Update and take down questions

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 11/8/2008 7:14 PM (GMT -6)   
Sorry I haven't written in a long time, I think I've been avoiding the site and anything to do with all this.  I'm  dealing with the temporary ileostomy just fine, but I've had so many complications and so many trips to the dr. I was tired of talking about it. 
 
I ended up back in the hospital for two days due to dehydration and an ulcer.  I was in so much pain from the ulcer it was just so unbearable. Now not only do I have food restrictions from the colectomy, I now have food restrictions from the ulcer. FUN FUN!! 
 
There is good news however, I can honestly say I am doing much better now and I am getting better every day.  Now my recovery is simply psychological.  I still lay around and don't do much because I'm afraid I'm going to be in pain.  It's taking me a while to realize I can do things now.
 
I met with my surgeon last week and she has me scheduled for the reversal on December 15.  She said she will have me come in on Dec. 1 so she can scope my intestines by going through the stoma.  She wants to make sure I'm healed enough from the tear that I can go through with the take down. 
 
So, for anyone who has had the reversal, how was it compared to the colectomy?  Better, I hope.  Can you share your experience with me?  I'm excited to be rid of this bag, but nervous about the surgery so any info you can give would be appreciated.
 
Thanks!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Scheduled for Total Colectomy - September 22, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 11/8/2008 8:07 PM (GMT -6)   

Hey Amanda!

  I am 3 weeks post op from my ileostomy reversal.  I had the ileostomy for 18 months because of Crohn's disease and a stubborn perianal abcess.

Its been a tough go but I am definitely feeling better!  I am finally catching up on my reading, its so wierd to have my hands free while on the toilet again! smilewinkgrin

I am sticking to low fiber foods for the next 4 - 6 weeks and will slowly try higher fiber foods as time progresses.  I was weak when I first got out of the hospital but am taking daily walks and working at getting my strength back up. 

Best of luck!


October 2003 - Dx/ed with Crohn's disease
April 2004 - 2ft of small bowel removed plus complications due to abdominal abcesses - 6 weeks in hopsital
October 2006 - perianal abcess, surgery to have drain inserted
February 2007 - abcess wont heal surgery for temporary ileostomy, started Remicade
Oct 16th, 2008 - Surgery to reverse Ileostomy - in Remission first time ever!!
 
 
 
 


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/9/2008 8:11 AM (GMT -6)   
hi Amanda,
welcome back. I am so sorry to hear about what happened. I hope everything goes well for you. I am so glad to be hearing from you. I know what it is like with the food intolerances. I hate them so much. I hope everything goes well with your reversal. I am glad that you are doing much better now. i know even with the hardships, trials and errors, I am feeling much better because i am not constipated no more. I have had alot of diareah, and just recently I was put on Metamucil, the powdered form where I mix 1 tablespoon of it into water. The powdered stuff is great because it bulks up my stools to where they are now soft firm and I only go to the bathroom 5-6 times a day as opposed to 10-20. But still, I found if I ate the foods I could not tolerate, I go back to having bowel movements 10-20 times a day, but because the stools are semi-formed, it hurts my butt even more and I get so dehydrated I get sick. Pretty much, The metamucil helps with forming the stools better, and as long as I don't eat the foods I cannot tolerate, I only go 5-6 times a day. Well, I hope evrything is much better for you now, and I am very glad you are back. It is so nice to hear from you again.

july708
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/9/2008 8:39 AM (GMT -6)   
Hello everyone! I'm new to the site. I have Crohn's Disease and in July I received a temp. ileostomy. I had all of my large intestine removed except a small portion that is attached to my rectum and now attached to my small intestine. I'm already "hooked-up" inside my body and when I go for the reversal (in 1 week), all my surgeon will need to do is tuck my "Stomie" back in me and sew me up. Is there anyone else out there that has had what I have???? I'll be glad to get rid of the bag but I AM VERY WORRIED!!! I was told that I will have a quick recovery but after reading some of the responses I'm having second thoughts (not about the surgery, just about recovery). I am a school administrator and worry that I'll not be ready to go back to work when I expect myself to AND the BATHROOM PROBLEM!!! Since having my surgery, I've gone to the bathroom the "regular" way (maybe about 6 times since the surgery) plus having a bag. It's strange but I have....when I have gone the regular way, it has been like water and LOTS OF IT. Sometimes I had rectal pain with it....BOY DOES THAT HURT! Can I expect these things when I have the reversal and go the "regular" way all the time? Also, I lost about 20 lbs. and gained 10lbs. back. Do you think I'll lose weight again or gain weight? Will I be in alot of pain? I was in extreme pain when I had my surgery. Thanks for reading.

MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/9/2008 11:50 AM (GMT -6)   
Hi Amanda,

Like Angela I am also 3 weeks out and went in my bag 1997 do to perianal abces.

I was going alot 10-12 times in the Hospt and had a diaper on somedays and at night b/c I couldn't make it out of bed in time with the NG tube and IV hooked up.
I had a set back so they had to put the NG tube in to clear me again you should not have one and only a IV.
Once the NG and IV was out I was able to move more freely and make the trip to the bathroom, it was painful for me as my large intestine and anal area had not been used in 11 years and I had some stricture down there...its better now with respect to passing a more formed stool.

Today has been a bad day for me and a lot of loose/watery stools almost like I have the flu...one concern I have is I have been feeling sick and queasy since I been home 2 weeks now and I don't know why so I will be asking my doc on Wed.

I have been eating ok and been trying most things I think the oat meal helps keep me more solid, I take fiber pills and antacid to cut down on the acidity in the stools also have wet wipes with aloe and hemorrhoid cream all to help with the butt pain...note don't use toilet paper much or at all use the wet wipes, I discard them in a grocery bag that is in the bathroom garbage container as I am on a septic tank.

I have days where I think I should not have done this and worry some about my future but the people on here and my year of research all tell me it will get better.
I am going to ask my doc if I can get on Qestrion (sp) to slow my system down as I don't see me making it around my job with out something.
My mom has CD and uses it every morning with juice, my brother and sister both have colitis...oh yea my fathers sister had CD she passed away last year of natural cause,
So my DNA is shot from both side of my family.

I think I will post up about the nauseating issues I been having and see if others have symilar issues. shakehead

Sorry bout the long babble but I'm laying in bed today board and feeling sick.

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 11/10/2008 10:43 AM (GMT -6)   
Psygirl it's great to hear from you too! It's nice to know I'm remembered! :-)   It sounds like you pretty much have this figured out with the metamucil and you are doing much better.  I'm so happy for you.  I can't wait to have my surgery and then you can give me some more tips.
 
MDdave, thank you so much for responding and sharing your experience with me.  I'm so sorry to hear you were having such a hard day.  I hope today is a better day for you.  You mentioned the NG tube, I had that in my first surgery, I sure hope nothing happens that I have to have that again. Wasn't it just awful?  cry   I have a couple of questions about your post.  What is Qestrion? I've never heard of that.  Also, forgive me but I don't know what CD is either.
 
Has anyone else taken Reglan?  I was prescribed it for nausea, but it also helps things move through the intestine faster so I still take it.  It works wonders for me if I eat something that doesn't agree with me I can take that and it moves it through much faster and I feel better quicker.  It makes everything liquid though, but I don't mind that; I'm on the bag remember?
 
I can't wait till December 15!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/10/2008 4:06 PM (GMT -6)   
2 Ris K..... sorry I spelled it wrong its questran http://www.irritable-bowel-syndrome.ws/questran.htm


CD=Crohn's Disease
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