Surgery date comes to soon........well sort of

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dafarmer
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 11/6/2008 9:07 PM (GMT -6)   
Hi everyone

Has anyone else gone through some of my experiences listed below?

I posted earlier about doctor recommending I have my large colon removed and j pouch installed as bowel cancer preventative measure.

My present bowel health is good with no problems for several years. Last scope indicated some dysplasia, but not cancerous. This was first new signal of some change.

In short…….. on Oct 29, 2008 I signed the paper to book elective surgery for early January 2009. Doctor said time slot for five hour surgery is not easily come by. So I kind of expected booking date to be later instead of earlier (sometime in the future).

Unexpectedly I got the call on November 5, 2008 that surgery is booked for December 4, 2008. Wow….. I was not ready for this. I was shocked and shaking. Reality suddenly hits home.

For next 24 hours I went through several phases from denial, depression and sorrow, to let’s get it over with, to this would be better than dying of bowel cancer etc.

I have had many surgery’s for bone fusions (RA), total elbow replacement, gallbladder removal etc. After all of these operations, I knew life would improve almost immediately. The J pouch procedure as a cancer preventive in long term is very positive, however when I wake up from this surgery, my life will be very different. It would be stretch to say life has immediately improved. This is the difficult truth to accept.

Needless to say, surgery will proceed on Dec 4th………out it comes ….. in goes pouchy and temporary colostomy (think I will call him George)…. “George be quiet” “George what are you doing” “Ohmygosh there goes George again” “Sorry, it’s just George”.

Last few days I have purposely been busy telling everyone I come in contact with, what I am going to do. Initially most people question my sanity until I have chance to explain the whole rational. I find it sort of a debriefing moment.

Any thoughts……………..

dafarmer
70 Years and growing


Unplugged2
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/6/2008 11:11 PM (GMT -6)   
Hi Dafarmer,

I just joined this health forum only moments ago. I have a lot of experience on the colon category. So I thought I'd rank a bit and also give some advice. I have had rectum cancer - colostomy put in (hated it). Next had colon cancer in large bowel - ileostomy put in (much better, but...). I can go in much more detail, however I'd rather give you my STRONG opinion on what I'd do if I were you.

Your miles away from ever getting cancer. Cancer grows very slow. I wouldn't go with your surgery, unless Doctor's can prove to me it's alienated. And even still (here's some good news for all the early detected colon cancer patients), it take's this alien 4 - 5 years before it will manipulate other parts of your body. BUT Don't SIT ON IT! Do something about it NOW!.... meanwhile relax... you're ok.

Dafarmer, you can start eating plenty of fiber and yogurt right now. Your colon loves this STUFF! It's not unusual to repair itself. Your body can clean you up real well with a mandatory diet. Natural grains and fibers, yogurt have cured and put up millions of courageous anti matter that prevents this from ever happening again. Trust me yogurt works miracles.

You must Eat fruit everyday! - all fruit and fruit - Best for colon is Tomatoes, Bananas, Mangosteen Rind, and Acai (pronounced A-sigh-ee). In 2 weeks you'll feel like a MILLION BUCKS. Do this religiously for 3 months - go see your doctor. Arrange new test. I'll bet my doghouse the Doc is going to tell you that it went dormant. If that's what he tells you, YOU'RE WINNING!

Thanks for letting me rant on your post. I'll probably say a few words about all the garbage ostomy products we must use. lol

Cheers and good luck.
PS: That is my strong opinion and suggestion.

dafarmer
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 11/7/2008 6:48 PM (GMT -6)   
Hi Unplugged2

You certainly have given us something to think about.

Possibly some clarification is warranted...........

I have history of UC (in remission), RA (under control), Psoriases (in remission) and Sclerosing Cholangitis (narrowing of the bile ducts is active...never going away). All of these four conditions add up to "psoriatic rheumatoid arthritis". People who have this kind of history have 200% greater chance of developing bowel cancer. As well cancer of the liver is significant risk. For these reasons doctors have good reasons to reduce the risk of cancer by eliminating one potential site, the large bowel. When the last scope indicated the first signs of change.....this was like pulling the trigger first..... get it before it gets you.

Having said this your comments are valid and valuable. I expect someone in my family has or will develop UC related problems sooner or later. Your advice could be very valuable for my family. I will make sure your remarks are shared with others.

I like yogurt and natural grains. I hope I can still enjoy their benefits after installation of the j pouch.

Thanks again
Doug
70 Years and growing


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 11/8/2008 12:15 PM (GMT -6)   

I had jpouch surgery for refractive UC; not dysplasia or colon cancer.  Since my UC was pretty bad I consider the jpouch a blessing.  My life is very good.  You can meet others who opted for jpouch surgery due to dysplasia at www.jpouch.org  Not one of them has regretted their decision to have surgery in light of their diagnosis.  Life with a jpouch is not perfect but it allows me to backpack and travel which I couldn't do pre-surgery.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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