Tomorrows the day

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UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/18/2008 10:41 AM (GMT -6)   
Well, im officially at the hospital awaiting lovely tomorrow..
 
One of the surgeons came in to see me and i asked him about the port he talked about putting in when i came in to schedule my surgery and he was kind of rude and acted like he didnt care whether i wanted it or not bc i told him i REALLY didnt want it..that kind of ticked me off a little but others on here have said that you have to tell the doctor what you want and sometimes you have to be kind of rude about it..im pretty sure they arent going to like me after a couple of days scool   ahaha
 
Tomorrows the big day!! yeah Ill finally be UC Free..Wish me luck ill post on here later.
 
P.S. Im STARVING
     and its only 11 30 ahh! rolleyes   i have a feeling this is going to be a looooong day haha
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/18/2008 11:20 AM (GMT -6)   
Wishing you the best of luck Katrina!  Hope you don't get too hungry today, and that it passes quickly for you.  Yeah, doctors can be a real different breed sometimes, can't they?  They should be in our shoes for abit to see how it feels..maybe then they would have some compassion!!  Good luck tomorrow!!....Cheryl

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/18/2008 11:50 AM (GMT -6)   
GOOD LUCK!!! i hope all goes well for you!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/18/2008 1:05 PM (GMT -6)   
Katrina,
Here's where the hard candy and gum come in handy! wink I would ask your doctor if they can give you a PICC line instead of a port. It goes into your upper arm and is great, because they can give you fluids and pain medicine through it, but also draw blood from it, without having to stick you with a bunch of needles.

Good luck tomorrow!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


bratcat
Regular Member


Date Joined Jan 2007
Total Posts : 74
   Posted 11/18/2008 1:06 PM (GMT -6)   
Good luck!!! Keep us posted!!! :-)
Diagnosed with UC 10/12/06
Daughter of Bennie
17 years old
Flared 3 times in a year and a half tried almost all medicines
Current Meds:None!!
JPouch Step 1 of 2 on July 3


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/18/2008 5:16 PM (GMT -6)   
They're going to put in a central line under my collar bone..i tried to argue with him but hes evil =( i havent seen him smile yet lol just drank my first cup of miralax at 5 and starting my 2nd cup soon..YUMMO

Bratcat, hows life so far since your reversal? Hope things are going amazing for you =)
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/18/2008 5:36 PM (GMT -6)   
I'll betcha 20 bucks you'll get him to smile before this is all over! He'll look like this ----> devil

mmmm...miralax... just think, this will be the last time you'll have to 'run' to the bathroom for a while. I promise, you won't miss it!!

What time's your surgery tomorrow?
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 11/18/2008 7:24 PM (GMT -6)   
Good Luck..........you will do great!!!!

Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/18/2008 7:40 PM (GMT -6)   
flchurchlady, my surgerys tomorrow at 8am..i hoping theyll stop my IV long enough for me to take a shower in the morning bc itll be my last for a little while im guessing. You made me LOL when you said id make him laugh ahaha devil   Im determined to before i leave lol
 
Thank you Chili..I read that you got a temp ileostomy and were steriod dependant. Right now, im steriod dependant and was wondering if im going to have to ween myself off them after my ostomy surgery. Is that what they did for you? Ah were so much alike..its wierd lol i have pancolitis..wont tomorrow scool and i was on the same meds as you except i tried remicade and am on methotrexate. 
 
I think ive gone to the bathroom close to 20 times since 4pm! CRAZY.
and my bums really sore so the nurse gave me this stuff called Magic Butt Cream lol..really...thats the name of it. and it really is magic haha
 
Well..im getting tired. gotta get up early tomorrow. Ill post on here if not tonight, then sometime after my surgery.
 
Good night.
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 11/19/2008 12:10 AM (GMT -6)   
Remember that I will be thinking of you and praying you have a speedy recovery. You'll be a new woman soon !! No more UC.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/19/2008 4:08 AM (GMT -6)   
Katrina,

I'm sure the nurse will unhook your IV for a shower this morning, and don't worry, you'll be able to shower after surgery, too. Just ask the nurse for a plastic bench to sit on, so you don't have to stand.

It sounds like your UC went out with a bang yesterday! With 20 trips to the bathroom and the need for Magic Butt Cream... I'm sure you'll never forget that experience! shakehead
I'm praying that everything goes perfectly this morning, and we look forward to hearing from you after you're UC FREE!!!! yeah

:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/19/2008 6:21 AM (GMT -6)   
Katrina...you are probably waiting somewhere in the hospital right now, on your way to the operating room...You'll be on my mind today and I'll say an extra prayer for you...you'll be fine and recover quickly (you're young!!). You'll have to try to get him to laugh after you get him to smile!!

Keep us posted:)

UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/19/2008 8:06 AM (GMT -6)   
GOOOOOD MORNING :-)
 
In about an hour Ill be on my way to the O.R. Last night they told me it would be at 8am and then one of the residents came in and said it would be closer to 10 sooo i was getting myself ready and then they came and said it would be later haha..kind of a bummer.
How long after surgery until i can drink broth? The only bad thing about this is that you have to starve sad   But dads getting my 2 bags of fritos for when we leave the hospital haha CANT WAIT..maybe i should though..i dont want to eat something that would hurt me.
Well..next time i talk to you ill be UC FREE yeah Be back on later. Take care and have a good morning. :-)
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/19/2008 8:25 AM (GMT -6)   
Katrina,
good luck with your surgery. I hope everything goes well.

headphones
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 11/21/2008 1:11 AM (GMT -6)   
oh my gosh, good luck!! you'll feel so much better soon i promise! saying a little prayer for you!
headphones
30 yr. old female
diagnosed with pancolitis uc 7/05
emergency ileostomy 11/07 while 5 months pregnant
gave birth 3/08 to a healthy baby boy!


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/22/2008 6:08 PM (GMT -6)   
too tired o write much..just wanted to let you know everythings going okay so far.
goodnight
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 11/22/2008 9:24 PM (GMT -6)   
Hey Katrina! I'm glad to hear everything went well :)
I just got home from my reversal and mine went really well too. I'm still too exhausted to talk about mine as well, blah. I hope you get to eat soon!
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/23/2008 7:40 AM (GMT -6)   

 

 

 

 

 

 

 

Pains been under control for most of the night last night..its about a 7 now but i have a pump and im really trying not ue it too much. the more i use it the longer i think ill be in here

Havent had anything to eat since tuesday and im hoping theyll let me take a shower later..well this is straining my stomach too much so ill try to post later

Thank you all so much for your prayers :-)

 

 

 

 

 

 

 

 


Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 11/23/2008 7:44 AM (GMT -6)   

Contrary.  Allowing yourself to experience pain will only delay your recovery.  Use your pump when you feel you need it.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mommyphotographer
Regular Member


Date Joined May 2008
Total Posts : 159
   Posted 11/23/2008 11:27 AM (GMT -6)   
i am praying for you.................... this is hard to go thru but you seem very strong and you can do it. just take it easy and dont do anything to make you have to use your muscles becuase you it can end up with a hurnia. and you dont want that so take it easy,,,,

keep us posted i keep checking in on you.......................

moonshine01
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 11/23/2008 12:37 PM (GMT -6)   
Katrina!!!

I am so happoy for you. I just read that you underwent the first stage of J-Pouch surgery.
Finally, you are UC free and symptom free.
I had undergone the same surgery 3 weeks ago and now im at home feeling great and recovering.
I am weaning on prednisone now since i was prednisone dependent. my doctor told me i cannot stop it directly. Now im on 20 mg prednisone and i will go down to 10mg next week and then i can stop from there since im UC free too. No more meds anymore or painkillers. Life after surgery is gettingt better and better. It's great to be able to eat anything and not feel the UC pain we used to have and not think about the bathroom for a while. Think about the coming days and how much better u will become. I feel with you and remember how much tired i used to be.
Rest... Relax. This time of reovery is for you. Stay positive and walk whenever u are allowed to walk and start walking...
I will be praying for you...
Keep us posted

moonshine01
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 11/23/2008 12:38 PM (GMT -6)   
Katrina!!!

I am so happoy for you. I just read that you underwent the first stage of J-Pouch surgery.
Finally, you are UC free and symptom free.
I had undergone the same surgery 3 weeks ago and now im at home feeling great and recovering.
I am weaning on prednisone now since i was prednisone dependent. my doctor told me i cannot stop it directly. Now im on 20 mg prednisone and i will go down to 10mg next week and then i can stop from there since im UC free too. No more meds anymore or painkillers. Life after surgery is gettingt better and better. It's great to be able to eat anything and not feel the UC pain we used to have and not think about the bathroom for a while. Think about the coming days and how much better u will become. I feel with you and remember how much tired i used to be.
Rest... Relax. This time of reovery is for you. Stay positive and walk whenever u are allowed to walk and start walking...
I will be praying for you...
Keep us posted

UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 11/26/2008 9:58 AM (GMT -6)   
HEEEEEY tongue
 
So a little difference in my surgery..they hooked me back up so poo is coming outta my stoma and my booty that way when i come in next time all they have to do is basically patch up where my stoma is..i was kinda mad bc i had accidents in my undies bc i could never tell when it was coming but its getting better and now i have to end up sitting on the toilet forever bc my stomach muscles still hurt wayyy too much to push it out. ive been walking..doc says i might be able to leave today =) id like to be home for thanksgiving.
 
I dont remember anything from the first four days but thats a good thing. i must have been in a lot of pain bc my dad told me one of the nurses were asking me ?s and i was like.. ARE YOU DONE GIVE ME MY DRUGS haha ..apparently that medicine brought out my mean side devil   oh that face reminds me..i FINALLY got the doctor to smile!!! one night when i was in the PICU they were doing something and i made him hold my hand instead of my dads..which i guess hurt my dads feelings sad   and ever since that night hes been smiling and i think that made him kind of warm up to me. I still have my Central Line in but theyll take that out either today or tomorrow and im only taking 25mg of prednisone i start tapering from 20 tomorrow realllllly slow..like 20 to 15 to 10 to 9 to 8 until finally none!
 
Im feeling so much better than the past days and my stoma has been talking non stop lol but as long as its talking i know its working so its almost like relief to hear it bc im afraid of blockages. im eating almost anything i want. still staying away from hard or rough foods and the poo in my bag is mushy instead of runny..im acutally suprised that its like that so soon. i dont know if thats normal but i figured it take a while to get mushy..
A lot of my pain is on my left side but they cut on the right and my bag is on the right..and its not even where they operated so im guessing its bc where they took my colon out and everythings just kind of hurting from where they had me stretched out and who knows what position they had me when they were operating.
 
Well im going to for a little walk..havent been talking too much..took a wheelchair ride yesterday but thats bc i couldnt walk for that long.
 
Will walking help or increase the pain? Right now im taking perkaset for pain and it seems to help i think. Any tips on how to get rid of pain? It would be MUCH appreciated.
 
XOXO and talk to you soon scool
Katrina,17,SENIOR in high school =)
 
Current Meds:Methotrexate shot,Iron,Folic Acid,20mg Prednisone,Probiotic,Multivitamin,Calcium
 
Ileostomy step 1of2 on Nov.19
 
The past is history, the future is a mystery but today is a gift..that's why it is called the present.
 
 
 
 

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