Any suggestions?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/15/2008 12:34 PM (GMT -6)   
Hey! My ileostomy surgery is scheduled for Wednesday and i think its normal to say im TERRIFIED Im 17 and havent been through much until I got UC. Im getting a temp. ostomy. I was wondering if anyone had any advice about surgery. I was reading on here about an NG tube..scary! and sounds painful ..i know im going to have a catheter and drain tube with like 3 IVs afterwards..but is there anything that i should expect that the doctors didnt tell you? 
 
And yesterday i was looking on www.ostomysolutions.com and theres this really cool ostomy belt on there that hides the bag. Anyone used this? Im thinking about getting one =)
 
Thanks alot :-)
 
4 days til im UC FREEEE!!
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
 
 


Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 258
   Posted 11/15/2008 1:18 PM (GMT -6)   
Hey UC
 
I purchased a few of those belts from Ostomysolutions.com.  They worked fine, but they are a bit bulky.
 
Then I discovered Tubetops.net.  You should be familiar with those being a young woman.  They worked better for me and were about 1/3 the price.
 
Good luck with your surgery.
 
Tom

bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 11/15/2008 2:57 PM (GMT -6)   
HEY UC,
 
GOOD LUCK WITH YOUR SURGERY.  I KNOW IT'S NATURAL TO FEEL EXTREMELY TERREFIED AT THE WHOLE PROCESS BUT DON'T WORRY EVERYTHING WILL BE FINE.  I HAVE CD NOW FOR 7 YEARS.  I WAS DIAGNOSED WHEN I WAS 20.  I RECENTLY HAD A TEMP ILEOSTOMY DONE THEN I HAD THE REVERSAL about A MONTH AGO.  IT WILL BE HARD AT FIRST BUT AS SOON AS YOU'RE GETTING USED TO IT THEY'LL TELL YOU IT'S TIME TO REVERSE.  BUT YOU'LL BE FREE FROM PAIN AND MILLIONS OF TRIPS TO THE BATHROOM.  I'M NOT GOING TO SAY THAT EVERYTHING WILL BE PERFECT BUT IT WILL BE GOOD.  ANYWAY I USED THE BELT FROM HOLLISTER AND I NEVER USED ANYTHING TO HIDE THE BAG BECAUSE YOU CANNOT SEE IT THROUGH YOUR CLOTHES ANYWAY.  GOOD LUCK WITH EVERYTHING.

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 11/16/2008 8:47 PM (GMT -6)   
Any type of surgery can be terrifying. But, there are a lot of great people here that will get you through the healing process. You're not in the alone!
 
Good luck with the surgery. I'm sure you'll be just fine!!!

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 11/16/2008 10:29 PM (GMT -6)   
Hey UC_16,I know surgery is scary, especially at your age. Rest assured I was terrified too and I am a wee bit older than you. Remember that you will be set free from UC and that should give you hope. Surgery was the only thing that cured my UC. I had gone through many years in such misery. Looking back,I should have just agreed to have it done sooner. With a reversal surgery down the road, you will be a "new woman." I wish I could have had that but I waited too long. My advise is to get up as soon as the doctors say it is okay. The more you move the sooner you'll feel like your old self.

UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/17/2008 12:25 AM (GMT -6)   
2 more days yeah
 
thank you all for your replies. i know this surgery will heal me and im trying to think about all the positive things and occupy myself to keep my mind off it...which obviously isnt working since its after 1am and im still awake haha
im taking my labtop to the hospital with me so ill post when i get there and after surgery as soon as i can.
 
everyone here has been such great support and given amazing advice. thank you all so much. i dont know what i would do without HW and all of you on here :-)
 
XOXO
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 11/17/2008 1:22 AM (GMT -6)   

Katrina, wishing you all the best for a quick and speedy recovery. If Bratcat is any indication, you will be so much happier. Yes you will be in pain afterwards (yay for pain meds). It is an adjustment but soon after you'll be feeling great. Wish we lived closer, we would come visit! At least we can keep in touch by computer.


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/17/2008 5:41 AM (GMT -6)   
Katrina--You are NOT alone!!  We will be thinking of you on Wednesday and praying for a speedy recovery...you are on your way to the beginning of a great life UC free!! 
 
Yes to the walking and when you don't think you can walk anymore, walk another lap!!  It will be the key to getting out of the hospital quickly smilewinkgrin    Pain meds will be your friend for a few weeks so make sure you stay ahead of the pain and take them before you are uncomfortable...before you know it, you will be going longer and longer between taking them!
 
 

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/17/2008 6:14 AM (GMT -6)   
Katrina,
Good luck on Wednesday! I'll be thinking about you and praying for you.

One thing the doctor didn't tell me was that the stoma can take up to two weeks to start working. Mine was a slow-poke and took 10 days. Don't let them take you off the IV fluids too soon, because the first couple of days that it does start working, it puts out A LOT, and you don't want to get dehydrated. Once you start eating food, the output will thicken and things will slow down, too.

Oh, another important thing, you will definitely want to shave the little blonde hairs on your belly before surgery, because it is sooo painful to rip the hairs out one by one the first time you remove the wafer. Just shave the side where the wafer is going to go, which will be to the right of your belly button. Trust me, this will save you a lot of pain.

Also, bring some gum to chew and hard candies to suck on. When you can't have food, that helps stimulate your digestive system. And don't forget to walk, walk, walk! The sooner your stoma starts working, the sooner you can go home!

Everything is going to go great! I'm glad you're bringing your laptop, so you can keep in touch.

You are soon to be... UC-free at 16!

:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/17/2008 8:24 PM (GMT -6)   
2 more days :-)
 
Cecilia and Ohio
thank you for remembering me in your prayers im 17 now btw haha yeah So ill have to change my screenname to UC-free at 17 lol Good tip about the gum and candy Im deff going to stop on the way to the hospital and get a bunch of hard candy. Am I aloud to eat hard candy when im on a liquid diet?
 
I have to be at the hospital around 9 tomorrow and Im guessing theyre going to start an IV then? How long before any of you could get up out of bed? And how long before your aloud to take a bath/shower? I cant stand I go without taking a shower and washing my hair for 2 days so Im thinking my mom can help me give a bed bath or something lol..a little embarrassing but better than stinking turn
 
Bennie, your daughter had her surgery done in Cleveland right? Im getting mine in Charleston. I was going to have mine done at the Cleveland Clinic with Doctor Fazio but he has cancer so he couldnt do it. sad I think im in good hands though. The surgeon thats doing my surgery mainly does babies so if she can perform surgery on babies she should be able to do mine without a problem
 
Well its a little after 9 and i have to get up around 5 so ill post again when i get to the hospital tomorrow. Pray that everything goes as smooth as silk smilewinkgrin Gotta go pack my clothes
 
Goodnight XOXO
 
 
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 11/17/2008 8:46 PM (GMT -6)   

We are on Long Island. Bratcat had her surgery at North Shore. I don't know anything about going in to the hospital the day before. Bratcat had to be there 2 hours before surgery. Bring an iPod or some mp3 player. You can listen to music that makes you feel good and it also helps drown out some of the routine hospital noise.

Take care,
Bennie


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 11/17/2008 10:01 PM (GMT -6)   
HEY BENNIE I HAD MY ILEOSTOMY SURGERY DONE AT NORTH SHORE MANHASSET ON LONG ISLAND AS WELL.  MY SURGEON WAS DR. CALIENDO WHO IS A PARTNER OF DR. PROCCACINO.  DID YOU USE THESE SURGEONS AS WELL?  WHAT A SMALL WORLD. 

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 11/17/2008 10:36 PM (GMT -6)   
Hi UC at 16! Just wanted to tell you one thing that I hope is helpful...less is more!

I received my temp loop ileostomy July 2007. (I still have it because I'm still going through colorectal surgery. I have a rectovaginal fistula that just won't heal!)

Back in July-Sept 2007, I was receiving care from home health nurses. A couple of them were always trying to convince me to use lot of paste and powders around my stoma. This caused me to have allergic reactions and irritation. After getting on Healingwell.com, I learned from several people that it's best to use less. Don't be forced to use too much.

Good luck with your surgery.

Mary

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 11/18/2008 5:43 AM (GMT -6)   
Bella, my daughter's surgeon is Dr. Procaccino. We haven't met Dr. Caliendo yet but did meet Dr. Serur who is also part of the group. I would highly recommend Dr. Procaccino (and I guess the whole group) to anyone who is looking for a surgeon.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 11/19/2008 3:30 PM (GMT -6)   
WOW THAT IS SO WEIRD BENNIE. I WAS SUPPOSED TO HAVE DR. PROCACCINO DO MY SURGERY BUT HE WAS GOING TO BE AWAY ON VACATION AT THE TIME SO I DECIDED TO HAVE DR. CALIENDO DO IT. I WAS IN THE HOSPITAL AT THE TIME AND ON SOME HEAVY DUDY MEDS FOR A MAJOR FLARE. I WAS RUNNING OVER 100.5 FEVER THAT I WAS BEING PACKED IN ICE BECAUSE THE FEVER WASN'T GOING DOWN. THEY DECIDED TO DO THE SURGERY THEN AND DR. PROCACCINO WASN'T GOING TO BE THERE. I LOVE DR. CALIENDO. AWSOME PEOPLE. WHEN DID YOUR DAUGHTER HAVE HER SURGERY?
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 17, 2017 4:34 PM (GMT -6)
There are a total of 2,883,395 posts in 316,386 threads.
View Active Threads


Who's Online
This forum has 157510 registered members. Please welcome our newest member, Pain101.
456 Guest(s), 10 Registered Member(s) are currently online.  Details
Jake1977, Inderjit Singh Madahar, Serenity Now, JoJoLA, Almost a 10, Girlie, Lady19861, SueCAll, worryboi, lapilot


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer