Ostomy Leakage

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 11/25/2008 9:50 AM (GMT -6)   
Hi, I have a new temporary ileostomy for J-pouch surgery.  I keep having leaks every day.  My skin is raw and irritated.  I have no stomahesive powder which might help a lot, i am waiting for the supplies in the mail.  I think the problem is that my stomach isnt nice and firm, its soggy and dents in at the stoma, thanks to having twin boys 1 year and 1/2 ago.  Does anyone one have any suggestions on how to make the bag stay on.  Its a one piece.  I would appreciate any suggestions, i'm so frustrated right now.
Vikki, 29
dx with ulcerative colitis at age 16
prednisone 20 mg, colazal, entocort ec 3/day


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5299
   Posted 11/25/2008 10:18 AM (GMT -6)   
You might try Eakin seals. Also, I recommend you get a visit from an ostomy nurse.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 11/25/2008 11:13 AM (GMT -6)   
Yes, it sounds like you need some convexity. If not Eakin seals than you could try bags with built in convexity.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6551
   Posted 11/25/2008 9:51 PM (GMT -6)   
my stomach isn't nice and firm either i got a three year old to thank partially for that, lol.
Anyway like they said eakin seals may help, I use stomaahesive paste to help mine
Also if you could tell us what you do when you put your bag on, we could see what you might do differently.

Jacob Fred
New Member


Date Joined Nov 2008
Total Posts : 9
   Posted 11/26/2008 12:42 PM (GMT -6)   

I was having a similar problem and I changed pouch brands.  I have a stomach roll that caused the wafer to crimp everytime I sat down.  It was painful and required me to change the pouch every 2 days.  I was using a Convetec 1 piece.  I switched to a Hollister one piece (88400 to be specific).  The wafer is smaller, thinner, and more flexible.  It's given me a much better seal.  I haven't had any problems since.  If you call Hollister, they can send you out some samples so giving it a try won't cost you anything.  I would tell them you situation and maybe they can get a rush order to you.

Good Luck



roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 11/26/2008 2:45 PM (GMT -6)   
Thanks for the all of the advice everyone. I actually saw my ostomy nurse today who set me up with a light convex one piece bag now. She put powder over my raw skin then an adhesive, she also used and eakin seal and a belt. With this bag my stoma is actually protruding into the bag. I feel a lot more confident about this one. Im keeping my fingers crossed! Happy Holidays :)
Vikki, 30
dx with ulcerative colitis at 16
Due to years of prednisone dependence had j-pouch surgery 11/17/08, temporary ileostomy.
prednisone 15 mg tapering 5mg/wk


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/26/2008 7:04 PM (GMT -6)   
they have some pastes that work well, I used it and it fills in the low area of you stomach I used it along with the powder kinda double insurance.

gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 11/29/2008 12:00 PM (GMT -6)   
if your skin is "weepy you might need hollihesive from hollister.  that's what i have to use.  my skin never heals and i use that under my wafer.  it's a barrier.  if you still leak, ask your nurse for that.

Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 11/29/2008 12:33 PM (GMT -6)   
You may already have your supplies by the time you read my reply, but if not, may I suggest, the next time you do a change try this...press firmly on the barrier around the stoma. Hold it for about 30 seconds, then go out just a little and keep pressing down. I do this for a couple of minutes all around the adhesive. When I first got my temporary loop ileostomy (back in July 2007 - still have it), I was not doing this. I was just pressing on the adhesive area outside the stoma area and was not getting a good seal. Like everyone says, the Eakin Seals will help out tremendously. You may find the paste is irritating if you don't find some without alcohol.

Good luck.

Post Edited (Ohio43) : 11/29/2008 11:36:11 AM (GMT-7)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/30/2008 6:21 PM (GMT -6)   
roxZ,

So I'm curious... how is your wear time with your new set up? I've been offline for a while and was catching up on all the posts. Hope we were able to give you some good suggestions.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 12/2/2008 2:50 PM (GMT -6)   
So far I have not had a leak.  Its tough to really know my wear time because the stoma nurse told me to change the bag every two days until the skin that was red and raw is completely healed. 

Vikki, 30
dx with ulcerative colitis at 16
Due to years of prednisone dependence had j-pouch surgery 11/17/08, temporary ileostomy.
prednisone 15 mg tapering 5mg/wk


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 12/10/2008 5:49 AM (GMT -6)   
Hi RoxZ I was just wondering how you are getting on, have you had any more leaks or are you leak free?  Hoping it's good news for you :-)   I haven't had any more leaks either (touch wood) it's difficult to gain trust after you've experienced that isn't it.  Oh and hows your skin now?

roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 12/11/2008 9:02 AM (GMT -6)   
Still changing my bag every two days, no leaks however I had more skin irritation the other day, it was almost healed, I was so excited.  Two steps forward, one step back!  So working on cutting the hole to the right size and having a good seal to protect the skin.  Glad to hear you are doing better too.  Now I'm a little nervous, I'm going back to work next week!  Keeping my fingers crossed that I remain leak free.
Vikki, 30
dx with ulcerative colitis at 16
Due to years of prednisone dependence had j-pouch surgery 11/17/08, temporary ileostomy.
prednisone 15 mg tapering 5mg/wk


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 12/11/2008 10:28 AM (GMT -6)   
oh same here with the skin but great news on the leaks.  Wishing you luck with going back to work and that everything goes perfect for you.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 18, 2014 4:56 AM (GMT -6)
There are a total of 2,104,235 posts in 233,879 threads.
View Active Threads


Who's Online
This forum has 149072 registered members. Please welcome our newest member, madara.
234 Guest(s), 12 Registered Member(s) are currently online.  Details
bigecase, Trudy2, cleonova, sharon82657, Tdubb, canadagal, Merrida, King of the Toilet, Qwix, jumpingjacks99, teddydog, gingeranne8


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer