Ileostomy Reversal and Gallbladder attack symptoms

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ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/8/2008 11:46 AM (GMT -6)   
Has anyone had an illeostomy reversal and then suffered with gallbladder attack symptoms radiating from under the right rib cage to the back?  I went on this web page and it is all the symptoms that I have.
 
 
I have been having this Thursday night, last night and then when I ate (a small amount) this morning.  I am scared.  Is there any relation to having the ileostomy surgery and then the reversal surgery and then having problems with the gallbladder?  Please help.  I am alarmed and my surgeon is 5+ hours away.
 
ksd

suebear
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Date Joined Feb 2006
Total Posts : 5690
   Posted 12/8/2008 12:15 PM (GMT -6)   
For those who have had colectomies it is not UNCOMMON to end up having the gallbladder removed at some date. I was told by my surgeon that they think the correlation has something to do with the way bile salts are digested. Anyway, I know more colonless people who have had their gallbladders removed than I can count on one hand. I still have mine but wouldn't be surprised to eventually have to have it removed. This is normal. Go to your doctor and get the tests done to see if the GB is your problem.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/8/2008 12:25 PM (GMT -6)   
I had my colon removed August 2007, and my reversal Aug 2008. I just had mt GB removed Dec 5th. My doctor said that their could be a correlation between the two, especially if you've ever been extremely dehydrated duriing any of the illness. You should probably see you Dr. And in the meantime avoid any high fat foods. Pay attention to what causes an attack, so you can avoid that until your GB is taken out. GB attacks HURT. I know another surgery is scary and annoying, but you'll feel better with it gone, and you don't need it. I just blogged about my surgery, if you want to read it. http://sfgiantsjo.blogspot.com/
 
Good Luck, and don't worry!
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/8/2008 6:58 PM (GMT -6)   
I had my gallbladder out on the13 of nov. You should go see your surgein about your gallbladder befor you end up having emergancy surgery.Both of the two test that thay do on your gallbladder are not bad at all.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/13/2008 9:20 PM (GMT -6)   
Thank you so much for your replies. I am so glad that you have responded to this. I went to see my surgeon and they did all the tests (not painful at all) CAT scan, ultra-sound, MRI and found that my gallbladder is inflammed, that my bile duct was enlarged and that I already passed some gall-stones. Very very painful! They want to wait a few months for the inflammation to go down so that they won't have to do an open surgery but a laproscopic one and don't want any complications.

sfgiantsjo and mom9mom was your galbladder surgeries open or laprscopic. Was it very painful. I have been crying a lot and praying a lot because I am not sure how this inflammation is going to go down. Thank you for any further information you could give me on healing the gallbladder and the surgery itself. Really appreciate it!

ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/13/2008 9:44 PM (GMT -6)   
http:/sfgiantsjo.blogspot.com/ I love your blog. Did you pain last long? Thanks! ksd

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/13/2008 11:50 PM (GMT -6)   
Thanks!

Well, my GB attacks lasted from 4-10 hours each time, and I had then like 10 days in the san of two weeks. The pain from having it removed was bad for two days, and minor a day after that. By my fourth day I was just a little sore. A week after I spent 13 hours Christmas shopping and traveling 45 minutes to San Francisco to do it! It's not bad at all.

Oh, and my surgery was Laproscopic. They thought it would have to be open, due to all the internal scarring from my previous three surgeries, but once they got in there, they were able to do the lapro. The surgery is really NOTHING compared to a colectomy. It's a piece of cake!
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/14/2008 10:14 AM (GMT -6)   
Does anyone know anything about diet or prevention of making my GB inflammation worse? I have to wait 2 months before I can have mine taken out because of the inflammation. Thanks for any information! I am very scared and have been crying a lot. It's frustrating because I am not sure what to eat other than non-greasy foods.

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/14/2008 1:30 PM (GMT -6)   
My Doctor said that triggers could be anything fatty or greasy, which you already know. He also included Dairy products. He said some people can have issues with Dairy. Now that I think about it, I suppose that could be due to the high fat content in a lot of Dairy products, but anyway... Also, he mentioned alcohol if you have any pancreas involvement, such as a stone in the pancreatic duct.

For what its worth, I understand your fear. I had to wait two months until I had mine taken out, and I was so scared to have that pain again. But, I got through the months fine, only very small attacks, that were more uncomfortable, and less hurt. And all of my liver tests and inflammation stayed down. Try not to worry too much, you will get through this, and you will be fine! In the meantime, we're all here for you anytime you feel like freaking out!
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/14/2008 2:35 PM (GMT -6)   
I cried when I read your last post. Thank you thank you so very much. All I have done today is cried. Thank you for sharing your life story - it has helped me so very much. It makes me feel so not alone.

did you say that the drs felt that the ileostomy and reversal were related to the GB problems? Thanks for being there sfgiantsjo and everyone else! this is an awesome site. ksd

ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/14/2008 4:07 PM (GMT -6)   
I meant to ask while you were waiting for your gallbladder to be removed, did you feel nauseau and burping a lot? anyone? Thanks! Still freaking :(

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 12/14/2008 7:55 PM (GMT -6)   
And I thought it was just me. Had my GB removed in May 2007, thiking that was the problem. That surgery was a piece of cake actually, in the day surgery center at 7:00 am - Home and feeling a lot better by 5 that afternoon. UC didn't stop though.. "Flared" up after about a month and everything went back to the horrid state that it was before...

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 12/14/2008 7:58 PM (GMT -6)   
ksd said...
I meant to ask while you were waiting for your gallbladder to be removed, did you feel nauseau and burping a lot? anyone? Thanks! Still freaking :(

Yes for about 2 weeks before the GB surgery I coudn't eat anything and kept vomiting. Wound up drinking blue gatorade as a way to keep my body in order. Also took Iron and Potassium pills... Everything I ate came up either though vomiting or .. of course.. diarrhea..

UC is the most horrid disease you can have.. Frankly, I think if I had had cancer I'd not have felt so bad. I'd have rather lost all my hair than have no control over vomiting of diarrhea

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/14/2008 10:12 PM (GMT -6)   
Yes, my gallbladder stones, made me feel constantly nauseous. YUCK. And, well, to be honest, with no colon, and my sorry excuse for a digestive system, I'm always burping a lot! I've kind of just gradually let the people I hang around most know that I'm not meaning to be rude, but if I don't burp when I feel the need, that I will end up in major pain!

It's funny...gallstones are so very painful, and cause all kinds of other side effects, and the surgery is simple, and life is so much better with out it! It's almost like I wish I could have told my surgeon to just take it out during the first surgery!
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/15/2008 12:25 AM (GMT -6)   
Thank you so very much for your answers. I have been burping and burping and feel really sick. All of these tools help so much because this is so crazy-making.

My GYN surgery went bad as my surgeon perfed my ileum and I had to wear and ileostomy in May and then had it reversed in September. I thought all of these gastro-upsets were due to this surgery but I think it is because of the GB. I am so appreciative with everyone's responses. Thank you. I had to take an adavant (prescription) to calm me down today. The pain under my rib cage is sore but not the attack feeling just sore from the swollen GB and naeseau (sp?) and burping and diahrr. Yuck ..... I feel strength from you all aain, thank you.

ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/16/2008 12:15 PM (GMT -6)   
Has anyone had any success at treating their gallbladder problem(s) without surgery? I found this web site and wondered if anyone had any luck. I would rather not have surgery and be able to live with this GB that God put in me. Any luck with holistic and/or natural treatments?

http://www.gallbladderattack.com

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/16/2008 6:06 PM (GMT -6)   
I found some temporary relief through my chiropractor...but it didn't help me avoid attacks altogether. Also major diet changes helped. But, I don't know, I just wanted to get my life back, and not have to monitor things all the time. It's a personal choice, I guess. I do think that these things helped me tremendously while I was waiting for my surgery.
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/17/2008 2:10 AM (GMT -6)   
Ksd sorry it has taken me so long to get back to you but I have had the worse cold for the last few days and when I get sick now all I can do is sleep just about around the clock.I can not wake up for the life of me.Any way my surgery was open and of all the surgerys that I have had in the last year(This was the 9 or 10 lost track)it was pretty easy even though it was open.I was in the hosp. for 4 days.thay were not bad thanks to the morfen.Then I had about 4 days at home that were not to good but not that bad.The burping can be your gallblader but it might just be your digestive trac. You will still need your gallblader out because it can become septic witch is very bad.My GB became septic when I was in the hosp. after I had most of the other surgerys thay could not remove it at that time because I was not strong enuff so thay just had to drain it and I had to have a drain tube for 2 months.My GB was not because of my ileostomy.My family has a history of GB disease and I have had problams off and on for years but just kept putting it off.Now I dont now why I dont miss feeling sick when I over do it with the fats.Dont worry to much it will all be fine it really is nothing next to ileostomy.GOOD LUCK and stay away from the fryed foods and baked goods (cookies always got me)and any high fat foods.If its good you cant have it.SORRY.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/17/2008 2:17 AM (GMT -6)   
Kds I forgot to add that even though my GB. was not related to my ostomy if you go back through the threads you will find that there do`s seem to be a link between ostomy`s and GB.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/18/2008 12:57 AM (GMT -6)   
I have a related question to this thread --- so, why isn't it manadatory to remove the GB when/if you have any type of abdominal surgery, like the removal of the appendix? Just wondering.... since it seems to cause more problems with it than without it. Tho I will have to admit that I still have mine and haven't had any GB problems to date. Ileostomy in 1984.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/18/2008 1:38 AM (GMT -6)   
The more time a surgeon is inside your body the more chance of having something go wrong.The gallblader has a job to do in your body so thay only take it out if thay have to.Thay dont remove the appendix unless thay need to even though it has no job in the body that thay know of for sure because as I first stated that the more time a surgeon is inside the body more things can and do go wrong.Most people who have other kinds of abdominal surgery live the rest of there lives with there gallbladders with no problams.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/18/2008 1:52 PM (GMT -6)   
Help! I still feel yucky! Sick to my stomach, tight around the ribs when breathing, tired. Are these normal symptoms for a gallbladder problem? I also have developed a fistula after my reversal surgery and feel plain yucky. I feel so discouraged. My surgeon didn't want to do the gallbladder surgery right away because it was a it inflammed and wanted to see if the symptoms would go away after awhile. I feel so discouraged and tired of feeling ill .....

ksd
New Member


Date Joined Dec 2008
Total Posts : 15
   Posted 12/18/2008 2:43 PM (GMT -6)   
I forgot to thank everyone for their most generous answers. I really appreciate everyone sharing their experiences. I am kind of mad they didn't take out my gallbladder. I feel just yuck ..... It helps me understand my feelings thanks ....

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/18/2008 11:52 PM (GMT -6)   
Sorry that you are still filling bad.Yes all of the things you ask about can be from your GB. but it can also be other things.Have you talked to your DR. about it lately???
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/19/2008 10:44 PM (GMT -6)   
Don't be too mad at your Doctor - most Surgeons prefer not to do anything else surgery-wise when they remove your gallbladder. The GB is considered a "contaminated" organ. If something were to happen and the gallbladder spills the bile that is inside of it, it could cause a serious infection, especially if they are operating on some other part of your abdomen. I need a simple surgery for an abdominal hernia, and they wouldn't even do that at the same time, for risk of infection.
 
When are you feeling yucky? All the time? At night? After eating?
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.

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