testing in nyc?

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ih8u
Regular Member


Date Joined Feb 2008
Total Posts : 33
   Posted 11/25/2008 9:38 PM (GMT -6)   
has anybody had any of their testing done in NYC? if so which hospital? i've looked around the threads and i don't seem to find any positive news about treatment for pelvic floor dysfunction. my gastro suspects that i have pelvic floor dysfunction but doesn't really seem to want me to get tested. my insurance won't cover the testing it seems. is the bag the only way to escape the horrors of having most of the BM incomplete and still inside you?

psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/25/2008 10:11 PM (GMT -6)   
Hi'
Actually no the bag is not the only option you can have. I had a total colectomy in Aug. 2008 for slow transit constipation. With my total colectomy, my surgeon removed my whole entire colon and connected my small intestine to my rectum. Some people do get bags and others don't. I guess it all depends on how your doctor feels what they can do. At first I had alot of BM's aftyer my surgery,up to 20 + a day, but now I take metamucil and now have maybe 5-6 BM's a day. With my case I now have tons of food intolerances. My doctor said that not everyone has the same food intolerance, and that one person may react to some types of food, while another person may not react to those same foods. He told me that it all depends on what your body can handle. I kept a food diary to see which foods bother me and which does not. The test I took to determine my problem was called a sitz marker test, where you swallow a clear pill that has 24 rings, and you go get an x-ray for 5 days in a row, to determine if your colon is working or not. I know you have pelvic floor dysfunction, but this test helped my doctor determine why I was having constipation and it turned out my colon had died, because all 24 markers were stuck in the beggining of my colon. Well, I hope this helps somewhat. Good luck to you and I hope everything can be solved.

ih8u
Regular Member


Date Joined Feb 2008
Total Posts : 33
   Posted 11/25/2008 10:31 PM (GMT -6)   
hi did you have incomplete bms before the surgery? like did you feel like there's always a lot of stool that your rectum can't or won't push out? thanks for your reply!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 11/26/2008 12:20 AM (GMT -6)   
hi there

it depends on what's the reason your rectum can't completely evacuate. there are a few reasons: rectal prolpse, rectocele, anismus. you should have some tests like: defecography, manomatry and prianal u.s. - these tests will reveale axactly what the brob. is.
good luck to you and keep us posted.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/26/2008 10:55 AM (GMT -6)   
hi
Yes I had a ton of incomplete Bms. actually at the worst I had so much BM stuck in my colon that would not even come out, that when they removed it it was 30 lbs worth of stool. For the last 3 months before my surgery, I could not move my bowels at all, that I was always in pain, so bad i could not move, I was in the er for cheast, stomach and body pains so bad I felt like I had pneumonia, but it was all from the BM that was stuck and got blocked in my system. That is why I had to have my surgery. I hope this helps some.

ih8u
Regular Member


Date Joined Feb 2008
Total Posts : 33
   Posted 11/26/2008 11:00 AM (GMT -6)   
yes it does ty so much for your replies. did they find any pelvic floor problems psygirl?

my problem is finding my gastro to take me seriously. i've switched so many times. the other time i brought him some info about pelvic floor dysfunction. he said they don't do a number of the tests here and called the defecagram unnecessary. does anybody know if there's anybody on this board that had testing done in nyc?

Post Edited (ih8u) : 11/26/2008 10:04:33 AM (GMT-7)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 11/26/2008 1:50 PM (GMT -6)   
if you can't find docs in nyc that would listen to you and cooperat with you, i say go some other place, even if it means a few hours drive.
if i lived in the U.S.A, i would go to cleveland clinic!! i've read in this forum that they are soooooo great - the best. those who reported that made me really feel sorry i don't live in the U.S.A.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/26/2008 2:25 PM (GMT -6)   
hi,
they did not find any pelvic floor dysfunction with me, just the dead colon. two years before in 2006, I had a full blown rectal prolapse and had to have surgery for that. The same surgeon that did my colectomy also did my rectal surgery. The doctor that did the surgery is a colorectal surgeon. I did not have to consult with a GI, since the colorectal surgeon I deal with deals with all the constipation, irritable bowel, and all of the stomach and bowel area.

ramamorthy
New Member


Date Joined Oct 2008
Total Posts : 14
   Posted 11/26/2008 7:40 PM (GMT -6)   
idea  I had my entire colon removed this past August 27th. My surgeon was a Colon Specialist/Surgeon who was referred to me after almost 8 years of suffering with HMO's and gastro dr.'s. My surgeon was a woman and this gave me comfort because this is and continues to be a traumatic condition and horrendous recovery. She connected my small intestine directly to my rectum. Praise God I did not  require a C bag. I continue to go through the cramping as my body continues to adjust to loosing a major organ. I have a limited diet mainly protein and limited carbohydrates. I can't have any raw fruits or vegetables and I am lactose/glutin/intolerant. I have a very sensitive system and I am on the road to recovery. I definately recommend this surgery and long as you have the right surgeon who understands your problems. The tests that determined that my colon died and totally shut down my system were these 2 very important ones. The colonic transit study and the deficography test. These tests precisely identified the exact location of where my intestines were malfunctioning. In this case my entire large intestine had to be removed. It has been 3 months since my surgery. I have gone back to work, I am a Special Ed. Teacher at a Middle School in CA. I have my good strong days and my sad cramping days. I wish you much luck in your search. My prayers are with you and know that you are not alone in enduring this horrible disease. CM.... cool

psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/26/2008 10:21 PM (GMT -6)   
hi ramamorthy,
I also am having pretty much the same food intoleances that you are also having. I am basically down to eating chicken, fish, seafood for protein, no desserts, except for pudding and I also have intoleances to pretty much all carbs and starches, and dairy products, and chocolate. The only starchy food i cvan have is canned peas. Rice, potatoes, and all of the starches people on here say that help them, bother me big time. i am down to only literally 20 foods, which include liquids. I only can have jello, and the only way I can have fruit is canned with jello in it, since the canned fruit alone causes diareah. I am taking metamucil powder, but it only helps me if I eat foods I can tolerate. It does not help me at all when i have the intolerated food. I tried, but i still got the watery, oily, diareah every half hour and with som intolerances, even with the metamucil, I am sitting on the toilet having constant watery diareah for an hour and half straight, not stopping at all. My doctor even admitted that It would only help me if I eat what I am allowed, and that if I ate intolerated foods, I will still have the same diareah reaction.

ih8u
Regular Member


Date Joined Feb 2008
Total Posts : 33
   Posted 11/26/2008 11:08 PM (GMT -6)   
did you guys have any food intolerance prior to the surgery?

psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 11/27/2008 7:50 AM (GMT -6)   
Hi,
prior to my surgery I had no intolerances what so ever. I know what a drag it can be, because the holidays are here and it was my birthday the other day and I could not even eat cake and I am limited. But I learned to deal with them because I always think to myself, I rather avoid the foods I can't have even though alot of them are ones I love, and have a good quality of life where I can do things without always being in the bathroom, then eating those things and living life in the bathroom and pretty much having no life.
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