Ihave had mine since april 2007 it took me forever to get to where i could change it myself, i could not comphrend how i could do that alone. but out of necessity one day i figured it out! and i have it down pat now, takes me about 8 minutes. If you want i will walk you through how i do it.
anyway, alot of people on here swear by eakin seals, i haven't tried them. It'spossible you may be using too much paste, i did that a few times. it's pretty much a trial and error kind of thing.
Is your output really watery, i find it leaks more if it is watery or i am really gassy, then i have more seepage.
I wear the hollister new image lock and roll, that's what i started with and i really like it. i had the one with the clip is what they put on me at the hosptial and i hated that!
1st of all do not feel guilty about not working. I'm 47 and I had been working and was the main support for our family (husband and 5 kids) for 17 years when I went into the hospital for a one day microdisectomy on my lower back. Woke up 8 days later in ICU where they said a lung machine had kept me alive and with an ileostomy. That was in April 08, spent a month and a half in the hospital. I had my reversal in September, Needless to say I am still not working but with the support of my husband and family things have begun to work out. They will for you also. Do you have a counselor? They sent me to one ( which I did not believe I needed) and she has helped me tremendously with the issues I had letting others care for me and not working any longer. My doctors recommended chewable vitamins and pedialyte for the hair loss. This helped slow down the hair loss for me. You can ask your dr about it. If you have a prescription plan they can write you a precription for the pedialyte to defray the cost.
My husband had to learn from the ostomy nurses how to change the appliance. I also had alot of seepage, had to stop using the skin prep, change every three days. The amount of stoma paste made a difference. It really is trial and error. I found that if my bag became more then 3/4 full it would leak in my sleep. We began to set the alarm clock for every four hours to get up and empty it. Sounds silly but I slept better.
Hope this helps a bit. I also felt that it was a nightmare but please remember you are not alone.
LesaJT--sorry to hear you are having such problems! Glad you found this forum...it has some of the best info regarding ostomies!!
I have a few questions for you:
1)Do you use immodium? It helps to keep your output thicker, which in turn helps your skin.
2)I looked up your product that you are using and I also use the Hollister brands, and love the lock and roll and their filter actually works, but I am not a fan of the cut to fit, IF you have a ROUND stoma. I read that your output comes out to one side, but when the wafer/pouch is attached should still drop into the pouch. Is your stoma an odd shape? If it is round, I would suggest using a wafer that is the appropriate size. They tend to have more durability when you use a wafer with convexity. I used to cut to fit, then went to the "mouldable" version, but with my need for convexity I wasn't getting the holding time right around the stoma. Once I switched to the correct size, along with an Eakin Seal instead of paste, I stopped having problems with my skin. I think summerstorm also mentioned that using skin prep can also weaken the seal...
3)Do you know if you eat a marshmellow about 15 minutes prior to changing your appliance you should be able to get through the change without it passing any stool?
I hope some of these suggestions help...let us know how things work out for you!
summerstorm--I do buy mine precut ever since I had to switch to a convex wafer (and after the swelling went down/stopped changing my stoma is round)...and I found that, at least for me, it doesn't deteriorate as much right around the stoma...The Eakin Seal is also helpful (I am lazy and it is SO much easier then paste).
I, too, had a lot of hair loss. It hasn't stopped completely yet, but not taking any meds has been the only help...I also cut about 6 inches off which makes it less noticeable.
I set up a box with all my supplies and used it on Wed. with my daughter as stand by to be a gopher. I did it by my self and it took am hour and had to change it twice. The first one split and was defective. Another one in my kit was defective and when I tried to pull the plastic off it pulled the wager away from the tapeso we had to find another one quick. I only had a couple left. I a ordering a size bigger as my stoma is swelling up and over the 2 1/4 inch. So went to the 2 3/4 inch to try of the Hollister. The one I put on lated 2 days. We took it off last night and my husband helped me since I was tired and have a bad cold/sinus infection. Apperently the lower side of my wafer was letter the liquid onto my skin and when we changed it my skin is very sore and broken down. Seems better today. I knew I couple not sleep last night with it hurting itching so we changed it at 9 pm. Thanks for all the support and ideas. The marshmellows seem to work to slow the out put while changing the wafer. I am still not sure how to use the the seals.I found a couple of samples. They are small 2 inches. We are going to try it soon. Any suggestions?