took a couple of biopsies,but it did not show anything.My understanding from the doctor that did my colostomy,that it would take care of all and any problems that I was having in that department,but now,I don't think the doctor knew what he was talking about.
    If any one out there,has an answer,please answer me back.I am really getting concerned about this and would like something  permanent done if it can be done.
 
                                                                    Thanks
                                                                             San's

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 11/2/2008 11:14 AM (GMT -6)   
I believe you can opt for a permanent ileostomy which would involve removing the remaining colon/rectum and sewing your anus shut.  Talk with your surgeon about it.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 11/2/2008 11:26 AM (GMT -6)   

 ONE MORE QUESTION

 HI Suebear

   confused I have a colostomy that is permanent.so can they still remove the rest of my colon and rectum and sew me shut? That is one thing that I was going to push for,but I was not sure if something like that could be done once you already had a colostomy.I thought that it all had to be in one surgery.I am surely going to push for it to be sewed shut,but I am getting tired of the messes that I have to put up with,and my butt stays sore all of time from wiping it so much.

      Do you know anything about Urostomies? I am also pushing for one of them.If you do know something about it,I would like to ask you a few question about what I am going through in that department as well.

                                                                           Thanks

                                                                               San's

Thanks for answering me back so soon.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 11/2/2008 11:56 AM (GMT -6)   
San's,
 
Yes, even with a permanent colostomy you can request to have a permanent ileostomy.  I don't know much about urostomies, sorry.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 11/2/2008 12:07 PM (GMT -6)   

 

 THANK YOU SUEBEAR;

    yeah Thank you suebear,for all of you answers,they have been a great help to me and I surely will push for it when I go to see my rectal/colon specialist on the 6th,of this month.I will let you know what he has to say and what if anything he plans on doing.

                                                          Once again,Thank you

                                                                San's


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/2/2008 9:15 PM (GMT -6)   

San's,

I had an ileostomy for 8 months before having my colon and rectum removed, so it can be done in several steps.


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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