anxiety after take down

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spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/5/2008 8:27 PM (GMT -6)   
Hey guys! I'm having my ileostomy take down surgery on Nov. 14th (8 more days, woohooo!), but I'm actually pretty scared that things will go back to how they were when I had UC. Now, I know this is all in my head because every single person I've talked to has said they love their j-pouch, don't have pain, and can control their bowels (obviously not from day 1, but I've been warned to pretty much expect accidents at first and have come to terms with that possibility). So really, there's no reason for me to be nervous, but I've gotten so used to having bathroom anxiety when going the "normal" way that I can't help myself. I don't want to worry myself sick after this surgery so I'm thinking about anti-anxiety meds. Has anyone taken something like that after surgery? Did it help? Does anyone have any other helpful advice or words of wisdom? Thanks!
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 11/5/2008 8:34 PM (GMT -6)   

Lots of us had to resort to short term medication for the surgery/recovery.  I had the same fears you did and did suffer the typical recovery challenges but I got through it.  Remember that improvement will come in 6 week increments.  Don't measure recovery in terms of days.  It will get better, significantly better.  Find things to do to get your mind off your butt.  For me it was engaging back in exercise and travel; things I couldn't do with UC. 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 11/6/2008 2:57 AM (GMT -6)   
Suebear is right most everyone takes anti-anxiety med`s after surgery it`s a normal reaction after major surgery.Good luck.
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/7/2008 7:29 AM (GMT -6)   
babe--I don't have a J-Pouch and never took any anxiety meds before/after any of my surgeries...BUT I am totally for asking your doc for help when YOU need it. Don't live with the anxiety, it isn't good for your health and recovery. And like suebear said, it is usually short term...

spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/7/2008 12:50 PM (GMT -6)   
Thanks guys, I'm going to send my surgeon an email in a minute and see what his opinion is. I know I won't need it in the long run, just the first few days. I wasn't worried at all after the first surgery because to me it's not as important as far as recovery goes (i.e. no need to retrain the bowels/sphincters). But this one is really going to determine how the rest of my life will be. Granted,I know I could always opt for a perm. ilieo, but I really really want this to work.
I think the real reason I'm worried is because none of the UC meds ever worked for me. Doc's would always say "oh this drug has such a high success rate, it'll have to work" and then it did nothing for my symptoms. So I always think of myself in that percentage of people who don't get relief from medical intervention. Luckily, surgery is not the same as meds and I feel like I'm in the "success" percentage after the 1st surgery. I'm crossing my fingers that the same will be true after the reversal.
I'm totally the type of person who will worry over the possibility that things will go wrong, and I don't want that to have a negative influence on my recovery. My dad is a licensed hypnotist, but hypnosis hasn't been enough to keep me thinking happy thoughts.
Again, thanks for the input :)
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 11/7/2008 2:43 PM (GMT -6)   
Just remember that for the thousands of us who had surgery prior to you, meds failed all of us. I know it's hard to not think of yourself as unusual but you aren't. I was the only UC patient my GI ever lost to surgery. He just couldn't understand why I couldn't get into remission when meds worked for all of his other patients in the 28 years he had been practicing.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/7/2008 3:51 PM (GMT -6)   
Man, doesn't it suck to be that person that nothing works for? Before I tried 6mp/imuran everyone kept telling me it was their miracle drug and put them in complete remission. When that failed and I went on to Remicade everyone told me THAT was their miracle drug. I even sat next to someone getting Remicade in the infusion center when I was there for iron and he was saying that Remicade took away all his symptoms. I was soooo jealous. But on the bright side, now I won't have to take meds (again, I hope) anymore and won't have to worry about all the nasty side effects and risks most of the UC meds have. I don't even know how my UC got so bad because I was always trying something to keep the flare under control. Apparently my colon was one of the worst my surgeon had ever seen. He told me it's not surprising that even steroids didn't completely put me in remission.

I guess I just wish there was an easier way to take care of this. I'm just glad surgery is a long term solution and I won't be wondering for the rest of my life "when's the next flare going to hit?" like I know I would've been if I was simply in remission.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008

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