How often do you empty??

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Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/4/2008 5:27 PM (GMT -6)   
Hi..I was just wondering how often you empty your pouch.  I have ileostomy and I empty about once every hour.  It's not full (about 1/3) but I feel better when I am "empty"...is this about the normal amount of emptying, or would it be because I drink so much water??  Thanks!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/4/2008 9:03 PM (GMT -6)   
it depends on what and how much i have eaten, probably every three hours or so, or whenever i go pee.
how long have you had yours?

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 11/4/2008 9:22 PM (GMT -6)   
As Summer said, it depends on how much I've eaten - usually every 3 - 4 hours and yes, it's only whenever I pee anyway.
 
As time goes on, you will probably get lazier and less aware of your bag and so, leave it for longer before emptying.  Right now you're very conscious of it and so are aware of it filling up - in time that 1/3 full will become 2/3's full before you empty :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/4/2008 11:00 PM (GMT -6)   
sometimes i forget about mine! and all of a sudden i am like, oh no i gotta go empty this thing, and it is sooo full, i am suprised it doesnt pop right off, in fact i think it might be like that right now, i have been sitting here busy trying to figure out a stupid credit card thing for the past two hours and forgot all about it until i signed onhere!

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/5/2008 8:35 AM (GMT -6)   
Thank you for your replies!!  Summerstorm, I had my surgery on Sept 23, so it's just about 6 weeks now.  I will try and go longer between empties...it seems like I am forever in the bathroom!!! shocked

draegs
Regular Member


Date Joined Jun 2008
Total Posts : 31
   Posted 11/5/2008 10:46 AM (GMT -6)   
I agree about "forgetting" it's there. I used to empty mine much more often than I do now (and I've only had it for 7 weeks now). I was like you where as soon as it was about 1/3 full I would feel much better if I emptied it. Now, I'm like summerstorm where all of a sudden I go "oh man...how did it get this full??" I also worry about it a lot less at night and only empty once usually.
James
26-year-old diagnosed with UC in 2004
Underwent stage one of J-Pouch surgery on September 16, 2008
Now living symptom-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/5/2008 11:50 AM (GMT -6)   
only when I pee!!!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/5/2008 3:44 PM (GMT -6)   
Roddiesgirl-the longer you have had it the less often you will have to empty.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/5/2008 4:32 PM (GMT -6)   
You guys are great!!  Thanks so much! smilewinkgrin

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/6/2008 5:21 PM (GMT -6)   
only when I pee and once during the night, so it doesn't explode by morning! yeah <--- I think this guy needs a swinging bag! hehehe tongue
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Unplugged2
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/6/2008 11:51 PM (GMT -6)   
Roddiesgirl,

ileostomy at first is very liquidy. Once your brain and small colon discovers - "Hey! Wait a minute here, what happened to my Big brother (Big Colon)?" And it realizes it's gone, your small colon will start working harder with the food you eat.

You'll notice that your previous snack, lunch will dispell as soon as you eat something new. With me for example, I seemed to go immediately after I eat anything. Apple, sandwich, chocolate bar, anything. And you may even be able to smell the actually food you ate previously. Like fish for example, I can always know when that's moving on out. (holding my nose)

After a few weeks - oh say... maybe after 9 - 10 weeks your stools will become mushier. when this happens you'll go less to empty and you might discover easy ileostomy management at this point. BUT if you get the runs (just like water) - you might visit the toilet bowl 10 - 12 times a day. Eat peanut butter (works for me).

Thanks for your post.

Lonnie

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/7/2008 9:07 AM (GMT -6)   
Thanks Lonnie!  I'm learning lots of good stuff on this Forum!! tongue

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/7/2008 9:08 AM (GMT -6)   
YIKES!!  WHAT IS THAT HORRIBLE FACE I POSTED!! I DIDN'T MEAN TO...HA HA..I MEANT TO POST THE THUMBS UP SIGN...OOPS!  SORRY!

spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/7/2008 3:56 PM (GMT -6)   
I agree with what everyone else has said. As time goes on you will start to forget about it, not to mention output will start to slow down a bit. I used to have to get up during the night to empty my pouch because it would get so full, now 3 months later I can sleep through the night without worrying about it. I'll usually empty it whenever I go pee (which is a lot more than I used to since I drink way more water now) and before I leave the house. This adds up to be 5-8 times a day although it could be less. A lot of the time when I empty it before I go somewhere the bag is pretty much empty.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 11/8/2008 7:44 PM (GMT -6)   
I don't know about you but I hate emptying my bag, it's a pain! But I usually do it every 3-4 hours, when I go to the bathroom. I had my surgery Sept. 20 and so I'm still new to this too. I have a feeling that just when I get this all down it'll be time for the take down (Dec. 15). Can I ask a few questions? I think it will also help Roddiesgirl since we had our surgeries at the same time almost. If it's inappropriate for me to post these questions on this thread, I apologize in advance. Just let me know.

Can the pouch explode if it gets too full or if you are laying on it? (Like at night)
What size/kind pouch do you use?
How often do you change your wafer?

Roddiesgirl, I'm interested in hearing more of your story since we had our surgery so close together! How are you coping? Is yours temporary?
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Scheduled for Total Colectomy - September 22, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/8/2008 7:49 PM (GMT -6)   
I've never heard of a pouch exploding, but I think pressure would cause the wafer to pull away from your skin and cause a leak that way.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/8/2008 9:06 PM (GMT -6)   
I've never heard of a pouch exploading, but when I was in the hospital (due to a complication with steroids, about a month and a half after my surgery) my bag pretty much popped off. They were giving me IV fluids and I had no idea how quickly the bag would fill up when they did that. Well, it started leaking all over the place and the ER nurses were in no hurry to change it, not to mention they had no ostomy bags in the ER or any knowledge on the matter. When they finally tracked down a bag it ended up being a urostomy bag (I think) which was a pain for my skin since they had to take it off once they figured out there's no way to empty it...

I use the Hollister 1 piece convex. It's what they sent me home with and works the best for me out of all the supplies I've tried. The number is 8628 if you wanna look on the website. I also use the adapt rings (pretty sure this is the same think as an eakin ring) and it helps prevent leaks. I can usually get 4 or 5 days with one bag if I'm not having any leaking issues. My wafer doesn't completely stick on the side where my bellybutton is so I wear a bealt to help keep it down, this also helps prevent leaks.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/8/2008 9:06 PM (GMT -6)   
you can sleep on your tummy, i do. I always turn myself over, somehow, when the bag starts to get full.
I change my whole thing on either wed or thursday, and sunday or monday, but usually it's sunday and thursday.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/8/2008 10:44 PM (GMT -6)   
I also sleep on my tummy a lot and I find myself on my side or back when I wake up in the morning. So, my body "knows" when it should roll over even when I am sleeping. I know what foods cause it to speed up and what don't.

I use Convatec 2 piece, with Eakin Seals and a convex insert in the flange.

I change my wafer about every 5-7 days.

Ask away, that's what we are here for!

Good luck to you,
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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