This is not unheard of. My guess is that your surgeon wasn't too experienced with the jpouch procedure and did not want to take away too much of the rectal tissue to compromise a jpouch. So, essentially you still have UC even though your colon is gone. Your next surgery should address that issue. It will be important to shop around for an experienced surgeon so that the surgery is a success. You can visit www.j-pouch.org and ask for recommendations of surgeons in the country you are now living. Most people on that board live in the US but we do have some Europeans, Asians, and Australians. Whether or not you choose to have a jpouch, you still need to get this offending tissue surgical removed.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free