yeh the pain is so darn bad!!! you feel like you will never be better, never even close to be healthy. I had so many probs after my surgery it was literally like being in a nightmare. I was in hosp for a while too, far longer that hoped. NG tube etc...... but it does get easier. 2 weeks post op i was still in hosp so the fact you are even using the computer and having some energy although slight to do that is a great sign.
when first home i had a ton of pillows in bed to give me more support, and i deliberatly choose the room furthest away from the bathroom. that was my exercise and it was such a chore. Walking to and from the bathroom tired me out so much!!! but i looked at my progress in weeks, i didnt do days, as that would have depressed me more. At the beginning of the week i would say well i walked more this week, i was standing more this week, i have only been to the toilet this amount of tmes, etc.... and you start to notice improvements. I couldnt hold my children which broke my heart as well, but you do eventually get strentgh back. It took me longer than imagined to recover but thankfully i am well. i have the odd bad day, but hey it beats a bad day every day right??? and now i am pregnant, something i thought impossible after the op. I am a proper wife, mother and friend again. you will be too soon. i have faith in medical science, recover relaxing and hope. You are gonna be fine again, just takes time
thinking of you in your recovery amanda xx
I am so sorry for your pain. But as the ladies have said...it Does get better! One thing that I have a hard time with as well, is being patient with myself when I am post surgery. I guess that's why they call us the "patient".. ..no irony here is there? I was prescribed morphine when I came home but couldn't take them for very long as they made me feel weird, and they were causing my blood pressure to drop dramatically. I switched to Tylenol extra strength and while it sure didn't take away the pain totally, it made me at least be more comfortable. I am 6 weeks post surgery now,, and I have to tell you I still have pain in my incision site. It hurts horribly if I sneeze or sometimes just when I have been on my feet for too long. I try to hold my tummy if I feel a sneeze coming . I wish you the best of luck, and remember to BE PATIENT WITH YOURSELF Ok? Your body has been through alot and needs time to heal.
PS: I had a bowel resection and now have an ileostomy.
no probs whatsoever anytime i will help if i can. one of the worst things i felt too were the kids. I have 4 happy boisterous boys so i had to recuperate in anotehr room just in case they got too excited etc... hardest part was not being able to hold my baby. He was oly about 9 months when i got the op, so while in hosp for that length of time i only seen them once.Especially after the ng tube was in i didnt want them seeing me like that. I was put on tramadol. 100mg i think. But they made me feel worse. so i got through the pain myself but at least i was with it mentally and not all over the place as i was with the meds. My pain was constant, but at times did get worse. Especially after eating. No matter what i ate i had pain or vomiting. about 2 weeks at home, i had to get an em appt with a doc, as i had the worst case of hemmies ever. I tell you i have had them bad since childhood but this was unimagineable pain, i cried when the doc had to examine me. Besides struggling to get on the pain the crying started before even touched that area. I do still get them every now again, even though i am not constipated, but if i am been very frequently, the appear, guess i have them for life. lol I know it is hard to see the funny side to thngs just now, but you will soon. Just time needs to pass. Sounds daft but now if i have a bad day i could scream cause im just not used to a certain degree of pain any more. thankfully these days are few and far between. Has your son visited you, and do you have help with meals etc........ For 3 weeks at home i done nothing!! watched a lot of daytime tv. Week 4 still not a lot happened but i walked around more.
Coughing sneezing laughing hold a pillow in tight to the wound area, helps cushion the muscles when the move, less painful, and as for pooping, if it burns badly fill a jug with warm water, and as you are in motion pour it down your private area and it will stop the stinging and burning. I dont like the baby creams they prescribe i used petroleum jelly. To me works wonders. Creams always sting especially when you are so raw there anyway. I still use the jelly now, for the hemmies and when it has been a bad day.
Food is something only you can decide what is good for you. try a food bm and pain diary, then you can eliminate the bad stuff.
hope it helps, email if you like
Post Edited (OHIO76) : 11/7/2008 6:20:20 AM (GMT-7)
Good evening ladies, I went to the pain mamnagment meeting and the doc upped my meds just for now, she is very understanding. I actually feel good today, emptyied the dishwasher...wow!! the accomplishment. lol..well I guess its better than nothin...i read some of your stories and so many of u have had it worse then me with other medical conditions to deal with as well. That started to get me thinking. I should be more gratefull instead of such a bummer. My son (hopefuly) will be making his way back home from my moms next week sometime...I know my mom must be exhausted. my son is 2 and he is something, let me tell ya...she wont admit it, but i know she is tired. she doesnt want me to worry. Ya, I dont know whats up with the hot chocolate thing but it helps alot. the docs sayS, I have to excuse my verbage, pass gas, but this doesnt happen very Often and i know its a huge sorce of my pain. never thought gas could and can be so painful. I take my hat off to you ladies and know, in your heart if nothing else, you have done alot to help a single mom who prior to this site felt very alone, almost depressed. How are you cecilia? Ironically my fianc'e has chrons. I know alot about that. I know around the change of seasons and the time change he gets whats called a flare up? how r u? mom9mom! you are in my toughts and prayers and you have been through alot. it made me feel bad reading what u have been through and here i am complaining. I think there is a reason I found this web site and a reason we are able to comunicate to each other. all of u have been a great inspiration and i think of this when my pain waves come. Hey! guess what ? I ate a ham sandwhich yesterday. I am having potaotoes augruatin today. yummy...nite to all hugs to all...irish mom by the way I slept 12 hours today...gggeeeezzzzz
hey irishmom, well my surgery was june 29th '07, i wasnt well until summer this year. Sad thing is i wasnt told to stay away from certain types of food etc...... that is why my recovery was long. They dont give you much after care here. i basically went straight back to normal eating, if only i had known what i was doing. it was only after reading the posts on here that i knew i had to change my eating. Thankfully my 12month appt with the surgeon was coming up, takes months anyway to get appt. I told them i thought food was a huge problem so he sent me to a dietician, got put on low residue and within weeks i was better. But then i was also put on pain meds. Yep 12months of pain before any pain relief, our nhs is fab. i was told best not to eat raw veg and fruit ever. only raw fruit is grapes and melon. everything else canned or very well cooked to the point of being mush.before the dietician i was on anti depressants. i was then put on strong doses of anti inflamotories, pump inhibitor, and another anti depressant for the pain at bed time. Within 2 and a half months i came off all pills myself and started to introduce foods again. Some still dont agree with me. but it is trial and error. i was also told never ever have coconut or pineapple. i was also told i had adhesions which would have been adding to the pain. Now the pain is gone, if i dont eat regularly i swell, and get sore, travelling also scuppers me a wee bit. but it is a better life than what i had, i found that having very wet oats before bed kept me regualr in the bathroom too, now im noticing that most cereals before bed are good for me. I probably have an intolerance to milk but it actually stops me becoming constipated. i defo can not eat stalks of brocoli, only florets, and home made soup which i love i have had to reduce the amount of lentils i put in, that constipates me too. Since the diet, i have tried raw fruit, well some, not all, some ok. b ut i dont eat lots of it, i would give milk a try just now. Even just wee bits in tea and coffee see how you go. the only way you will know is if you try it. but be prepared that your body might not like it. how many bms do you have in a day.at the start i was about 18. not very good for the poor bum, but wonderful when you could only go every 3 weeks. months after i was lucky to go once a day. now that i have sorted out my diet i average 2-3, which is just perfect. i had the same op as you. never thought the pain would be so bad. worse then anything i had experienced. But i finally climbed that mountain, and what a great view i got. i look back and think that those 2 and a half hellish weeks post op was worth it, then being rushed back in again with an obstruction, you think they would have realised then it was food based eh. how long is it since you got the op????? make sure it is 6 weeks post before doing the milk thing, you need your body to adjust.
no more rest for me lol. back to the full blown madness ha ha ha just take it as easy as you can when your little boy is back. amanda xx
p.s if you would like to email my adress is firstname.lastname@example.org