colostomy before and after

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sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 11/29/2008 2:45 PM (GMT -6)   
I have a few questions and would love to hear from anyone that could help, the nurse is calling me next week to schedule a colostomy...
Rectal pain before, is there any after?
Everything feeling like it is going to fall out of my vagina before, is there any after?
Hemorrhoids before, is there any after?
Stomach pains before, is there any after ( I know the surgery site will hurt for a while?
All in all what is the day to day pains? I hate pain, no tolorance what so ever! I am scared but at the same time I am so relieved because life has to be better than the pain it is now... I hope anyways. Has anyone out there had a colostomy laprascopically? What is the recovery and when can I start working and having a normal life again? Thanks for any help out there.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/29/2008 10:32 PM (GMT -6)   
if you are having a colostmy you wont have hemmroids cause nothing will come out from down there anymore,lol
as for the pain if you are having your rectum sewn shut it will hurt for a while.

day to day pains will be not fun for a while but after about aweek i was off pain meds down tojust advil
good luck!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/30/2008 4:28 AM (GMT -6)   
If you are going to have a colostomy, you've probably experienced the very worst of the pain already - continuous, without much relief, and just plain miserable all the time, right?

Surgical pain differs from person to person, depending on procedures. Yeh, you will feel the pain of the surgery BUT it is entirely a different pain. AND you can rest assured that it will subside in the days to weeks following.

I'm sure others will chime in on this email, but do stay in touch with this forum. We have loads of comments and suggestions. Have you read some of the other posts on here?

Regards,
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 11/30/2008 12:41 PM (GMT -6)   
Thank you summerstorm and peggy113 for the replies, definately have lived with this continuous pain for far to long and am anxious for it all to go away I am just so scared that this will lead into a whole new ordeal with pain and that is the reason for the specific questions... I have looked at most of the other posts and that has definately helped me. I am not worried about wearing a "bag" I am confident enough and after going through everything I have I would lose an arm if that's what it took to get better. I will not have my bottom sewn shut because he said that I will still poop mucous which kind of freaked me out, if I don't have the feeling to have a normal bm how am I going to do that? Kind of strange to me.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/30/2008 4:33 PM (GMT -6)   
so you are going to have a j-pouch?
i dont know about the mucous stuff, i have heard abotu that from people, but i have a perm ileo so my bottom is sewn shut, which honestly was the hardest part for me to get my head around.

Even though noone would ever be able to just randomly know that about me, and surely not see it!

it can be an ordeal at times having a bag,like when you are trying to change really quickly, or when you have a leak. But those times are few and far between and its def worth those few times to not be sick!

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 12/1/2008 1:55 PM (GMT -6)   
No I don't know what a j pouch is but I do know it is a colostomy and I am scared but at the same time am relieved that this maybe all over with shortly and if its just having a bag to deal with it has to be better than being sick, you know what I mean...

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/1/2008 10:47 PM (GMT -6)   
it is much better than being sick. You will be amazed at how when you wake up from surgery you will feel better, i felt clean is the only way i can describe it.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 12/2/2008 6:57 PM (GMT -6)   
Sunshinefl,
 
I lost your email address, and I've wanted to talk to you.  So your doctor finally agreed to do surgery?  Which doctor did you end up using, and why a colostomy instead of colectomy? 
 
I tried biofeedback, but no luck.  I had a little setback because I developed a large cyctocele and had surgery on that about 6 weeks ago.  I go back on Dec. 29 for another colonoscopy and then Jan. 8 for another sitz marker, and then I hope to schedule surgery. 
 
Let me know what's going on!
 
Janie

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/3/2008 12:03 AM (GMT -6)   

I had an ileostomy for 8 months before having my colon and rectum removed, so you can have a colostomy and still keep your colon and rectum even though you aren't using them.

What disease do you have? Is it Crohn's or Ulcerative Colitis? As long as you have active disease, you are going to feel some pain from it. It is lessened, however, when you're not using the diseased parts. If they don't get better after having the colostomy for 6 months, you should consider having the diseased parts removed.

I didn't think the mucous was a big deal. You just feel like you have to go to the bathroom, so you sit on the potty and that's all that comes out. From what I remember, it only happened once every couple of days, which was no big deal after having Crohn's and going 20+ a day!

I don't remember a lot of pain with the ileostomy surgery, since there wasn't a large incision to deal with. The only frustration I had was waiting 10 days for my ostomy to start working. I could only eat ice chips, and that got old real quick!

The most painful thing I do remember was changing my wafer for the first time and pulling the little blonde hairs out on my stomach one-by-one. I highly recommend shaving your stomach to the left of your belly button before surgery. That's where the wafer is going to go, and I'd like to spare you that unnecessary pain.

As with any surgery, it's recommended to give yourself 6 weeks off work to fully recover.

Take care,

:-)  Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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