Post Total Colectomy Diet

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lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 12/8/2008 2:53 AM (GMT -6)   
Alright, I am having issues with getting backed up again.  I had a TC in August.  I take about 4 stool softeners w/o laxatives in it after every time I eat.  I eat then get the desented belly.  I try to stay away from alot of bread and dairy.  So, I don't have a bunch of bms a day only about 5.  Anyone else seem to have the problem?  And I have to eat small meals, only about 2 a day or I get nauseous. 
Thanks

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 12/8/2008 3:42 AM (GMT -6)   
hi sugar,
i'm sorry i can't help you with your questions, i haven't had the surgery yet, if i ever...
did you have the surgery b/c of colonic inertia?
i have colonic inertia and i'm supposed to have the surgery, but i'm scared that i'll find myself in a worse situation, i mean i've read about succuss stories, but i've also read about sad stories too. i can never know what to expect after surgery.
i hope you don't mind me asking, but do you regret having the surgery?

i hope someone with some answers to your questions will pop soon.

best wishes.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 12/8/2008 3:50 AM (GMT -6)   
I did have the surgery due to colonic inertia. I've had problems my whole life and found out the whole colon was "dead". The sitz marker test was "off the chart". I don't have any regrets at all. I had it by lapro and was up a day later. It was painful, but, honestly, you have to expect that. I've had some minor complications, but nothing that wasn't worth it. The problems I'm having now could just work themselves out too. They say to give your body at least six months to work itself out. This doesn't mean you'll be in pain or confined to your house. I had control issues in the beginning but that's normal. Now, I'm more on the side of not going enough.

I've read alot of these stories and I would say the odds are you will come out of it great. I would definitely encourage you to have it. Where would you have it? Mine was done at Rush Univ Hospital in Chicago.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 12/8/2008 4:35 AM (GMT -6)   
sugar, it's so encouraging to know you don't regret having the surgery.
i'm not scared of a temporary pain, i'm scared there will be chronic pain for life due to scar tissue/adhesions or some other possible reasons. i'm most scared about the outcome, whether i'll still be constipated or the opposit - i'll go too much, and maybe it will be accompanied with some more issues that are worse than what i'm having now. but, again, if all of these issues are going to be only temporary, then it's ablolutely o.k and of course i can tolerate that.

i know.... every surgery has it's risks and if i decide, then i have to go with positive attitude and hope for the best outcome.

i'm from Israel and when the time comes, it will be in Tel-Aviv. it's gonna take a while, cause i have some tests to do first. my gi wants me to have the zits marker test again and u.s of the pelvic. i also have to see a urogynecologist too, since i'm having some issues with my bladder. nothing too serious, so maybe we won't have to do anything about it. we'll see on Wednesday when i go to him.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 12/8/2008 11:31 AM (GMT -6)   
I was nervous too about the outcome and any prolonged problems. The way I was living before doesn't compare to now. I have issues with my rectal muscles and a slow transit time in my small bowel. But the surgery did make a huge difference. I only have pain when I need to go, but that's normal or will go away. It's been four months and I'm easily able to go out without running to the bathroom all the time. And the bloating I feel when I get backed up isn't anywhere compared to the bloating and desentation before...I don't look six months pregnant after I eat. Good luck at your appointment

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 12/8/2008 2:48 PM (GMT -6)   
thanks sugar, you're very encouraging. i'm glad you feel better and having the surgery did help you. i hope we all have the chance of having normal life again.
you know, the thread of TOTAL COLECTOMY PART 20 is the thread of the CI girls. please keep in touch with us there, and maybe someone there can help you with the questions you have.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


lolaleigh
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 12/8/2008 4:31 PM (GMT -6)   
thanks and good luck to you too
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